With 300 million people worldwide living with rare diseases, #RareDiseaseDay calls us to unite for equity—ensuring accessible diagnosis, treatment, health, social care, and opportunities for every unique journey. #EANeurology

Today is #RareDiseaseDay2024. We'll be joining Rare Diseases Ireland and @NI_RDP at Farmleigh in Dublin. "Looking to the Future for Rare Diseases" Department of Health. Join online at: us02web.zoom.us/webinar/regist… #shareyourrare

💡Did you know that almost half of rare conditions are neurological? On #RareDiseaseDay (29 Feb) we're proud to join Genetic Alliance UK to raise awareness and celebrate our incredible members who do so much to support people affected by rare neurological conditions!

... (part 2) - collaboration locally, with @NHIPartners Newcastle Hospitals NIHR Newcastle BRC , nationally Genetic Alliance UK Rare Disease UK @ and internationally through EURORDIS-Rare Diseases Europe IRDiRC @EJPRareDiseases @rarediseasesint and many more 💜#rarediseaseday

MSA is one of 6,000 recognised rare diseases in the world and today is #RareDiseaseDay. This year's theme is Share Your Colours - Help us spread the word about MSA and the impact that it has on people diagnosed and their families by sharing this post or contributing yourself.

#MSATRUST delighted to be at #Ratediseaseday in Dublin, listening to updates on Genome screening, plans for rare disease policy and meeting with European policy makers,

Prof Henry Houlden leads the The Neurogenetics Lab ION lab at UCL Queen Square Institute of Neurology and plays a key role on the Genomics England board for rare diseases as part of the 100,000 Genomes Project. He explains what attracted him to research rare diseases ➡️ bit.ly/4bT6CJM #RareDiseaseDay

You can now catch-up with all the talks from our amazing presenters #MSAResearchSymposium at youtu.be/mjvMEYrVzyM

Next week is #BrainAwarenessWeek. We are joining the UK Neurological Alliances to share #OneNeuroVoice and raise awareness of organisations across the country that support people living with neurological conditions. Keep an eye out for our posts and get involved!

What a massive impact this is having for research charities and research careers in the UK! From everyone AMRC and who will benefit- thank you

Many families find solace in creating an online MSA Tribute Page. This can be a meaningful way to remember loved ones, while supporting a charity close to your heart - msatrust.muchloved.org

We work together to support people with neurological conditions. We inform policy, raise awareness and support the improvement of services, coming together to campaign on shared issues. Find out more bit.ly/3wKfHo2 #OneNeuroVoice

It is #MSAAwarenessWeek. Help us to spread awareness of this progressive neurological condition that affects around 3,300 people in the UK and Ireland. Keep your eyes on our social media over the coming week for ways to get involved and please share our posts.

How cool is that! Christian Lambert Researchers transform Parkinson’s tremors into music | UCL News - UCL – University College London ucl.ac.uk/news/2024/mar/…

Please sign the Right to Rehab petition now and help make it mandatory that there is a rehabilitation lead and strategy in every hospital and health board. Thank you. #RightToRehab #RehabLegend bit.ly/3InI9OY

The right care at the right time means people can stay healthy and live well for longer, whether this is completing day-to-day tasks, being able to socialize, or staying in education & work. Ask your next MP to become a #NeuroChampion now: bit.ly/NeuroChampion #GE2024🗳️

We want to extend a massive THANK YOU to our incredible supporters who helped raise funds for the MSA community this May. We deeply appreciate your dedication to supporting the Trust. Without your enthusiasm we couldn't continue to provide our free support services.

Here are YOUR PUBLIC SERVICES that 5 Prime Ministers have stolen in the past 14 years Don't let them get away with it #bbcqt

I am delighted to have presented our #dementia #epigenetics work at the 11th Westerberger Herbsttagung on the Perspectives of Molecular Neurobiology, Osnabruck. I look forward to new collaborations #Alzheimers #FTLD #research. Research at ARUK Bonus - London views on my return 👇

Thank you to the outgoing founding Co-Editors-in-Chief of Movement Disorders Clinical Practice, Kailash Bhatia, and Marcelo Merello, whose contributions in establishing and growing the publication have built a legacy for MDS. Movement Disorders Clinical Practice @WileyNeuro loom.ly/rLWLkkg