Milkfairy 💙 🇺🇦 (@ecrsfd) 's Twitter Profile
Milkfairy 💙 🇺🇦

@ecrsfd

Patient advisor in public & patient involvement in research studies & NHS services.
NIHR research champion.

#ANOCA #vasospasticangina #MINOCA #VSA #MVD #INOCA

ID: 3241204210

linkhttp://internationalheartspasmsalliance.org calendar_today07-05-2015 22:31:50

3,3K Tweet

625 Followers

1,1K Following

International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

' Your Heart Speaks!' Here's a reminder of the survey timeline. Help us bring about change to improve the future care of patients living with #ANOCA #INOCA Please share the direct link to the study below. surveys.adelaide.edu.au/redcap/surveys…

' Your Heart Speaks!'

Here's a reminder of the survey timeline.

Help us bring about change to improve the future care of patients living with #ANOCA #INOCA 

Please share the direct link to the study below.

surveys.adelaide.edu.au/redcap/surveys…
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

#ANOCA causes chest pain when the coronary arteries are normal or not significantly blocked. It's a common condition that can be difficult to diagnose. Symptoms can be chest pain, indigestion, nausea, vomiting, weakness, and fatigue as well as referred pain.

#ANOCA causes chest pain when the coronary arteries are normal or not significantly blocked. It's a common condition that can be difficult to diagnose.

Symptoms can be chest pain, indigestion, nausea, vomiting, weakness, and fatigue as well as referred pain.
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

It’s so good to have beautiful open arteries! It’s great to have a good Ejection Fraction! However, is that the whole picture? #ANOCA matters! #HFpEF matters! internationalheartspasmsalliance.org/rethinking-the…

It’s so good to have beautiful open arteries! It’s great to have a good Ejection Fraction!
 However, is that the whole picture? #ANOCA matters! #HFpEF matters! 

internationalheartspasmsalliance.org/rethinking-the…
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

Even though we continue to persist with daily symptoms, it is miraculous what this muscular organ can and will do for our daily living. Even when compromised, it is still strong! #ANOCA #INOCA #MINOCA

Even though we continue to persist with daily symptoms, it is miraculous what this muscular organ can and will do for our daily living. Even when compromised, it is still strong!

#ANOCA #INOCA #MINOCA
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

MEN (and Women) this is an IMPORTANT TOPIC!! HUGE Share! It is about yhe Sex Differences in Microvascular Parameters! It IS comprehensive. Around 45 min … sooooo much important info! Make some popcorn and have a listen! m.youtube.com/watch?v=UM8Zob…

MEN (and Women) this is an IMPORTANT TOPIC!! HUGE Share! It is about yhe Sex Differences in Microvascular Parameters! It IS comprehensive. Around 45 min … sooooo much important info! Make some popcorn and have a listen!

m.youtube.com/watch?v=UM8Zob…
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

"Patients with ANOCA warrant more appropriate diagnostic and management pathways to improve the outcomes of these often overlooked individuals." academic.oup.com/ehjqcco/advanc…

"Patients with ANOCA warrant more appropriate diagnostic and management pathways to improve the outcomes of these often overlooked individuals."

academic.oup.com/ehjqcco/advanc…
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

We were privileged to be able to contribute to this consensus document of expert clinicians and patients with lived experience, setting out the case for clinical standards for multidisciplinary, patient-centred services for #ANOCA #INOCA internationaljournalofcardiology.com/article/S0167-…

Maggie Simpson (@m4ggiesimpson) 's Twitter Profile Photo

ICYMI: British Menopause Society guidance for healthcare professionals 🫀HRT after myocardial infarction thebms.org.uk/wp-content/upl… 🫀Management of menopause for women with #CVD developed with Scottish Government Women’s Health & Heart Health Policy Teams thebms.org.uk/wp-content/upl…

ICYMI: <a href="/BrMenopauseSoc/">British Menopause Society</a> guidance for healthcare professionals

