We know many people are in this situation, we’ve updated our Welfare Q&A to give you lots of helpful information. It’s very detailed - if you have questions please contact our Helpline at [email protected] ow.ly/ok3m50zMK4n

At the start of Cystic Fibrosis Trust #CFWeek we want to say a big hello 👋🏻 to the #CFCommunity . We may be spending time apart right now but we are very much #InThisTogether to support you as a team. Keep an eye out for messages from the different members of our MDT this week #cysticfibrosis

As #CFWeek shines a spotlight on the challenges people with #cysticfibrosis face in balancing their condition with everyday life, our YouGov poll reflects how little is known outside of the CF community of the sacrifices made every day to stay healthy. cysticfibrosis.org.uk/news/yougov-fi…

Don’t forget!! TGI....wear yellow friYAY!

My little one and my wife wearing yellow for CF day

Update for those shielding in England - Matt Hancock has announced a pause to shielding from 1st August. From 6th July shielding will be relaxed but strict social distancing should still be adhered to. Find out more here: gov.uk/government/new…

Plans to ease shielding for clinically vulnerable from the 6th July- gov.uk/government/new…

‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…

This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay. We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.

This is truly wonderful news!!

If you have CF please consider completing this survey for the ⁦Cystic Fibrosis Trust⁩: Exploring your clinical trial opportunities (2020) Survey. surveymonkey.co.uk/r/CFclinicaltr…

Lots of anxiety about returning to school for many so this hopefully will reassure our families or give them the opportunity to as questions. Thank you Cystic Fibrosis Trust. Raj Jayaraj claire lord 💙 Fiona Lindsay

Good morning!! Are there any Scottish paediatric nurses who would like to volunteer for the zoom panel meeting regarding the starting back of schools in the UK. This is a panel supported by the CF trust. Please can you get in touch with me if so. Thank you 😎

Morning everyone. Last chance saloon for any CF nurses both adult and paediatric who would like to sit on the zoom panel supported by the CF trust to discuss the starting back of schools across the UK. If anyone is interested please can you message or retweet 👍👍

Was a pleasure being able to take part in this this evening! Sorry for the technical delay!

This is such exciting news!!

Make sure you've registered to reserve your place: bit.ly/35SpCbB

Today the CFNA said goodbye to one of the greats. Aileen Mallinson has officially retired as CF Nurse Specialist at the Royal Hospital for sick children, Edinburgh. Thank you Aileen for all you have done over the years for the CFNA. We will all miss you! Enjoy the peace 🥳🥳🥳