Dookielu (@dookieloopyloo) 's Twitter Profile
Dookielu

@dookieloopyloo

parent to only one small angry version of myself now. lost without being a dementia/palliative carer. mostly a nice person but in grief rant mode for a while.

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calendar_today15-11-2009 20:13:53

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Wings Over Scotland (@wingsscotland) 's Twitter Profile Photo

In his last months my dad, who had double dementia and a raft of other debilitating conditions, had a DNR put on his medical records without his knowledge (and without my mum being consulted), and without ever having expressed such a wish in more lucid times. I suspect, however,

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Exactly this and these time frames don’t include the plethora of errors both medical and administrative that are made daily.

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Read this thread. This kind of error is not uncommon and not only is it awful for the patient it’s costing an absolute fortune for the nhs. Ive personally had almost exactly this experience three times in two years although luckily for me I was sent direct to wards

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Those who are dismissive of this so callously and ignorantly I hope you don’t find yourself with cognitive, visual, hearing and physical impairment when you age. You will because most of us do but I hope you don’t. Right now though I hope you step on Lego.

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Had my “urgent”colorectal op cancelled 367 million times in the last 2 years. Once when I was already in a gown. My new date is tomorrow. The one time I actually want it to be cancelled and it’s not gonna be is it.

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Exactly this but before that can happen and be taken seriously we kinda need Drs to stop rolling their eyes at us when they hear we have these conditions together or god forbid we have pots too and then, what is it they call it? Oh yes “the devils trifecta”

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Apparently we are at the point of my sight loss that I can no longer rely on memory and I need to start to learn things by touch. Small problem……

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

I’ve been on both sides of this and neither position is fun. You would have 100s of applicants believing these hospitality or retail jobs are easy and disposable. They are not. You’d also have huge numbers of people applying just to keep their uc and had no intention of working.

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

“Mum? Do drains eat people?” (wtf?!?) “Jayden says drains eat people” I could have explained no they don’t but I’m an awful parent so I explained it isn’t the drains that eat people. It’s the clowns with balloons in the drains that eat people.

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

As someone who is about to put their house on the market I’ve just been reminded how not fun this is about to be. Also as someone who purchased a property from someone who initially wasn’t legally permitted to sell it I’m SCARED LMAO

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Having recently received my son’s genome results this makes me feel sick. Why are we even entertaining Socially palatable eugenics rather than using those resources to help those already here and suffering? KIF1a by the way. Look it up.

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

A five year old who has EDS and a degenerative neurological condition who can’t walk after a minor fall four days ago and they want us to wait another five days before doing any investigation or intervention. A five year old. THAT CANNOT WALK. LMAO

Dookielu (@dookieloopyloo) 's Twitter Profile Photo

Exactly this. I was incredibly lucky that Annie died just days away from me being forced to put her into care for everyone’s safety. I had no idea a slight 83 year old woman could find such strength and viciousness to be violent with. I still have the physical scars today.