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Attendees at #SIH2021 today are hearing about the anatomy + pathogenesis of #spinalCSFleak from WouterSchievink Cedars-Sinai

Curing patients with CSF leak with percutaneous fibrin glue injection is effective, safe and incredibly rewarding! Another amazing talk and pearls from Mark Mamlouk 👏🏾👏🏾 #SIH2021 #spinalcsfleak

So excited that our study on the time sequence of brain MRI findings in #SpinalCSFleak has been published in Cephalalgia. According to this study, the onset–neuroimaging interval should be considered when using brain MRI findings or #neuroimaging scores for diagnosing #SIH.

"Spontaneous intracranial hypotension is an under recognised and under diagnosed cause of debilitating headaches." We chat to Lalani Carlton Jones from Guy's and St Thomas' and King's College NHS about her team's pioneering #neuroscience work. ▶ Full article here: bit.ly/2ZqeeTC

Finally the studies are telling us what patients have known for a long time but often were not heard. Will this mean that patients are finally ‘consented’ properly & supported & helped afterwards. #PDPH #SpinalCSFLeak #ItsNotJustAHeadache CSF Leak Association painmedicinenews.com/Online-First/A…

Interesting explanation for the truly myelography negative patients.. but I wonder how many of these pts actually have a difficult to identify / ‘shy’ CVF…We need better methods to detect cvfs without repeated exposure to ionising radiation in these tricky cases CSF Leak Association

I’ll second that! Whilst #spinalCSFleak is my neuroradiology passion I enjoy hunting down skull base leaks too, so it was great to write about them for this volume.

Andrew L Callen MD That’s a beauty! You inspired me to have a go with cinematic VRT using one of my dynamic CTMs of a ventral #spinalCSFleak at T4-5. Not quite as nice as yours but I’ll keep playing in syngo.via with some of my other cases #SIH Spinal CSF Leak Foundation CSF Leak Association CSF Leak Awareness Ireland

Hey look who made the news! ⁦Tim Amrhein, MD⁩ talking CSF leak detection with new photon counting CT ⁦Duke Radiology⁩ ⁦Siemens Healthineers⁩

CSF leak patients...please take the survey! myonlinesurvey.co.uk/myneuro/?NAE My Neuro Survey is the biggest single source of patient experience data for commissioning services for people with neurological conditions & lobbying to improve treatment, care & support

Stay cosy & safe everyone! #csfleak #spinalcsfleak #SIH #cranialcsfleak

bmjopen.bmj.com/content/12/1/e… A huge thank you to all who took part in our Patient Survey 9 months ago & to those who worked on this paper. You made this all-important publication possible. Here's to opening more eyes and ears!

Fantastic results in this study on @WBrinjikji's minimally invasive treatment for #CSFVenousFistula Clinical and imaging outcomes of cerebrospinal fluid-venous fistula embolization ⬇️ #spinalCSFleak #neuroIR jnis.bmj.com/content/early/…

We are delighted to announce that our new website is LIVE! csfleak.uk Thank you to Quisk and all of our volunteers who have worked tirelessly to get us here. #csfleak #SIH #headache #hEDS #iih

esmint.eu/news/spontaneo… Free SIH webinar today 4pm UK time! Speakers of the ESMINT webinar are Jürgen Beck and Tomas Dobrocky #csfleak #SIH #spinalcsfleak #headache #orthostaticheadache #uprightheadache

please follow our new account CSF Leak Association #csfleak #csfleakuk #charity

For the past 2 years, we have been working non stop with a large group of doctors to create UK guidelines for the diagnosis, treatment and management of spinal CSF leaks. We look forward to our community having equitable access! #rarediseaseday2022 #csfleak #SIH #headache

#rarediseaseday2022 Those living with CSF leaks are considered rare. We are working hard for better diagnosis, treatment and management. rarediseaseday.org