MUSC Amyloidosis Center (@amyloid_musc) 's Twitter Profile
MUSC Amyloidosis Center

@amyloid_musc

Official twitter account for the MUSC Amyloidosis Center.

ID: 1282744193857789954

calendar_today13-07-2020 18:30:34

189 Tweet

379 Followers

312 Following

Amyloidosis Research Consortium (@amyloidosis_arc) 's Twitter Profile Photo

Over 1200 #amyloidosis patients and caregivers participated in our 2022 Community Survey during April and May of last year. See what they had to share about their #AL #ATTR #AA and other amyloidosis journeys: arci.org/arc-2022-commu…

James Hoffman (@drjhoffmanmiami) 's Twitter Profile Photo

Proud to be a part of this study Sylvester Comprehensive Cancer Center - we need some competition in the TTR stabilizer space… more options for our ATTR patients! Efficacy and Safety of Acoramidis in Transthyretin Amyloid Cardiomyopathy | NEJM nejm.org/doi/full/10.10…

MUSC Amyloidosis Center (@amyloid_musc) 's Twitter Profile Photo

We are thrilled to read this hot off-the-press paper and congratulate the PIs and #DanJudge for leading both phase 2 & 3 studies at our program MUSC Health. A positive impact for the medical community and most importantly, for patients with amyloidosis. Thank you all! 🌟🫀🎉

MUSC Research (@researchmusc) 's Twitter Profile Photo

Enroll in the In Our DNA SC community health research project & embrace a healthier you in 2024! Participants will receive results for their genetic risks for certain cancers & heart disease. Your health matters - make it a priority by enrolling today at inourdnasc.org!

Enroll in the In Our DNA SC community health research project & embrace a healthier you in 2024! Participants will receive results for their genetic risks for certain cancers & heart disease. Your health matters - make it a priority by enrolling today at inourdnasc.org!
National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

The rarest day of the year is finally here: it's #RareDiseaseDay! 🦓 Tag us in your posts today as you #ShowYourStripes and check out our website to add to our "Faces of Rare" dedication wall, download social media graphics, and more: bit.ly/2BrULms🦓

The rarest day of the year is finally here: it's #RareDiseaseDay! 🦓

Tag us in your posts today as you #ShowYourStripes and check out our website to add to our "Faces of Rare" dedication wall, download social media graphics, and more: bit.ly/2BrULms🦓
NCATS (@ncats_nih_gov) 's Twitter Profile Photo

"At NIH, we are committed to taking on the challenges of #RareDiseases." - NIH Director. There's been a lot of progress and we're starting to crack some of the toughest challenges, but "we're not done. We have so much more to do."

"At <a href="/NIH/">NIH</a>, we are committed to taking on the challenges of #RareDiseases." - <a href="/NIHDirector/">NIH Director</a>. There's been a lot of progress and we're starting to crack some of the toughest challenges, but "we're not done. We have so much more to do."
Amyloidosis Research Consortium (@amyloidosis_arc) 's Twitter Profile Photo

AL #amyloidosis is a serious disease. However, many patients benefit from current therapies, with their lives improved and prolonged, often for many years. Learn more about the current treatment options for the disease: arci.org/resource/treat…

Johanna Contreras, MD, MSc (@jcontreras75) 's Twitter Profile Photo

So exciting to see these therapies on the pipeline!! Especially as more and more patient are diagnosed, should we start therapy early? #THT2024 ⁦MUSC Amyloidosis Center

So exciting to see these therapies on the pipeline!! Especially as more and more patient are diagnosed, should we start therapy early? #THT2024 ⁦<a href="/Amyloid_MUSC/">MUSC Amyloidosis Center</a>⁩
David Fermin, MD (@davidferminmd) 's Twitter Profile Photo

Disparity in dx of ATTR #amyloidosis in African Americans (V122/142I) assoc w/ poor outcomes Kevin Alexander Saurabh Malhotra Justin L. Grodin & great talk by Nitasha Sarswat on how this impacts diversity in clinical trials: need to⬇️barriers to test/treat/trials - go to the pts! #ISA2024

Disparity in dx of ATTR #amyloidosis in African Americans (V122/142I) assoc w/ poor outcomes <a href="/KMAlexanderMD/">Kevin Alexander</a> <a href="/NotNoninvasive/">Saurabh Malhotra</a> <a href="/JLGrodin/">Justin L. Grodin</a> &amp; great talk by <a href="/SarswatNitasha/">Nitasha Sarswat</a> on how this impacts diversity in clinical trials: need to⬇️barriers to test/treat/trials - go to the pts! #ISA2024
Brett Sperry, MD (@brettsperrymd) 's Twitter Profile Photo

Forward thinking session to end #ISA24 on clinical trial endpoints in Amyloidosis. Phenomenal conference learning from diverse amyloid specialists from around the world The International Society Of Amyloidosis

Forward thinking session to end #ISA24 on clinical trial endpoints in Amyloidosis.

Phenomenal conference learning from diverse amyloid specialists from around the world

<a href="/ISA_Amyloidosis/">The International Society Of Amyloidosis</a>