Hey Joe, Avis thinks my wife rented a car in Illinois last January. She didn't. You guys have charged us over $2,300. I've called. I've written four letters. Always saying the same thing: YOU HAVE THE WRONG PERSON. What do I have to do to make this stop? Joe Ferraro

Foundations often start small, with a few parents around a kitchen table. But they grow. And ours is growing now, thanks to a special tool. Do you want to know what the Matrix is? portlandrootsmedia.com/strongerpodcas…

We've come a long way together, Tess Army. portlandrootsmedia.com/strongerpodcas… Stay tuned through the end of this ep for an incredible surprise from my main man Daniel DeFabio.

Don't miss this week's episode of the pod. portlandrootsmedia.com/strongerpodcas…

Looking for great podcasts about rare disease? Look no further than these friends of mine. Subscribe and start listening. Please RT! Effie Parks @BloodStreamInfo Sanath Ramesh Mike Graglia 🌻 Dena DNA DNA Podcast (Old Account) Kyle Bryant Sean Baumstark 21st Century Dads Foundation @K_SalemOaks

Apple picking. It's not just for people who need to get out of the house with their toddlers. Click to listen to my latest podcast episode. portlandrootsmedia.com/strongerpodcas…

Tess is such a talker. Not with words exactly, but a complex system of sounds and gestures. And one thing that can sometimes cause us a bit of concern is this: when she clams up entirely. #nonverbal portlandrootsmedia.com/strongerpodcas…

Evals. Not our favorite, but they’re part of our lives. Click to listen to the latest ep of the pod. portlandrootsmedia.com/strongerpodcas…

I'm outta here. Find me on Mastodon: @[email protected]

Remember Sports at SPACE, Portland, ME last night. Fantastic

I'm running the Houston Marathon on 1/14 with Olivier Emmenecker, whose daughter Zoe is Tess's USP7 sister over in France. Please donate today. Thank you! usp7.org/donate #USP7 #HaoFountainSyndrome #runhou #runhouston

My marathon teammates have arrived in Houston! It’s on! Hao-Fountain Syndrome #runhou #HaoFountainSyndrome

It is ON tomorrow morning. #runhou #USP7 Hao-Fountain Syndrome

Honored to run with these men today in Houston. We were—and are—unstoppable. #runhou #runhouston #USP7 #HaoFountain Hao-Fountain Syndrome RunForUSP7

New insight on Hao-Fountain syndrome: clinical severity score, genotype-phenotype correlations and expansion of phenotypic spectrum. Hao-Fountain Syndrome BCM Department of Molecular and Human Genetics BCMHouston Uni Heidelberg Universitätsklinikum Heidelberg onlinelibrary.wiley.com/doi/full/10.11…

Stuck here in Houston after the marathon, and I don’t even mind. I’m a fan of H-Town. The people here have been so lovely. #WorthIt #runhou #runhouston

Seven men. On foot over 183 miles total. Nearly 300 kilometers. Deep in the heart of Texas. Click to listen to my latest podcast episode. #runhou #runhouston #USP7 #HaoFountainSyndrome RunForUSP7 Hao-Fountain Syndrome portlandrootsmedia.com/strongerpodcas…