D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile
D.R.E.S.S. Syndrome Foundation

@dressfoundation

Here to connect patients, families, and the medical community with resources and information about the severe adverse drug reaction, D.R.E.S.S. Syndrome.

ID: 1270838716119093248

linkhttp://www.dresssyndromefoundation.org calendar_today10-06-2020 22:03:42

651 Tweet

459 Followers

538 Following

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

Did you miss National DRESS Syndrome Day? Want to revisit patient stories & medical insights? Check out our website: πŸ‘‰ Learn DRESS facts πŸ‘‰ Discover how genes play a role πŸ‘‰ Hear what matters to patients in diagnosis & recovery And more! dresssyndromefoundation.org/dresssyndromed…

Steven Chen ι™³ζŒε¨, MD, MPH, MHPEd (@drsteventchen) 's Twitter Profile Photo

An honor to be interviewed for this The Washington Post piece on DRESS. It’s important for us to be aware of the severe cutaneous adverse reaction! Early and proper diagnosis saves lives! washingtonpost.com/health/2024/07…

An honor to be interviewed for this <a href="/washingtonpost/">The Washington Post</a> piece on DRESS. 

It’s important for us to be aware of the severe cutaneous adverse reaction! Early and proper diagnosis saves lives!

washingtonpost.com/health/2024/07…
D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

Enormous gratitude to ⁦Katherine Ellison, Mary-Ellen Deily and⁩ The Washington Post⁩ for this important piece on DRESS. This level of awareness is tremendous and will save lives. #dresssyndrome #acnetreatment washingtonpost.com/health/2024/07…

VUMC Center for Drug Safety and Immunology (@vumc_cdsi_rsch) 's Twitter Profile Photo

The month of August is SJS Awareness month. In preparation, if you are a survivor of SJS/TEN and would like to be featured in the SJS Foundation's SJS Warrior Campaign, email your photo and SJS story to [email protected] sjsupport.org/?page_id=2579

Jason Trubiano πŸ†” (@trubianojason) 's Twitter Profile Photo

"Do it your self...FAST"..... Penicillin & Sulfa allergy self-assessment. Could be a gamechanger in risk stratifying patients into low-risk delabelling clinics. Well done πŸ‘ Dr Morgan Rose Centre for Antibiotic Allergy & Research Austin Health NCIC Doherty Institute pubmed.ncbi.nlm.nih.gov/39098391/

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

DRESS Syndrome can take a toll on patients emotionally & be a next chapter in their recovery. In our blog, "Coping With Mental Health Before and After DRESS Syndrome," Co-Founder Nancy Szakacsy shares tips to help patients care for their mental health. ow.ly/lkCS50SUT2S

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

"Patients should be aware of rash, fever, and other symptoms, which can start weeks after a prescription has been started and even after the course of antibiotics has stopped." - Dr David Juurlink, Sunnybrook Health Sciences Centre the-sun.com/health/1215369… #DRESSsyndrome

Jason Trubiano πŸ†” (@trubianojason) 's Twitter Profile Photo

Abstract submissions open for #DHS2024. Calling for all #drugallergy #antibioticallergy #penicillinallergy research! Come visit us in Melbourne πŸ‡¦πŸ‡Ί ⁦Doherty Institute⁩ ⁦Centre for Antibiotic Allergy & Research⁩ eventbrite.com.au/e/challenging-…

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

DRESS Syndrome is classified as a severe, cutaneous, adverse drug reaction (SCAR). Antibiotics, anticonvulsants, & mood stabilizers often cause SCARs. DRESS is similar to but distinct from: πŸ‘‰ SJS/TEN πŸ‘‰ AGEP Check out this JAMA article on DRESS: ow.ly/JBq350SXVOE

DRESS Syndrome is classified as a severe, cutaneous, adverse drug reaction (SCAR). Antibiotics, anticonvulsants, &amp; mood stabilizers often cause SCARs.

DRESS is similar to but distinct from: 
πŸ‘‰ SJS/TEN
πŸ‘‰ AGEP

Check out this JAMA article on DRESS: ow.ly/JBq350SXVOE
D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

β€œAs a society, we have kind of accepted this idea that we’re just going to try this drug and some people will have this negative effect. But why have a bad effect if you don’t have to?” ~ P. Dickenson, MD VUMC Center for Drug Safety and Immunology #DRESSsyndrome undark.org/2024/08/14/pha…

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

The "E" in DRESS Syndrome stands for eosinophilia. Patients can have DRESS and never test high for eosinophils. Common abnormal blood results: πŸ‘‰ Atypical lymphocytes πŸ‘‰ Elevated liver enzymes πŸ‘‰ Eosinophilia πŸ‘‰ HHV reactivation (most common, HHV-6) πŸ‘‰ Leukocytosis

The "E" in DRESS Syndrome stands for eosinophilia. 

Patients can have DRESS and never test high for eosinophils.

Common abnormal blood results: 
πŸ‘‰ Atypical lymphocytes 
πŸ‘‰ Elevated liver enzymes 
πŸ‘‰ Eosinophilia 
πŸ‘‰ HHV reactivation (most common, HHV-6) 
πŸ‘‰ Leukocytosis
D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

Terrific collaborative work by AUS-SCAR that helps further understanding of DRESS in the Southern-Hemisphere population through the first Australasian registry.

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

El Paso author discusses 'Balloon Bridges,' a story inspired by niece, who died from D.R.E.S.S. SyndromeΒ  kvia.com/be-mindful/202…

D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

DRESS Syndrome is progressive & can affect organs at any stage. Well past treatment, organ damage & failure remain a concern. Medical teams must closely track patients' organs during all DRESS stages! Read about DRESS & myocarditis in our blog: ow.ly/Cgjn50TfS8u

DRESS Syndrome is progressive &amp; can affect organs at any stage. Well past treatment, organ damage &amp; failure remain a concern.

Medical teams must closely track patients' organs during all DRESS stages!

Read about DRESS &amp; myocarditis in our blog: ow.ly/Cgjn50TfS8u
D.R.E.S.S. Syndrome Foundation (@dressfoundation) 's Twitter Profile Photo

Vote for DRESS Research! Medical researchers @ Massachusetts General Hospital & @ Brigham and Women's Hospital are finalists in Bright Futures Prize, β€œSafety First! Stopping Drug Reactions in their Tracks.” Public voting ends 9/12/24. Vote today! ow.ly/aOM150TgXR3