This #SevereME Awareness Month, we’re recognizing those living with the most severe & isolating form of #MECFS. Solve & Bateman Horne Center co-hosted a series on caregiving, legal planning, treatment, & access. Watch Pt 3: ow.ly/Ry3C50WJ4Vn #MEAwarenessHour #UnitedForME

It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.

What a lovely idea! I am sure there are a lot of #PwME & those with other #EnergyLimitingConditions who will enjoy watching this film from our beds, chairs and sofas. Great to see the great outdoors. Such a vast open sky on the marsh #MEAwarenessHour

#MEAwarenessHour #EducationForAll

#MEAwarenessHour

Read this thread if you care about this illness, this is the forefront of our knowledge in many ways.

George Monbiot has written about #ME again over on Bluesky today.His usual clear, compassionate and clever reporting. He summarises the current situation in the thread. Recommend it. He really is the best for #pwME.

ME and ME-like symptoms affect approximately 1.35 million people in the UK. Find out how Katharine Cheston, from @DurhamIMH and Durham Sociology, is collaborating with Action for ME to better understand the impact of this condition 👉brnw.ch/21wWBuT #DUresearch

How do people afford to live with ME/CFS for decades? The moment I don't have caretakers or a support system for food, money, and housing, I will be in trouble. I hope ME/CFS research progresses sooner rather than later.

🌻Regular Weekly votes needed please! Same day as #MEAwarenessHour🌻 PLEASE VOTE for @invest_in_me (Invest in ME Research) 🇪🇺 to share in grant monies from My Giving Circle- closes 30/12 #10 on this round for UK/🇮🇪 #MyalgicEncephalomyelitis mygivingcircle.org/invest-in-me-r… ExtraVotes? MEResearchUK 25% ME Grp🙏

🌻 Share Like RT posts during #MEAwarenessHour in 14 hours time🌻 20:00 BST 21:00 Europe CEST Talking all things #MyalgicEncephalomyelitis Poster Credit: Lisa_Cat 🙏

#MEAwarenessHour

ME is a neurological illness that affects tens of millions of people worldwide. Severe cases may be bedridden, unable to care for their basic needs, and sensitive to sound, light, and touch. Despite its severe nature, patients are often dismissed. #MEAwarenessHour

#MEAwarenessHour...

#MEAwarenessHour

🌻Remember the 1 hour chat🌻 Hello! 😊 #MEAwarenessHour each Wednesday/Mercredi/Mittwoch 20:00 GMT 21:00 Europe (Central European Time CET) to talk all things #MyalgicEncephalomyelitis #SevereME #DontLetMEDie Poster credit: Lisa_Cat 🙏

Suspend Astley Warehouses & Launch Independent Review of Wigan Council Planning Department - Sign the Petition! c.org/YtK7TzGXts via Change.org UK

Remember the 1 hour chat #MEAwarenessHour each Wednesday/Mercredi/Mittwoch 20:00 BST 21:00 CEST to talk all things #MyalgicEncephalomyelitis #SevereME #DontLetMEDie Poster credit: Lisa_Cat 🙏

Tessa Munt MP: “ME is perhaps the only condition where the sicker you become, the less care you receive from the NHS.” NHS care for severe ME is nonexistent, over 200 healthcare workers were so concerned they wrote to the Health Secretary 14 months ago but received no response.

In this world of ordinary people Extraordinary people I'm glad there is you In this world of overrated pleasures Of underrated treasures I'm glad there is you open.spotify.com/track/7aSBG1Fw…