Usually women find out they are a carrier when their son is diagnosed with #Duchenne or #Becker. In most cases, female carriers do not experience any disease symptoms. 👩‍👦 ↓ Information for carriers worldduchenne.org/carriers/ #Motherhood #WDAD2021

🎈 𝗙𝗥𝗘𝗘 𝗢𝗡𝗟𝗜𝗡𝗘 𝗘𝗩𝗘𝗡𝗧 𝗢𝗡 𝗦𝗘𝗣𝗧 𝟳 Join the global live event on #WDAD2021! International experts will share their experience and knowledge on Adult Life & #Duchenne. 🇪🇸 Interpretación en español disponible ↓ Register today worldduchenneday.org/online-event-o…

👨‍⚕️ Dr Jos Hendriksen has been working with Duchenne families and adults for decades. He organized meetings on adult life with Duchenne and is initiator of the movie '#Duchenne with a Future; the Power to Live’. → Join us Sept 7, 2pm CEST at #WDAD2021 worldduchenneday.org/online-event-o…

This World Duchenne Awareness Day, we are globally advocating to create opportunities for young adults and adults with #Duchenne to live their lives to the fullest. #WDAD2021 🎈 See what you can do ↓ worldduchenneday.org/2021-adult-lif…

In March, 120 participants from 22 countries discussed how they could drive FAIR data efforts to facilitate research and healthcare 📊👩‍⚕️ → The report is now available #DuchenneFAIR #Duchenne #FAIRdata #HealthTech worldduchenne.org/news/how-patie…

🎈𝗪𝗢𝗥𝗟𝗗 𝗗𝗨𝗖𝗛𝗘𝗡𝗡𝗘 𝗔𝗪𝗔𝗥𝗘𝗡𝗘𝗦𝗦 𝗗𝗔𝗬 𝟮𝟬𝟮𝟭 🎈 As the sun rises in Australia ☀️World Duchenne Awareness Day 2021 is a fact! Please share pictures of your activities to inspire the global #Duchenne & #Becker community! 📷 Cordoba, 2019 #WDAD2021

World Duchenne Awareness Day 🎈 Still some hours to go here but my red dress is ready! Final #WDAD2021 behind the paper is lined up. 2nd screen Installed to watch World Duchenne Organization event. I think I am good to go! No real balloons - donated collection to Duchenne Centre NL (big honor, I don’t share balloons easily)

Today is World Duchenne Awareness Day2021 always held on the 7th day of the 9th month to represent the 79 exons in the dystrophin gene 🧬 🎈 World Duchenne Organization World Duchenne Awareness Day 🎈 Duchenne Australia

Duchenne UK and project HERCULES are proud to launch the #DMD-QoL today on #WDAD2021, a quality of life tool developed with patients that has the potential to speed up access to new treatments. #DMD #raredisease #QoL duchenneuk.org/duchenne-uk-an…

Thanks to our partners SCHARR and Oxford University Innovation for their collaboration on this ground-breaking project!

It started it started! Live online talkshow on adult life and Duchenne #WDAD2021 Watching from my living room

We’re live the World Duchenne Organization World Duchenne Awareness Day 🎈 seminar Adult Life

The first to kick off is prof Ros Quinlivan, who is talking about adult standards of care for people living with Duchenne. #WDAD2021 #Duchenne @rcmq37

Today is Old R U OK? account (please use @ruokanyday) it has never been more important to shine the spotlight on mental health. It is ok to not be ok. Join our CommUnity Connect Zoom tonight “Are You Really Ok?”Email [email protected] #MentalHealthMatters #Duchenne #Becker #DMD #bmd #StrongerTogether

How Patient Organizations Can Drive FAIR Data Efforts to Facilitate Research and Health Care: The Report of the Virtual Second International Meeting on Duchenne Data Sharing is now available 👉duchennedatafoundation.org/how-patient-or… #Duchenne #becker #data #RareDisease #FAIRdata

𝗡𝗲𝘄𝗯𝗼𝗿𝗻 𝗦𝗰𝗿𝗲𝗲𝗻𝗶𝗻𝗴 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗠𝗼𝗻𝘁𝗵 👶 Families agree that early diagnosis allows for better care 👩‍⚕️ New treatments are emerging NOW is the time to include Duchenne and Becker MD in Newborn Screening. #2021NBS #duchenne worldduchenne.org/news/newborn-s…

"No conclusions can yet be drawn that the #EQ5D is measuring what matters to people with #DMD" Medical Decision Making letter based on @nlcrossnohere et al doi.org/10.1177/027298… Co-authors: Prof Jill Carlton Donna Rowen John Brazier Karen Facey Klair Bayley Fleur Chandler Duchenne Australia Duchenne UK

Welcome Duchenne Australia’s new General Manager Cara Philpott.

The Duchenne Australia team attended the “Thought leadership Council” sponsored by Pfizer and conducted by WeHumaniseHealth in Sydney. The aim of the council is to ensure fast and equitable access to emerging therapies for those living with Duchenne Duchenne Australia Klair Bayley

Duchenne Australia are proud to share that the first clinical trial site for Pfizer’s gene therapy trial has opened in Australia and screened the first patient, head to our website to learn more. Stronger Together 🧬🇦🇺🙏🏼 bit.ly/3Qj1in6