🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Our latest paper has been published open access from the Living with LS study. 'Loss, shame and secrecy in women’s experiences of a vulval skin condition: A qualitative study'. Dr Susanne Arnold Bristol Trials Centre Warwick Med School Economic and Social Research Council #LichenSclerosus #LS journals.sagepub.com/doi/10.1177/13…

First paper out from @athenastudy ‘Everyone has heard of it, but no one knows what it is’: A qualitative study of patient understandings and experiences of herpes zoster Sophie Rees @jonbanks10 bjgp.org/content/early/… CAPC, Bristol NIHR CRN West of England Dermatology Nottm Dermatology_UKDCTN

We are delighted to announce that thanks to your support of our #RareGynaeCancerFund, we have awarded Dr Jason Yap from the Uni of Birmingham a grant to run a project to try and predict the risk of #VulvalCancer developing from #LichenSclerosus: bit.ly/3WR798a

It's #GynaeCancerAwarenessMonth and the The Eve Appeal are launching a vulva self-check text reminder service with a how-to guide. There are ofc complex reasons people don't self-examine, but awareness and knowledge is part of the puzzle. eveappeal.org.uk/blog/why-vulva…

🚨Webinar🚨 Introducing CONSULT e-learning on trials involving adults lacking capacity to consent plus expert panel Q&A to help answer key challenges Shaun Treweek Amy M Russell Dr Anna Volkmer 🗓️5th Dec 🕑2pm 🔗tinyurl.com/2s3nmbz7 Health and Care Research Wales UKCRC CTU Network CTRCardiffUni

This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a brand new resource for people who have vulval lichen sclerosus (LS). The aim is to empower people living with LS to learn about the condition, access the right treatment, and live more comfortably.

Our paper about the lived experience of shingles is out. We found that for some people, linking it with 'low mood' or poor mental health was stigmatising, and resulted in shame and self-blame. Generally people don't know how debilitating shingles can be until they experience it.

Ever wondered what happens to the skin in lichen sclerosus? Watch our video 'What is vulval lichen sclerosus?' vimeo.com/1044752540 and visit lichensclerosusguide.org.uk/what-is-vulval…

Great day yesterday at the BBC studios raising the much needed awareness for lichen sclerosus & vulval cancer and getting to meet these amazing women and Naga.

A whole hour on mainstream radio about LS! The stories from Clare and the callers, even though I've heard similar many times, moved me. Let's aim for a future where people aren't misdiagnosed for years. The LS Guide was given a shout out! Thank you 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 Vulval Cancer UK Awareness

Are you a health professional or patient who can help translate some of our resources into other languages, especially Urdu, Bangla, Panjabi, or Polish? Get in touch!

Health professionals (esp primary care) and people with vulval LS should know that yearly check-ups are recommended in the BAD guidance. More info on our website! …chensclerosusinfo.blogs.bristol.ac.uk/diagnosis-chec…