FionaRobinsonPhD
@frobinsonphd
Consultant, medical writing and editing.
Passionate about empowerment through knowledge.
ID: 1493600221384880141
15-02-2022 14:57:55
479 Tweet
155 Followers
263 Following
What if people with #VWD had a say in #ClinicalTrial outcomes? How could they agree which outcomes to recommend? In the June 4 National Bleeding Disorders Foundation Wednesday Webinar Mark Skinnier, Elizabeth Clearfield, Baiba M. Ziemele, and Dr Paula James will explain how coreVWD did exactly this!
In next week's National Bleeding Disorders Foundation Wednesday Webinar we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts. Bring your questions for the live Q&A and don't forget to pre-register! July 16 2PM ET
For decades living with #hemophilia meant IV infusions for many people, but now some treatments are given by subcutaneous injection. In tomorrow's National Bleeding Disorders Foundation Wednesday Webinar Akshat Jain MD MPH FRCP will tell us all about one of these! July 23 2PM ET Pre-register (free) below:
With so many treatment products available now, do you know all of them? In next week's National Bleeding Disorders Foundation Wednesday Webinar we'll hear all about HEMA Biologics #treatment option for the #hemophilia community from one of the very best medical educators: Dr Tami Chrisentery-Singleton
TODAY 2PM ET! Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about HEMA Biologics #treatment option for #hemophilia A and B with #inhibitors in the National Bleeding Disorders Foundation Wednesday Webinar. Bring your questions for the live Q&A!
Why do some people with severe hemophilia A develop inhibitors and not others? In the next National Bleeding Disorders Foundation Wednesday Webinar lived experience and medical experts explain research into this question and the My Life, Our Future genetic database Aug 13 2PM Bleeding.org/Events
TODAY 2PM ET! In the National Bleeding Disorders Foundation Wednesday Webinar we learn from medical research and lived experience experts about research into why some people with severe hemophilia A develop inhibitors, and others do not. Bring your questions for the live Q&A!
Big changes are coming to insurance plans. In next week's National Bleeding Disorders Foundation Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment. 2PM ET, Oct 1 Don't miss the live Q&A
Join me for a unique opportunity to learn from medical and lived experience experts about The Odyssey of Factor X: Voices, Symptoms, and the Evolution of Care, in this National Bleeding Disorders Foundation Wednesday Webinar, sponsored by Kedrion Biopharma - USA #FactorX #Ultrarare #BleedingDisorder
Access to care too often depends on who you are or where you live Wed, Nov 5, 2PM ET The National Bleeding Disorders Foundation Hemostasis and Thrombosis Research Society Research Journal Club will discuss these challenges with health access, clinical care, and lived experience experts. Pre-register (free): bleeding.org/events