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#FridayFeature: #FamilyPlanning with #Homocystinuria by Katie Sapp, MS, CGC Article: secureservercdn.net/198.71.188.149…

Our virtual meet-up's are just around the corner! Classical #Homocystinuria patients, join us tomorrow at 7 pm CT MMA+HCU patients join us this Wed., 9/16 at 1 pm CT. Check out our other September dates as well eventbrite.com/o/hcu-network-…

#HCUAwareness2020: HCUFact 1: #Homocystinuria is an elevation of the amino acid, #homocysteine in our urine or blood. High homocysteine can be caused by #Cystathionine-Beta-Synthase, #Cobalamin disorders, remethylation disorders , such as #MTHFR. #GoBlueForHCU #HopeConnectsUs

12 reasons to give - Reason 1: #HCUHero: Hallie from the UK "Hallie was diagnosed at age 6 after 2 years of investigations following a rapid decline in her sight." Read more here: hcunetworkamerica.org/hallie/ Donate at hcunetworkamerica.org/donate

.Senator Dick Durbin Please support 2 bills that will save the lives of moms across the US: HR 4995 & HR 4995. Every 12 hours a woman dies due to pregnancy complications with thousands more facing life-threatening health challenges #BlanketChange

.Tammy Duckworth Please support 2 bills that will save the lives of moms across the US: HR 4995 & HR 4995. Every 12 hours a woman dies due to pregnancy complications with thousands more facing life-threatening health challenges #BlanketChange

Contact your officials to support maternal health! p2a.co/ggu0Mcx #BlanketChange

Just posted a photo @ Batavia, Illinois instagram.com/p/COT3GBxnxey/…

Just posted a photo instagram.com/p/COYIzQJn0Je/…

#Homocystinuria families in and adjacent states, come out and join the PKU Organization of IL for their low protein family picnic! Our Executive Director, Danae' B. will be there!

Just posted a photo instagram.com/p/CT8VbmerGoC/…

#HCUAwareness2021: HCUFact 1: #Homocystinuria is an elevation of the amino acid, #homocysteine in our urine or blood. High homocysteine can be caused by #Cystathionine-Beta-Synthase, #Cobalamin disorders, remethylation disorders , such as #MTHFR. #GoBlueForHCU #HopeConnectsUs

Today starts Classical Homocystinuria awareness week! #HCUAwareness2021: #HCUFact 3: Classical #homocystinuria, also known as Cystathionine-Beta Synthase affects individuals who are born with defects in both copies of Cystathionine-Beta Synthase. #GoBlueForHCU #HopeConnectsUs

Ready to spread awareness and advocate for the #Homocystinuria community and larger low protein community! #WhyNow4MNEA #NewbornScreeningSavesLives #RareDC2022 Virtual Gallery smplbth.co/dbUf2CC #RareDC2022

#Homocystinuria is a group of inherited #MetabolicDisorders. While they all have high #homocysteine, their symptoms & treatment all look a bit different. Join us in 1 week to learn more, from a patient/caregiver perspective! ➡️ Register here: bit.ly/3LZ2Kul

⏲️ Time's Ticking - Get Clicking!!!🖱️ ➡️ click4hcu.com 798 Clicks to go before we reach our goal! Don't forget to click each day and share w/friends & family, too!

TY to Joni Ernst and Sen. Cory Booker for your comments in support of the #MNEA S2013/HR378 in today's hearing on #foodasmedicine. Passing this legislation before year's end is imperitive to achieve equity for those who rely on #medicalnutrition. #MNEAFinishLine

Delighted to share another milestone for labafenogene marselecobac: we announced today it has received the FDA's Fast Track designation as a potential treatment for #PKU! loom.ly/TTxXG0s #rarediseases #drugdevelopment

Very interesting food for thought. I know that compared to Google, the information on ChatGPT regarding #homocystinuria and support for patients is so much more accurate. While others are scared of AI, I see an incredible opportunity for the healthcare industry.