Thousands of sickle cell patients have been given a new treatment lifeline by the NHS from today, following the approval of a new drug for the disease.

This innovative treatment could help up to 4,000 people with sickle cell disease. england.nhs.uk/2024/05/nhs-ro…

We are profoundly grateful this day has arrived. NICE’s (National Institute for Health and Care Excellence) final draft guidance published today, Friday 3 May 2024, recommends Voxelotor (also called Oxbryta).
buff.ly/4b38xuo

Fantastic to have seen #Nye at the National Theatre before it closes on the 11th May. It was brilliant!

Delighted to meet just some of the students ⁦Uni of West London⁩ benefitting from the Donors & Scholars scheme of which I’m so proud to support.

Today marks 61 years since the Bristol Bus Boycott. It began after the Bristol Omnibus Company, with the support of the Transport & General Workers Union, refused to employ Black & Asian crews. The boycott lasted 4 months until the company backed down & overturned the colour bar.

It’s so warm and sunny today - loving it!

My playwright daughter Azuka Oforka’s play! 👇🏽

And how’s your day going?
#ParkLife 😎

Dame Elizabeth Anionwu Mthoko Ngobese Sampson Dame Elizabeth Anionwu Uni of West London for the launch of our School of Medicine and Biosciences, in our lab and book signing... what a privilege!

Great to be Uni of West London today for the launch of the School of Medicine & Biosciences. Also to see the enjoyment on the faces of some of the Student Ambassadors seen here with Associate Professor Dr Bernadine Idowu. Dr Bernadine Idowu

We are not creators. We are performers. #MariaCallas

Hope though Gordon that you’ve been able to listen to the stirring and beautiful Flower of Scotland!

Many congratulations Maria!

Loving today’s warm and sunny weather. How about you?

Education time!👇🏽
“People with sickle cell trait carry only one copy of the altered hemoglobin gene & rarely have any clinical symptoms related to the disease. In contrast people with sickle cell disease carry two copies of the altered hemoglobin gene.”
nhlbi.nih.gov/health/sickle-….

The woman highlighted in red is Lucy Higgs Nichols. Born into slavery in Tennessee, she managed to escape during the Civil War and eventually found her way to the 23rd Indiana Infantry Regiment, which was stationed nearby. Nichols remained with the regiment and served as a nurse…

Today is the final opportunity to respond to NICE consultation on #Sickle Cell . Please make it count.
Sickle Cell Society
Caribbean & African Health Network
Cedi Frederick 💙💚
Patrick Vernon
Uwa Ima-Edomwonyi
Margaret Ikpoh
Buki
Nnenna Osuji
NHS Race & Health Observatory
Dr Habib Naqvi MBE
Race Equality Foundation

nice.org.uk/guidance/indev…

A huge thank you to everybody for this fantastic response. Today is the LAST day to send in your comments - here’s the link: ow.ly/s2BS50QT7HJ

Another death from sickle cell disease, how many more until people with sickle cell disease get the care they deserve Sickle Cell Society
Dame Elizabeth Anionwu
bbc.co.uk/news/uk-englan…