Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile
Annabelles Challenge Vascular EDS Charity

@ajschallenge

We support patients & families touched by #VascularEDS working with NHS EDS Service. Proud recipients of The Queen’s Award. VascularEDS.org 🧬

ID: 1220001084

linkhttp://www.facebook.com/annabelleschallenge calendar_today25-02-2013 23:32:34

13,13K Tweet

2,2K Followers

1,1K Following

VASCERN (@vascern) 's Twitter Profile Photo

πŸ”΄ Today marks 10 years of #REDS4VEDS, a day to raise awareness for vascular #EhlersDanlos syndrome (vEDS), a rare genetic disorder that’s often diagnosed too late. Here’s why this matters 🧡

πŸ”΄ Today marks 10 years of #REDS4VEDS, a day to raise awareness for vascular #EhlersDanlos syndrome (vEDS), a rare genetic disorder that’s often diagnosed too late.

Here’s why this matters 🧡
TheMarfanFoundation (@marfanfdn) 's Twitter Profile Photo

Our staff team at the Foundation supports our friends at Annabelle's Challenge and the #Reds4VEDS Movement. We can't wait to wear our red again this October during VEDS Action Month! #VEDS #VEDSAwareness

Our staff team at the Foundation supports our friends at Annabelle's Challenge and the #Reds4VEDS Movement. We can't wait to wear our red again this October during VEDS Action Month! #VEDS #VEDSAwareness
Katie Wearing (@dinkykt) 's Twitter Profile Photo

Wearing red for #REDS4VEDS to raise awareness of Vascular Ehlers-Danlos Syndrome β€” a rare genetic condition that makes arteries & organs dangerously fragile. It’s invisible, but life-threatening. Awareness saves lives. β™₯️ #VEDS #EDS #RareDisease #InvisibleIllness Annabelles Challenge Vascular EDS Charity

Wearing red for #REDS4VEDS to raise awareness of Vascular Ehlers-Danlos Syndrome β€” a rare genetic condition that makes arteries & organs dangerously fragile.

It’s invisible, but life-threatening.
Awareness saves lives. β™₯️

#VEDS #EDS #RareDisease #InvisibleIllness
<a href="/AJsChallenge/">Annabelles Challenge Vascular EDS Charity</a>
JohnRitterFoundation (@johnritterfdn) 's Twitter Profile Photo

Join the Ritters in learning more about VEDS and share a picture of yourself in red! VEDS is a rare, genetic disorder caused by variants in the COL3A1 gene. Many with VEDS are undiagnosed until a life-threatening event occurs. That’s why awareness is key. #reds4veds #JohnRitter

Join the Ritters in learning more about VEDS and share a picture of yourself in red! VEDS is a rare, genetic disorder caused by variants in the COL3A1 gene. Many with VEDS are undiagnosed until a life-threatening event occurs. That’s why awareness is key. #reds4veds #JohnRitter
Zevra Therapeutics (@zevratx) 's Twitter Profile Photo

.Zevra Therapeutics stands with the VEDS community to raise awareness this #REDS4VEDS Day! Wear red, share your support, and help shine a light. #VEDSAwareness #RareDisease

TheMarfanFoundation (@marfanfdn) 's Twitter Profile Photo

Our team wore red today to honor Annabelles Challenge Vascular EDS Charity and #REDS4VEDS. We also want to remind you to go to marfan.org/calendar for free webinars, support groups, and in-person events. Learn more about VEDS at thevedsmovement.org And join us for VEDS Action Month in October - mark

Our team wore red today to honor <a href="/AJsChallenge/">Annabelles Challenge Vascular EDS Charity</a> and #REDS4VEDS. We also want to remind you to go to marfan.org/calendar for free webinars, support groups, and in-person events. Learn more about VEDS at thevedsmovement.org And join us for VEDS Action Month in October - mark
Penny lcfc πŸ’™ (@pennypitstop72) 's Twitter Profile Photo

My friend Broughton Astley is fundraising for Annabelles Challenge. Check out their JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/balcwolfr… Annabelles Challenge Vascular EDS Charity

Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile Photo

Today we celebrate 7 years since proudly receiving The Queens Award for Voluntary Service on behalf of all our amazing volunteers. We support patients & families affected by #vascularEDS, a rare genetic disorder. #VolunteersWeek NCVO Andy Burnham GM Lieutenancy

Today we celebrate 7 years since proudly receiving The Queens Award for Voluntary Service on behalf of all our amazing volunteers. 

We support patients &amp; families affected by #vascularEDS, a rare genetic disorder. #VolunteersWeek <a href="/NCVO/">NCVO</a> <a href="/AndyBurnhamGM/">Andy Burnham</a> <a href="/GMLO_UK/">GM Lieutenancy</a>
Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile Photo

Christina has been volunteering with us for 12 years since Annabelle's Challenge was established in January 2013. Thank you Christina, we appreciate everything you do for us. #VolunteersWeek NCVO

Christina has been volunteering with us for 12 years since Annabelle's Challenge was established in January 2013. Thank you Christina, we appreciate everything you do for us. #VolunteersWeek <a href="/NCVO/">NCVO</a>
Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile Photo

Happy birthday Danika! πŸŽ‰ On your special day, we want you to know how much your hard work and kindness mean to us at Annabelle's Challenge. You truly make a difference for our vEDS community, and we're lucky to have you on our team. πŸ’œ

Happy birthday Danika! πŸŽ‰

On your special day, we want you to know how much your hard work and kindness mean to us at Annabelle's Challenge. You truly make a difference for our vEDS community, and we're lucky to have you on our team. πŸ’œ