Saturday 1 Dec #RAREfest18 main exhibition, talks & silent films event FREE tickets are now available! For a sneak peek at some of the programme check our website here camraredisease.org/rarefest Tickets through Eventbrite UK rarefest1dec2018.eventbrite.co.uk Rare Disease UK RARE Revolution Magazine®

My van got stolen last night in Sidcup. The scumbags have left me with no van and some of my invaluable tools a month before Christmas. Absolutely ruined me. If anyone sees/seen anything, please get in contact. It’s a white Ford Transit, GV62 JXY.

Our Unique Feet dancers are running through their final rehearsal in preparation for tonight’s #RAREfest Launch. We can’t wait for everyone to see it. Looking forward to welcoming our guests later!

“Life may not be the party we hoped for, but while we are here we should dance!” Immensely proud of our Unique Feet dancers for all their hard work and effort. What a outstanding performance. Their very own Strictly. It’s a 10 from us!

Just been to see #NativityTheMusical. Amazing show!! @simonlipkin was blooming fantastic!!

1/3 An exciting opportunity to work for Cambridgeshire County Branch of UNISON. We have a vacancy for a Branch Administrator, working 25 hours per week on a permanent contract. UNISON Scale 7 (£27,929, pro-rata £19,848 for 25 hours).

If you know someone who still doubts the climate crisis, show them this. The 20 warmest years on record have occurred within the last 22 years. The four warmest were 2015, 2016, 2017 and 2018.

On this day in 1968, 187 women at the Dagenham Ford factory took a stand against unequal pay. This is their story. #equalpay

A quick question for the UK government... Where do the 300,000 homeless people go to self isolate in the event of any them contracting Coronavirus?

I think it would be a good idea to make available online and on BBC1 the Blue Peter archive from the last 60 years. This would bring particular joy to the older generation who will be more isolated. Many ex presenters could be involved and in it would bolster a sense of community

So society’s *real* key workers have just been revealed. Not the bankers. Not the traders. Not the elite hedge fund managers. It’s the nurses. The doctors. The delivery drivers. The carers. The porters. The teachers. The shelf stackers. The check out staff. #COVID19

Communities are so important for Rare families especially during COVID.

Our judicial review has hit home! £95 K exit Cap regulations put on hold! Government has concluded that the Cap may have unintended consequences the Regulations should be revoked. Directions have been published to disapply the Cap until Regs are revoked!!! Press release soon

Unique Feet: Little Cooks, giant challenges and Rare Bears! Check our our newest #UniqueFeet community news to see what our families have been up to - mailchi.mp/camraredisease…

Voluntary and community groups are invited to apply for grant funding of over £1.7 million to help fund activities in 2022-23: cambridge.gov.uk/news/2021/08/2…

RT this if you’d like to see headlines about elderly patients waiting longer than 12 hours for an ambulance, rather than yet more absolute nonsense about Meghan Markle.

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The diamond art was ready just in time! BBC Eurovision Graham in thousands of tiny gems by Ellie!

Thankful Thursday! A huge THANK YOU to @truecolourstrus who have awarded £6320 towards our varied programme of accessible & inclusive activities, enabling families in our our Unique Feet community group to get involved in a space of understanding, acceptance & friendship.