Half of people with Long COVID develop #MyalgicEncephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed #MECFS, a complex, chronic, multisystem and disabling illness with no treatments and no cure #MEAwarenessDay 1/

People with #MECFS need better clinical care and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid infections which put you at high risk of joining the #MillionsMissing from their lives due to ME. 2/

L'appui des CIHR et CIHR-IMHA Community est très important lors de cette Journée internationale de sensibilisation à l' #EMSFC. 💙 SVP commentez leur publication pour démontrer votre reconnaissance.

L'appui des CIHR et CIHR-IMHA Community est très important lors de cette Journée internationale de sensibilisation à l' #EMSFC. 💙 SVP commentez leur publication pour démontrer votre reconnaissance.

🗓️ Réservez cette date à votre agenda ! ✨ Assemblée générale annuelle de l'AQEM 📍 Mercredi 11 juin à 14 H 00 via Zoom. 👉 Surveillez vos infolettres pour le lien de connexion et tous les documents à consulter.

"A debunked theory about chronic fatigue syndrome is being recycled to explain #LongCovid—with troubling results." By davidtuller openmindmag.org/articles/going…

Just a heads up that paper just released talking about ME tweets… …is led by the same researchers who are studying exercise in ME, who believe exercise and CBT is best for treatment, who have knocked the updated NICE guidelines for ME, and who do not listen to our patients.

“Overall, 41% of the 278 toddlers whose parents reported them having had COVID-19 had at least one prolonged symptom. The proportion was similar in the preschool group, with 45% of the 399 children having a lasting symptom.” #LongCovid iflscience.com/first-of-its-k…

OMF’s Collaborative Center at Montreal recently launched a new study called Myalgic Encephalomyelitis Adaptive Therapeutic Solution Platform (MEDUSA). 🔗Learn more about MEDUSA: ow.ly/aVxO50VZqi2

📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉 A free, virtual event focused on #PatientEngagement — created by patients, for patients. 💌Stay in the loop: sign up for the PxP newsletter (link in bio). #PxP25 #ForPatientsByPatients

I’ve spent two decades studying how brains age. And I’ve never seen anything quite like this. In normal aging, some neurons die—but it’s gradual, region-specific, and the brain compensates remarkably well. Most of what we see is driven by loss of synaptic connections, not