We’ve been quiet lately on Twitter but that’s because we’ve been busy working to develop #CFTummyTracker for people with #cysticfibrosis. Thank you to the almost 200 of you who have taken part in the study so far. Here’s a thread on what we’re about and what’s next...

‼️NEW RESEARCH OPPORTUNITY COMING SOON… Are you an adult or young person aged 12+ with #cysticfibrosis? Can you help us in our development of CF Tummy Tracker, a 2-week app-based research study, to develop a questionnaire to better understand tummy symptoms in CF? 📲 cf/Aware

The research group of Dr. Amanda L. Tatler (pictured) at Uni of Nottingham #WeAreUoN & NHLI provide an account of the role of the TGF-beta signaling pathway in lung development & #BronchopulmonaryDysplasia: ow.ly/WJjC50MG4sY Rebecca Calthorpe Amanda Tatler #ArticlesInPress

Happy International Day of Women and Girls in Science! ✨ To celebrate, we talked to five women to find out about their roles in CF research and their advice to other women and girls considering a career in science. 🔬 ➡️ ow.ly/QQ5H50MPCLS

Cystic Fibrosis & Cystic Fibrosis Unit NUH are proud to launch 🚀 the #CFTummyTracker to help People with CF track their Tummy symptoms. To find out more please follow the link cftummytracker.org

We are keen for people with CF to help us test CF Tummy Tracker - an app to record tummy symptoms. Could you do this for 14 days? If so, check out the app! cftummytracker.org

Calling all followers with CF! CF tummy tracker is a really neat app for recording gut and bowel symptoms. So we can measure & improve treatments. Supported by Cystic Fibrosis Trust and National Institute for Health and Care Research. We need help to get it tested by as many PwCF as possible, please follow link below and RT.

We’ve had a fantastic response to the CF Tummy Tracker app since it was launched. We’d really like to get the views of young people aged 12+ years with CF. Could you help by downloading and using the app to track tummy symptoms every day for 2 weeks? ChildrensResearchNUH CF Trust Youth

To go straight to CF Tummy Tracker and join a simple study to help us understand the gut symptoms experienced by people with CF, click here: cftummytracker.org Question CF cf/Aware Evidence Based Child Health Alex Horsley

We need help advising companies & ethics committees what level of pay compensation is correct for taking part in clinical trials. Cystic Fibrosis Trust have launched a short survey on this and it would be hugely powerful to have the views of as many PwCF as possible! surveymonkey.co.uk/r/9J9DL85

Check out this great new study looking at the impact of tummy symptoms for PwCF. Anyone can sign up and help test this great app! #Notjustlungs cftummytracker.org

Thank you to the participants with #cysticfibrosis who have registered on cftummytracker.org so far! Outside the UK, Australia has been the country with the most number of participants followed closely by France and the US👏 Cystic Fibrosis Aust #CFEurope Cystic Fibrosis Foundation

Are you interested in being a part of CF research? There are lots of different types of study you could be involved in. Our Trials Tracker lists all the CF trials currently looking for participants in the UK. We have just added two new studies: #CFTrust #ResearchWednesday

➡️ ‘CF Tummy Tracker: a patient-reported measure for gut symptoms in CF’ cysticfibrosis.org.uk/get-involved/c… #ClinicalTrials

Published this week! Our refresh of the JLA top 10 research priorities in cystic fibrosis. Thanks to everyone who took part! ⁦Question CF⁩ ⁦Cystic Fibrosis Trust⁩ ⁦Evidence Based Child Health⁩ ⁦cf/Aware⁩ ⁦ThoraxBMJ⁩ #ECFS2023 thorax.bmj.com/content/early/…

Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.10… Evidence Based Child Health Question CF cf/Aware

Prof Smyth and colleagues have a 'gut' feeling about the importance of understanding bugs in the intestines to better treat gut symptoms of CF. We wanted to remind you of his research in #WorldMicrobiome week. (1/2) cysticfibrosis.org.uk/news/this-is-s…

Thank you to the participants who have enrolled as we approach the '100' milestone! It speaks to how tummy symptoms can preoccupy people with cystic fibrosis. Please find out more how to join our study at cftummytracker.org welcoming anyone with CF aged 12 or older. 🙏

Want to learn more about designing and delivering a QI project in your area of work? Sign up now to attend the QIClearn course! qiclearn.com/introduction-t…

Great to see the RCPCH Trainee Research network initiative of TREEs seminar in this months Milestone magazine Next seminar is 26/11/24 at 13:00 details 👇🏽 rcpch.ac.uk/resources/trai…. RCPCH Trainees RCPCH East Midlands Paediatric Academic Network East Midlands Paediatric Trainees