Greg Gowe (@greggowe) 's Twitter Profile
Greg Gowe

@greggowe

Dad. Husband. Lawyer at TELUS ("retired" by ALS). Advocate. I type with my eyes.

ID: 17428362

calendar_today16-11-2008 21:41:50

1,1K Tweet

9,9K Followers

362 Following

Greg Gowe (@greggowe) 's Twitter Profile Photo

20 yrs ago this week I met my wife. In an elevator. A week later we went on our first date. Indian food in the West End. The rest is history. Being in a 20 yr relationship with my wife and having a family together has been the highlight of my life.

Greg Gowe (@greggowe) 's Twitter Profile Photo

This diabolical disease has progressed to the point where it is dangerous for me to cry, as I now choke on my own secretions / mucus. We need to #EndALS. Jean-Yves Duclos Adrian Dix

Jody Nelson (@jodynelson_) 's Twitter Profile Photo

This is ALS. I witness—with my sibling’s experience—exactly what Greg Gowe describes here. We need to #EndALS —it is indiscriminate and yes, diabolical. No one should have to endure this. Jean-Yves Duclos Adrian Dix Paul Merriman

David Taylor (@vpresearch_als) 's Twitter Profile Photo

Understanding why each person's experience with ALS is so unique is something we still don't understand well. For Canadians willing to help global scientists figure that out by telling their biological story, please consider participating in CAPTURE ALS. captureals.ca

Greg Gowe (@greggowe) 's Twitter Profile Photo

I don't understand why people with ALS have to fight so hard for an accelerated drug approval pathway. We need to start trying to save lives. Jean-Yves Duclos Adrian Dix #EndALS

Greg Gowe (@greggowe) 's Twitter Profile Photo

Today marks 3 yrs, 3 mos since I was diagnosed with ALS. Since then, 3,250 more Canadians have received this diagnosis and 3,250 have died from ALS. I'm not okay with this. Jean-Yves Duclos Adrian Dix

Greg Gowe (@greggowe) 's Twitter Profile Photo

It's been over 80 yrs since Lou Gehrig died. The disease has been neglected and underfunded for decades. We need to make up for all the lost time. Jean-Yves Duclos Adrian Dix

Greg Gowe (@greggowe) 's Twitter Profile Photo

We appreciate your ALS advocacy on social media and your behind the scenes work, BC MLA Shirley Bond 🇨🇦. We are hoping that another MLA or MP will join you, and then another, and another. We can't stop until people start surviving this disease.

Greg Gowe (@greggowe) 's Twitter Profile Photo

We need a strong ALS patient voice in Canada that will outlast individual patient advocates. That's why we started ALS Action Canada (@alsaction). We are now a non-profit with a board and part-time Executive Director. We need your support to keep growing.

Greg Gowe (@greggowe) 's Twitter Profile Photo

Thank you BC MLA, Trevor Halford. Let's get loud about the need for an accelerated drug approval pathway, better access to more clinical trials and targeted research funding. #EndALS.

Greg Gowe (@greggowe) 's Twitter Profile Photo

The ALS community in BC has been waiting patiently for @UBCmedicine to fill this role, which will allow clinical trials to take place and result in a desperately needed upgraded Clinic. It's been a year, UBC, (and arguably longer). It's time to wrap this up.

Greg Gowe (@greggowe) 's Twitter Profile Photo

We are very fortunate to have Don as the chair of the board and involved in the #EndALS movemen. Join us / support us and let's find a cure for this terrible disease.

Greg Gowe (@greggowe) 's Twitter Profile Photo

When I was diagnosed with ALS I realized almost immediately that my "fight" was not going to be a fight to be healthy again. No, people with ALS were still having to fight to establish that our lives had value and were worth trying to save. We're still fighting this fight.

Greg Gowe (@greggowe) 's Twitter Profile Photo

My fight with ALS has come to an end. Please don’t be sad. Life is beautiful. Live hard. Love those around you and come together to #EndALS.

Greg Gowe (@greggowe) 's Twitter Profile Photo

Thank you to everyone for connecting with Greg’s final tweet. We feel so much love. What a gift Greg unknowingly gave his kids. In reading your comments, they couldn’t be more proud of their dad. We gave Greg a beautiful send off. ALS is now behind him, and he is at peace.