European Cystic Fibrosis Nutrition Group
@ecfs_ecfng
European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomes
ID: 1391813203487858704
10-05-2021 17:51:54
412 Tweet
336 Followers
255 Following
Excellent conference. Lots of learning and networking. Great ideas to take back to Teesside Cystic Fibrosis Centre team. Exciting times in cystic fibrosis care #ecfs2024
Thank you so much to Grace Miller for providing a really informative lecture on optimum nutrition for strength in CF ECFS 2024 Glasgow ECFS PhySIIG pre conference course St Vincent's University Hospital (SVUH) Health and Social Care Professions SVUH
The most popular dietitian in the UK, Dee Shimmin sharing her experience with preparing patients for colonoscopy
Dee Shimmin Lindsay and Laura’s IGLOO-CF study investigating abdominal symptoms after long term use of Kaftrio!
Final morning, and what can we stop? More time needed! European Cystic Fibrosis Society CF BDA Specialist Group, CF Dietitians
A fascinating and comprehensive insight into the changes in CFRD care Filiere Muco-CFTR CF BDA Specialist Group, CF Dietitians lifestyle interventions and personalised care is key!
CF in under resourced setting key to remember access to modulators is not universal European Cystic Fibrosis Society
We CAN Make a difference to Csncer prevention in CF- highlighting a whole MDT approach is crucial. Cystic Fibrosis European Cystic Fibrosis Nutrition Group CF BDA Specialist Group, CF Dietitians
Goodbye Glasgow! 👋🏻 you have been fantastic! A big thank you to the conference organising committee, faculty, volunteers and attendees! A record number of abstract submissions and lots to learn! Plenary highlighting the future focus! European Cystic Fibrosis Society
What a week! A fast paced educationally packed conference.The venue,support staff,presenters and attendees! Thanks for the support.Those not on X & 💙Fiona Moore💙 ECFS PhySIIG Clare Reilly Ciara O'Connor Robert Gray Gemma Stanford (PhD) CFPhysio.com Inc Dr Zoe Saynor (she/her) Jane Davies & many others 👏💜
Almost 1/3rd of people with CF aged 10 and over will develop CF-Diabetes and prevalence increase with age. It shares features with both T1D and T2D: insulin and diet being the mainstay of treatment, adding an additional treatment burden. Cystic Fibrosis Trust CF BDA Specialist Group, CF Dietitians Diabetes UK #DiabetesWeek
Terrified cystic fibrosis patients fear for life-saving medication as supplies dwindle express.co.uk/news/uk/191163… #Creon crisis getting intolerable for uk patients, especially #cysticfibrosis sufferers. More must be done to boost supplies Department of Health and Social Care Cystic Fibrosis Trust NHS England #drugs
Last chance to have your say! Survey closing on 10th July! Are you a U.K. based CF dietitian working with adults? Please complete this survey of current practice in overweight and obesity in CF docs.google.com/forms/d/1CxlAZ… Leeds Adult Cf Dietitians UHB CF Dietitians Cystic Fibrosis Unit NUH @AllWalesCF
We're working to mitigate the impact. If you can't get Creon, contact your CF team before running out—they may order it from the distributor. Keep an eye on below for updates. Cystic Fibrosis Trust British Dietetic Association Leeds Adult Cf Dietitians UHB CF Dietitians Respiratory Dietitians European Cystic Fibrosis Nutrition Group cysticfibrosis.org.uk/what-is-cystic…