🫀HRT after myocardial infarction thebms.org.uk/wp-content/upl…

🫀Management of menopause for
women with #CVD developed with <a href="/scotgov/">Scottish Government</a> Women’s Health &amp; Heart Health Policy Teams thebms.org.uk/wp-content/upl…
Dr Roxana Mehran (@drroxmehran) 's Twitter Profile Photo

#WARRI❤️R @ACC2025 2476 ♀ pts w/ INOCA, intensive medical rx vs usual care: ❌ Didnt reduce MACE by 20% at 5y fu 🚨Cautious interpretation of results: insufficient adherence, power ⛔️ Do NOT d/c statins and ACEi/ARB ‼️Additional data are needed in this growing pt population

American College of Cardiology (@accintouch) 's Twitter Profile Photo

WARRIOR: Hear From Elizabeth Dineen, DO, FACC, on the WARRIOR trial from #ACC25 which found that intensive medical therapy did 🚫 significantly impact the rate of serious CV events at 5️⃣ years in women w/ suspected INOCA. 🔗 Watch on #ACCAnywhere TV: bit.ly/3FJdX34

WARRIOR: Hear From Elizabeth Dineen, DO, FACC, on the WARRIOR trial from #ACC25 which found that intensive medical therapy did 🚫 significantly impact the rate of serious CV events at 5️⃣ years in women w/ suspected INOCA. 

🔗 Watch on #ACCAnywhere TV: bit.ly/3FJdX34
CardioVisual: Powered by MedicalVisual (@cardiovisualapp) 's Twitter Profile Photo

The WARRIOR trial was ambitious, but without endotyping, outcomes didn’t change. Dr. Jay Widmer (R. Jay Widmer) explains why individualized testing is critical for advancing care in INOCA. 🎥 Full breakdown now on YouTube! youtu.be/eequD8jTQhA #Cardiology #ACC2025 #CathLab

International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

While the umbrella term #ANOCA is useful, it's important to determine whether a person's symptoms are due to microvascular dysfunction, microvessel or coronary artery vasospasms.

International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

Happy Nurse’s Week! Thank you to all the nurses who advocate for patients and watch out for them in vulnerable moments! They are the backbone of our care.

Happy Nurse’s Week! 
Thank you to all the nurses who advocate for patients and watch out for them in vulnerable moments! They are the backbone of our care.
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

Congratulation to Her Heart Australia on their 10year Anniversary Event in Melbourne. Our Co Founder Cindy McCall was honored to be on a panel sharing her experiences, creating awareness of what heart disease truly looks like. Bravo spasmlife finally meets Rosanna Tavella

Congratulation to Her Heart Australia on their 10year Anniversary Event in Melbourne. Our Co Founder Cindy McCall  was honored to be on a panel sharing her experiences, creating awareness of what heart disease truly looks like. 

Bravo <a href="/Heartspasms1/">spasmlife</a> finally meets
<a href="/RosannaTavella/">Rosanna Tavella</a>
International Heart Spasms Alliance (@heart_spasms) 's Twitter Profile Photo

Thank you to everyone who passed on the details of our survey. CONGRATULATIONS to all who took Survey 1! You are, in part, going to the ESC (European Society of Cardiology) Congress with Sarena La on August 29th in Madrid. Sarena La surveys.adelaide.edu.au/redcap/surveys…

Thank you to everyone who passed on the details of our survey.

CONGRATULATIONS to all who took Survey 1! You are, in part, going to the ESC (European Society of Cardiology) Congress with Sarena La on August 29th in Madrid.

<a href="/sarena_la/">Sarena La</a>

surveys.adelaide.edu.au/redcap/surveys…
BHF Clinical Research Collaborative (@bhfcrc) 's Twitter Profile Photo

We are delighted to announce our first educational and Q&A session about Patient and Public Involvement in Research! ➡️Have a question or topic you’d like covered? Let us know and register here by 24th June: forms.office.com/pages/response… More info: [email protected]

We are delighted to announce our first educational and Q&amp;A session about Patient and Public Involvement in Research!  

➡️Have a question or topic you’d like covered? Let us know and register here by 24th June: forms.office.com/pages/response…

More info: enquiries@bhfcrc.org