Lynne Johnson (@capecodlynne) 's Twitter Profile
Lynne Johnson

@capecodlynne

She/her, CSF leak patient & educator

ID: 607247123

calendar_today13-06-2012 14:15:34

416 Tweet

128 Followers

932 Following

Mr. T (@mrt) 's Twitter Profile Photo

I just received my 2nd Moderna booster vaccine, and I feel good! I am still going to wear my mask and keep my distance because the virus ain’t over, Fool! Grrr

Robbie Pierce (@robbiepierce) 's Twitter Profile Photo

Well that didn't take long. We decided to take a trip on Amtrak with the kids for spring break. 9 hours into a pleasant ride, a man was suddenly standing next to me, shouting across me at my 6yo son, "Remember what I told you. They stole you. They're pedophiles." 🧵

CSF Leak Awareness Ireland (@csfleakaware) 's Twitter Profile Photo

Many thanks to Spinal CSF Leak Canada Charitable Organization Peter Kranz James Khan Yasmine Hoydonckx for such an informative webinar on a complex and often misunderstood topic ‘Rebound Intracranial Hypertension’ - a potential complication of #spinalCSFleak treatments. Some key take home points ⬇️

Shannon Raj Singh (@shannonrsingh) 's Twitter Profile Photo

Yesterday was my last day at Twitter: the entire Human Rights team has been cut from the company. I am enormously proud of the work we did to implement the UN Guiding Principles on Business & Human Rights, to protect those at-risk in global conflicts & crises including Ethiopia,

Ron Hekier (@ronhekier) 's Twitter Profile Photo

Two decades into my career as a surgeon I recently learned and was struck by the writings of two medieval Islamic scientists who lived over 1,000 years ago. The Lindy effect explains precisely why their knowledge will be timeless.

Peter Kranz (@petergkranz) 's Twitter Profile Photo

For patients out there, you may wonder why physicians don’t engage on #SoMe (respond to posts, follow you, etc). Many institutions have very strict rules that explicitly prohibit this type of engagement. Don’t be discouraged…docs may be listening even if not responding.

MIVINeuro (@mivineuro) 's Twitter Profile Photo

BEFAST can save lives. Learn the signs of a stroke: Balance, Eyes, Face, Arms, Speech, Time. Share with your friends and family. #strokeawareness #BEFAST #StrokeAwarenessMonth

BEFAST can save lives. Learn the signs of a stroke: Balance, Eyes, Face, Arms, Speech, Time. Share with your friends and family. #strokeawareness #BEFAST #StrokeAwarenessMonth
Spinal CSF Leak Foundation (@spinalcsfleak) 's Twitter Profile Photo

The Spinal CSF Leak Foundation is pleased to announce the launch of a new Clinician Education Initiative! Details and application here: spinalcsfleak.org/resources/clin…

Katharina Wolf (@kathadcwolf) 's Twitter Profile Photo

New work from Freiburg&Bern #SIH #spinalSCFleak #SS: 👉8.5% of 142 SIH patients showed superficial siderosis 👉2/3 of these did not have orthostatic headache 👉Symptoms improved after surgical closure of the leak Credits to Jürgen Beck & Team doi.org/10.1111/ene.16…

New work from Freiburg&Bern  #SIH #spinalSCFleak #SS:
👉8.5% of 142 SIH patients showed superficial siderosis 
👉2/3 of these did not have orthostatic headache 
👉Symptoms improved after surgical closure of the leak
Credits to <a href="/JrgenBeck/">Jürgen Beck</a> &amp; Team
doi.org/10.1111/ene.16…
Derrek Schartz, MD (@d_schartzmd) 's Twitter Profile Photo

We show that patients with #IIH possess #glymphatic system dysfunction that is directly related to clinical severity. Further evidence suggesting that #IIH is a glymphedema of the brain. IIH Hub AJNR Matt Bender ajnr.org/content/early/…

Lynne Johnson (@capecodlynne) 's Twitter Profile Photo

I was told my headaches were "migraines" for years... Even when they started taking my hearing... Even w/positive imaging... Even when another MRI showed it had spread. He simply said, "Wellll, I don't really BELIEVE in long-term spinal CSF leaks" – as he put me on another DIET.

Lynne Johnson (@capecodlynne) 's Twitter Profile Photo

A spontaneous spinal CSF leak should be suspected in patients with recalcitrant orthostatic headaches following a spinal procedure, even if symptoms of the leak occur within hours of the spinal procedure, especially if brain MRI is abnormal.

WouterSchievink (@wouterschievink) 's Twitter Profile Photo

Happy to announce the lineup of patient and physician speakers at the 2025 Intracranial Hypotension Symposium #SIH2025 in ⁦I amsterdam⁩ (in order of appearance): #PrincessAnitavanOranje #DrMatthijsBrouwer ⁦Prof Manjit Matharu⁩ ⁦Jürgen Beck⁩ #DrHorstUrbach …

Happy to announce the lineup of patient and physician speakers at the 2025 Intracranial Hypotension Symposium #SIH2025 in ⁦<a href="/Iamsterdam/">I amsterdam</a>⁩ (in order of appearance): #PrincessAnitavanOranje #DrMatthijsBrouwer ⁦<a href="/Manjit_Matharu/">Prof Manjit Matharu</a>⁩ ⁦<a href="/JrgenBeck/">Jürgen Beck</a>⁩ #DrHorstUrbach …
Marc Johnson (@solidevidence) 's Twitter Profile Photo

This is unbelievable. H5N1 is banging at the door and we're firing the 'disease detectives'? Funny thing about pathogens, they will kill you even if you don't know they are there. statnews.com/2025/02/14/tru…

Peter Kranz (@petergkranz) 's Twitter Profile Photo

Interesting new paper from🇨🇭& 🇩🇪 CSF leak centers. 1/5 patients with SIH have persistent HA after leak is sealed. Not surprising, but very important to study and understand better. Need better pathways for dx/tx of refractory HA post SIH. tinyurl.com/43pf6hzy

ISSCL (@issclsociety) 's Twitter Profile Photo

🚨NEW feature: Spinal CSF Leak Literature Round up! 🚨 📖 Want to keep up with SIH pubs but don’t have time? 📖 Check out our new summary of recent impactful literature! isscl.org/education Free to all now - for members in the future. Join ISSCL today!

Lynne Johnson (@capecodlynne) 's Twitter Profile Photo

In patients with Spontaneous Intracranial Hypotension (SIH), myelography during *inspiration* can make CSF-venous fistulas (CVF) more conspicuous. #CVF #SIH #CSFleak #spinalCSFleak #headache