ChronicallyJess (@chronicallyjess) 's Twitter Profile
ChronicallyJess

@chronicallyjess

Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20

ID: 779349935846227969

linkhttp://www.chronically-jess.com calendar_today23-09-2016 16:01:19

3,3K Tweet

1,1K Followers

464 Following

Tina Aswani-Omprakash, MPH (@ownyourcrohns) 's Twitter Profile Photo

As an #IBD patient, really exciting to see positioning of newer therapies being discussed. Personalization is coming, fellow patient community! 🙌🏽 Thank you to Anita Afzali MD, MPH, MHCM, FACG, AGAF Millie Long Corey Siegel for explaining strategies to use newer tx VEDO, UST & RISA. #AIBD2022

As an #IBD patient, really exciting to see positioning of newer therapies being discussed. Personalization is coming, fellow patient community! 🙌🏽

Thank you to <a href="/IBD_Afzali/">Anita Afzali MD, MPH, MHCM, FACG, AGAF</a> <a href="/MLongMD/">Millie Long</a> <a href="/DrCoreySiegel/">Corey Siegel</a> for explaining strategies to use newer tx VEDO, UST &amp; RISA.

#AIBD2022
Elisa Boden, MD (@elisabodenibdmd) 's Twitter Profile Photo

Diet as therapy for IBD. Patient perspective ChronicallyJess: Pts can internalize blame related to diet- important to reassure patients IT IS NOT THEIR FAULT. #aibd2022 @IBDConference

Diet as therapy for IBD.  Patient perspective <a href="/ChronicallyJess/">ChronicallyJess</a>:  Pts can internalize blame related to diet- important to reassure patients IT IS NOT THEIR FAULT. #aibd2022 <a href="/IBDConference/">@IBDConference</a>
Elisa Boden, MD (@elisabodenibdmd) 's Twitter Profile Photo

Oriana M. Damas, MD MSCTI Kelly Issokson MS RD LDN (she/her) ChronicallyJess #JimLewisMD #IkuoHiranoMD. Promising data on Diet as therapy: Low fat diet, SCD. Mediterranean diet - common denominator may be HIGH FIBER. ? Effects on symptoms vs inflammation @IBDConference #aibd2022

<a href="/oridamas/">Oriana M. Damas, MD MSCTI</a> <a href="/GIdietitian/">Kelly Issokson MS RD LDN (she/her)</a> <a href="/ChronicallyJess/">ChronicallyJess</a> #JimLewisMD #IkuoHiranoMD.  Promising data on Diet as therapy:  Low fat diet, SCD. Mediterranean diet - common denominator may be HIGH FIBER.  ? Effects on symptoms vs inflammation <a href="/IBDConference/">@IBDConference</a> #aibd2022
ChronicallyJess (@chronicallyjess) 's Twitter Profile Photo

LOVING #aibd2022, but I’m dreaming of a day when conferences do away with all the wasteful handouts. We know that the environment impacts chronic illness… here’s one way to help reduce waste - we’ve all gone digital at this point, anyway.

ChronicallyJess (@chronicallyjess) 's Twitter Profile Photo

Congrats to ⁦Uma Mahadevan⁩ on her #shermanprize, as her work is particularly impactful for women with #ibd who are pregnant or wanting to become pregnant. She has helped bring the data to #ibdmoms who want to make safe, informed decisions on how to become moms. 💜🤰🏻💜

Congrats to ⁦<a href="/UmaMahadevanIBD/">Uma Mahadevan</a>⁩ on her #shermanprize, as her work is particularly impactful for women with #ibd who are pregnant or wanting to become pregnant. She has helped bring the data to #ibdmoms who want to make safe, informed decisions on how to become moms. 💜🤰🏻💜
Tina Aswani-Omprakash, MPH (@ownyourcrohns) 's Twitter Profile Photo

Amazing discussion with Uma Mahadevan & patient advocate ChronicallyJess on #pregnancy & #IBD! 💎 Have conversations early & discuss safety of therapies 💎 Share data with patient & loved ones + discuss openly as the emotional process is enormous #AIBD2022 @IBDConference

Amazing discussion with <a href="/UmaMahadevanIBD/">Uma Mahadevan</a> &amp; patient advocate <a href="/ChronicallyJess/">ChronicallyJess</a> on #pregnancy &amp; #IBD! 

💎 Have conversations early &amp; discuss safety of therapies

💎 Share data with patient &amp; loved ones + discuss openly as the emotional process is enormous

#AIBD2022 <a href="/IBDConference/">@IBDConference</a>
About IBD: Amber-Writer, Journalist, Podcast Host (@aboutibd) 's Twitter Profile Photo

📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. Corey Siegel and ChronicallyJess give the details on Ep 128! Listen or read here: bit.ly/AIBD128

📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. <a href="/DrCoreySiegel/">Corey Siegel</a> and <a href="/ChronicallyJess/">ChronicallyJess</a> give the details on Ep 128! Listen or read here: bit.ly/AIBD128
ChronicallyJess (@chronicallyjess) 's Twitter Profile Photo

After being diagnosed with Lyme disease this summer, following development into severe neurological symptoms before I was heard by doctors and properly tested/treated, I’m finally stepping outside of my safe, home-based space to travel to #aibd2023! Feeling thankful to be here ✈️

ChronicallyJess (@chronicallyjess) 's Twitter Profile Photo

LOVING convos about fatigue at #aibd2023, but want more about how pts measure fatigue, and how they currently compensate in their life to manage fatigue, because if patients rate their fatigue as improved, but are still opting out of activities, fatigue is not actually improved

Uma Mahadevan (@umamahadevanibd) 's Twitter Profile Photo

One of the most important things I learned @IBDConference was on panel w/ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction

ChronicallyJess (@chronicallyjess) 's Twitter Profile Photo

“Our job is to give patients more hope and reduce their fear.” Thank you for doing that, and so much more, over our many years together. Im so very lucky and I know it. Congratulations on your INCREDIBLY well deserved Sherman Prize, Corey! #aibd2023

“Our job is to give patients more hope and reduce their fear.” 

Thank you for doing that, and so much more, over our many years together. Im so very lucky and I know it. Congratulations on your INCREDIBLY well deserved Sherman Prize, Corey! #aibd2023
Aline Charabaty, MD, FACG, AGAF (@dcharabaty) 's Twitter Profile Photo

#AIBD2023 Pregnancy in #IBD ChronicallyJess 💎B clear: healthy🤰🏼on Rx = healthy 👶🏻 🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws” 💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science

#AIBD2023 Pregnancy in #IBD

<a href="/ChronicallyJess/">ChronicallyJess</a>
💎B clear: healthy🤰🏼on Rx = healthy 👶🏻
🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation &amp; “advice” from “internet &amp; well-meaning in-laws”

💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science