It's so hard to explain all the feelings. It's absolutely not grief, but there's loss, fear, hyper focus, shimmering moments of joy..... Just simply so much to process. So I do this

Am at the Leap Rett Conference in Manchester. It's organised by brilliant charity Reverse Rett. It's my first time going to a conference and I'm so relieved I can hide behind my sketchbook as a)there's a lot of peopling and b)huge amounts of info to process. Really enjoying it

More drawings from the Reverse Rett conference.....

Another one from the conference. I ought to explain it, but y'know what, I might just leave it hanging here for a bit.....

Last night there was a dinner and dancing. The floor filled up with gorgeous youngsters, all with rett syndrome. The sheer joy was palpable. One of the organisers turned to me and said 'Thats why we do this. They are our future' ♥️

So our lovely daughter is back on Oxford Critical Care Unit. She's doing pretty well. It's another twist in the rollercoaster. She must be so sick of this. I'm tired. I felt drawn to draw this. Annoyingly the colour isn't quite right. The candyfloss should be pink not red

Originally started drawing this about the conference I went to. Found closing my eyes and trying really hard to drink all the words in did help. But equally now A is back in Critical Care, it's taken on a different more emotional meaning. Tho don't worry folks, she's doing well

Diane Abbott Diane Abbott: “What could be more unjust than losing your life to poorly drafted legislation?”

We’ve rushed to a position that clearly fails to consider these concerns. Doubt and anxiety will haunt this choice

This week I had Sam Carlisle on the pod to talk about the perspective of a parent of a teenager with a rare condition. Full episode on YouTube and Spotify. youtu.be/wfYG-s6okm0?si…

I am totally chuffed to bits. I can't believe my work is being shown in Helsinki! I adored this commission so much. It was an absolute dream to work on something so meaningful and important

Oh my goodness, today's the day! My daughter is coming home

Tuesday morning was fraught with scary desats and hitting 999 It was a frightening and demoralising day but thank goodness, our daughter has bounced back fast. Today we'll take her home from Oxford for the second time this week!

I've missed my partner so much this last year. Can't wait to be properly back home