In honor of #RareCancerDay coming up on September 30th, 2021, NORD invites those affected by a #rare #cancer diagnosis to share their stories to help spread awareness and for the chance to be featured in this year's campaign. Share your story with us here: bit.ly/2lMUeVS

The Importance of #Biobanking in Modern #MedicalResearch

#Biobanking Knowledge and Practical Skills Delivered Through E-learning-based Master's Program - by Gabriele Hartl, Christine Mitchell, Macheiner Tanja, Brigitte Jaksa, Berthold Huppertz and Karine Sargsyan, MD, at Med Uni Graz

We’re calling on #pediatric & #raredisease communities to engage in a network with our #StakeholderForum and @CYBiobank tackling pediatric biobanking and its ethical, legal & societal challenges. From 1-30 Sept: bit.ly/3kIMAYt #pediatricbiobanking #patientengagement

CALL FOR ABSTRACTS We welcome submissions on the ethical, legal, social, gender, and governance issues that #ArtificialIntelligence poses in #biobanking Submit your abstract by 18 Oct! bit.ly/2Va1DBZ #EthicsofAI #AI #ELSI #BBMRI_ELSI

Join and share your practices. Engage in a network tackling pediatric biobanking and its ethical, legal, and societal challenges. BBMRI-ERIC Health-RI bbmri.nl/newsroom/pedia…

Çocuk Metabolizma Hastalıkları Akademisi’nin her yıl Mart ayında düzenlediği sempozyum serisi, bu yıl pandemi sebeiyle 15-16 Ekim 2021 tarihinde uzaktan erişimli olarak yapılacak. Program ve kayıt için cmak.org.tr #nadirhastalıklar #sempozyum #çocuklukhastalıkları

BBMRI_Tr "Rare Diseases Task Force" group met to discuss the best way to share knowledge, increase awareness and collaborate on #rarediseases #biobanking #biobanks

Join the BBMRI.QM Academy and register for our webinars on Pre-Analytical Phases of #Biobanking on 13, 20 and 27 October 2021. #QualityManagement Part 1 on 13 Oct. on "Phlebotomy" - Registration: bit.ly/3Cgnt6I Get full info and programme here : bit.ly/3kde6OL

Did you know our online platform for the UK Biobanking Showcase 2021 is a fully interactive space? Once registered you can log in to chat with other attendees, view articles, post on the community board, visit sponsor booths and more! ow.ly/qw3l50GbMe0 #BBShowcase21

❗️Only 3 days left to register for the @ejprarediseases Pluripotent stem cells for #raredisease research: banking, data, application training! 📆Date: 25-27 October ℹ️ Registration, programme, learning objectives, and more: ejprarediseases.org/event/training…

Reminder to submit your abstract by 18 Oct! We want to hear from you! bit.ly/2Va1DBZ #EthicsofAI #AI #ELSI #BBMRI_ELSI

Are you a parent of a child living with a rare disease? Encourage them to become the future of scientific research and register for the first paediatric expert training workshops, with themes such as healthcare, research and children's rights! 👉 l.eurordis.org/VeGY

Search the Directory here: directory.biobankinguk.org #biobanking

Submit your abstract on ethical, legal and social issues of Artificial Intelligence in biobanking by 16 Nov 2021. bit.ly/30AO8gP #ELSI #AI #governance #AI #biobanking #EthicsofAI #BBMRI_ELSI

Only 6 days to go until ''ESBB Educational Webinar: Clinical Trials, Translational Research, and Biobanking'' Hosted by Rosita Kammler and with the participation of Prof. Ursula Amstutz as the expert speaker! If you are interested, register here: bit.ly/32OVSwZ

Biobank Graz, a member of #BBMRI_at, made headlines last week with a publication showing 8 months of immune response for those experiencing a mild case of #COVID19. Great example of biobank-enabled research! bit.ly/3rTQEL1 #COVID19at

Do you know what a patient registry's purpose is? This collection of data provides researchers information on a group of people who share the same disease or experience. Learn more about it in our NEW #OpenAcademy online course! 👉 l.eurordis.org/6rag

#BBMRI_ELSI #ELSI #newarticle #article #biobanking

🎉 We're very excited that our Fireside Chats will be returning in 2022! Join us on 21 January when we will be welcoming guest speaker Dr Varsha Khodiyar, Data and Connectivity Project Manager for Data Access at Health Data Research UK (HDR UK). Register for your free place: ow.ly/aQCH50HbaKp