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TRIPLE YOUR DONATION TODAY! cmtrf.org/the-greatest-g… Today is #GivingTuesday and all donations made before midnight will be matched 3x! By tripling your donation, you're directly fueling progress in the fight against CMT. Donate: cmtrf.org/the-greatest-g…

TRIPLE YOUR DONATION TODAY for Lily Sander: “One in a billion.” That is what Lily’s parents were told when she was diagnosed with an incredibly rare form of Charcot-Marie-Tooth disease — CMT1E with HNPP — at just four years old. cmtrf.org/the-greatest-g… youtu.be/J-gMKaQxnFs?si…

Double your donation for Allison Taylor and help her receive her greatest gift of all — a cure for Charcot-Marie-Tooth disease. Learn more: cmtrf.org/the-greatest-g… youtu.be/PMEwEDB_TL0?si…

NMD Pharma announced that they have published new clinical and preclinical data that provides evidence that targeting neuromuscular junction deficits could potentially improve muscle function in CMT patients. cmtrf.org/nmd-pharma-pub…

A Message From Our CEO: "Greetings and Happy New Year to you all. When I began my tenure as CEO of the CMT Research Foundation in October 2024, I was immediately inspired and impressed by the work of the Foundation." Read more: cmtrf.org/maintaining-mo…

NMD Pharma has announced that they have been granted orphan drug designation by the Food and Drug Administration for NMD670, their novel, oral, small molecule inhibitor of the skeletal muscle-specific chloride ion channel ClC-1, for the treatment of CMT. cmtrf.org/nmd-pharma-ann…

CMT Research Foundation is pleased to announce that Dr. Afrooz Rashnonejad, MSc, PhD has joined the Foundation’s Scientific Advisory Board. cmtrf.org/dr-afrooz-rash…

Jodi Balog has lived with Charcot-Marie-Tooth disease for more than 30 years. Diagnosed at the age of 13, CMT has become all she’s ever known. While CMT is classified as a rare disease, for Jodi—and millions of others—it’s a daily reality. #RareDiseaseDay cmtrf.org/more-than-just…

Thank you to Alan Jackson’s LAST CALL ONE MORE FOR THE ROAD TOUR for supporting and raising awareness for Charcot-Marie-Tooth disease. The Tour is donating one dollar from every ticket sold which will go directly to CMTRF to fund CMT research. wideopencountry.com/alan-jackson-g…

We are thrilled to introduce Laura, a Charcot-Marie-Tooth patient and the CEO of CMT Research Foundation. Thank you for sharing your story with us, Laura! Please read her more of her journey here: bit.ly/4hkr8EE CMT Research Foundation #Charcot-Marie-Tooth #PatientWorthy

The ZeroK run for CMT will take place Saturday, May 17, at Forgotten Star Brewing in Fridley, MN, from 1-4 p.m., with the "race" beginning at 3 p.m. 100% of the money raised from this race will go directly to CMTRF. For more information visit zerokrun.com

On Thursday, April 10, more than 120 patients, scientists, clinicians and pharma companies gathered in Columbus, Ohio for OHio, What a Night — an unforgettable evening dedicated to accelerating research and developing treatments and cures for CMT. cmtrf.org/ohio-what-a-ni…

Registration is now open for the 2025 Global CMT Research Convention which will take place September 25-27, in Cambridge, MA, with special days set aside for researchers and patients. Early bird pricing is now available through June 30. Register today at cmtconvention.cmtrf.org

This Mother’s Day, we’re sharing the story of Tara Haik — a mother of 3 boys, who are all living with CMT. Because of Luca, whom she describes as her “savior,” her family finally has answers. cmtrf.org/because-of-luc…

Researchers at Vanderbilt School of Medicine have made significant progress in the development of small molecules aimed at treating Charcot-Marie-Tooth disease types caused by mutations in the PMP22 gene, which include CMT1A, CMT1E and HNPP. cmtrf.org/vanderbilt-uni…

After 30 years of touring Alan Jackson is retiring amid health battles. Jackson was diagnosed with Charcot-Marie-Tooth disease, a degenerative nerve condition that affects motor skills, in 2011. What to know: wb.md/3HgPxOT

CMTRF is pleased to announce that we have invested in a research project with Asha Therapeutics to investigate the therapeutic potential of inhibiting SARM1 using their novel drug, ASHA-624, for the treatment of Charcot-Marie-Tooth disease type 2A. Read more: cmtrf.org/cmt-research-f…

We are thrilled to have attended the Peripheral Nerve Society (PNS) conference in Edinburg, Scotland, where we had the opportunity to engage with leading experts in the field and collaborate on advancing research and understanding around diseases of the peripheral nerve. pnsociety.com/2025-pns-annua…

CMTRF is thrilled to announce that Ann Fairchild, executive vice president and general counsel of Siemens USA, has joined the Foundation’s Board of Directors. cmtrf.org/siemens-ann-fa…

This Father’s Day, we’re sharing the story of Joao Cardoso — a devoted father of two, Paralympic table tennis champion and a resilient voice in the CMT Community. cmtrf.org/a-father-who-d…