Managing #PKU now: “Hurray, a good blood phe result! Wait, will that screw up my baseline for any #NHS sapropterin trials? Will I miss out cause my baseline blood levels were too good? But I don’t want to risk higher levels & damage just to get a treatment!” #LivingWithPKU

PKU treatment has come so far, but still has a long way to go. All Australians living with PKU deserve access to all available therapies. Con's story tugs at the heartstrings. youtu.be/D59GpfdnEyM #PKU

Road safety is critically important to the NSW Govt and it was my pleasure to visit Neuroscience Research Australia (NeuRA) and learn about the vital work the Transurban Road Safety Centre is doing.

Australians living with #PKU should have access to all treatments that have been approved as safe and effective by the Therapeutic Goods Administration (TGA). instagram.com/tv/CcmelvXFPVS…

All Australians living with PKU should have access to all treatments that have been approved as safe and effective by the Therapeutic Goods Administration (TGA). instagram.com/tv/CcPpoH7l8F0…

Had the amazing opportunity to share some of my PhD work on the news, ahead of National Road Safety Week 🚙👶

While I lead a successful life, this doesn't take away the burden of my low protein diet. To be healthy I must be perfect. Perfection is not possible. We need access to treatments other than diet. #afairgoforpku #pku instagram.com/tv/CdFrIW5l3Vd…

My 2 worlds collide... #pku #phenylketonuria #roadsafety #injuryprevention

New paper out: Child restraint headrest and belt routing design features and their association with child passenger behavior and restraint misuse Julie Brown A/Prof Sjaan Koppel (she/her) Jake Olivier #injuryprevention #childrestraints tandfonline.com/doi/full/10.10…

Great work @b_albanese and team! More evidence that solutions to problem of restraint misuse might be found in optimised restrain design

Breaking News - The Power of Advocacy a win for equitable treatment for the PKU Community. Kuvan (saproterin) approved for all adults. For more information click here - mdda.org.au/breaking-news-…

Crying happy tears... Kuvan finally approved for adult use in Australia! Thank you MDDA ❤️ #kuvan #kuvanaustralia #abouttime

Little Braxton McWain has a rare condition called phenylketonuria, or PKU. Keeping him fed and healthy is no easy feat. on.today.com/3KCWLKZ

Sepiapterin (PTC923 clinical trial) is definitely working. Exciting news 🙌 NSPKU #pku

Sepiapterin PTC923 - blowing my mind 🤯#pku NSPKU

Australian in New Zealand at a work conference recieves perfect low protein meal from chef that finds NSPKU guidelines online. BRB, crying 😭 *he agreed to the photo🤣

What a start to ARSC2022! Did you join us in Christchurch or online? Let us know what you found most interesting, useful, or shocking during today’s incredible lineup of 60 plenary and concurrent session speakers. #ARSC2022 #RoadSafety

Ending on a high! What a fantastic way to end a great few days in Christchurch at the #ARSC2022. Thank you to my co-authors for all your help and support too! A/Prof Sjaan Koppel (she/her) Jake Olivier Julie Brown Lisa Keay

In advance of National Road Safety Week we remember the 1,200 lives lost on Australia's roads & highways each year🕯️ These numbers are growing but are preventable if we choose to drive so others survive Find out more: tinyurl.com/595498a6 SarahGroup.Org Julie Brown #DriveSoS