👋 Meet Dale Cheeseman – Board Director Dale brings 20+ years of experience in the financial services industry. He is proud to lend his leadership and expertise to help guide our mission to defeat #Duchenne #musculardystrophy. 🔗 Our team: defeatduchenne.ca/our-team/

On June 10, 2025, nearly 80-year-old John Davidson walked 30 km from St. Thomas to London, Ontario, retracing the final leg of the journey he took with his son Jesse in 1995. 🔗 Learn more: defeatduchenne.ca/30years/ 📣 Share this video and help raise awareness for Duchenne.

📣 Registration is OPEN for the 2025 Family Forum: bit.ly/45OoFPd 🗓️ Oct 25–26 | 📍 Toronto & Virtual Hosted with The Hospital for Sick Children (SickKids) + Holland Bloorview Canada’s only national event for families affected by #Duchenne #musculardystrophy. Bring the whole family!

If you or your child are living with #Duchenne or #Becker #musculardystrophy, having up-to-date emergency information on hand is critical. We have updated our FREE lifesaving tools: ✅Information Card ✅Wallet Card ✅PJ Nicholoff Protocol Order yours: defeatduchenne.ca/emergency-care

Registration is now OPEN for the 2025 Family Forum: defeatduchenne.ca/familyforum Attend in person at Vantage Venues in Toronto or virtually from anywhere across Canada - October 25 & 26. Hosted in partnership with Holland Bloorview and The Hospital for Sick Children (The Hospital for Sick Children (SickKids)).

Solid Biosciences has provided an update on the INSPIRE DUCHENNE clinical study, evaluating SGT-003, their investigational gene therapy: bit.ly/45ABfkY #Duchenne #musculardystrophy

What is the Family Forum? Canada’s only national education event for people living with #Duchenne #musculardystrophy. Join us in Toronto or online, Oct 25–26, to connect, share, and learn the latest in the fight to #DefeatDuchenne: defeatduchenne.ca/familyforum

👋 Meet Dr. Hanns Lochmüller – Director on the Board of Defeat Duchenne Canada. He is deeply committed to partnering with patients and families — bringing decades of collaboration with patient organizations in both Canada and Europe. 🔗 Meet our team: defeatduchenne.ca/our-team/

Don't miss the 2025 Family Forum hosted in partnership with Holland Bloorview and The Hospital for Sick Children (The Hospital for Sick Children (SickKids)) - Sat, Oct 25 & Sun, Oct 26: defeatduchenne.ca/familyforum Registration is offered at no cost for all families living with #Duchenne #musculardystrophy.

👋 Meet Doyle Steinke – Director on the Board Doyle and his wife, Jody, have raised two sons and two daughters on their small, tranquil farm in central Alberta. #Duchenne #musculardystrophy has been part of their son’s journey. 🔗 Meet more of our team: defeatduchenne.ca/our-team/

For the first time ever 🎉 The Defeat Duchenne Canada Family Forum will feature youth-only fun - from a Creative Arts Workshop to an Adaptive Sports Sampler, plus hangout time with peers. 🧡 Toronto | Oct 25–26, 2025 🔗 defeatduchenne.ca/familyforum

Let’s light #Canada red for #WDAD2025!🎈 On Sept 7, landmarks will shine for World Duchenne Awareness Day. 💡 Contact landmarks and monuments in your community - get started with our letter template: bit.ly/3UD3zxR World Duchenne Organization

Living with #Duchenne #musculardystrophy comes with enough costs - access to education and community shouldn’t be one of them💙 Thanks to our generous donors and partners, registration for the 2025 Family Forum (Oct 25–26) is FREE for all families: defeatduchenne.ca/familyforum

👋 Meet Bonnie Wooten – Board Director Bonnie’s deep understanding of the health care system and her strong leadership and relationship-building skills make her a powerful advocate for families living with #Duchenne #musculardystrophy. 🔗 Meet our team: defeatduchenne.ca/our-team/

#Ontario landmarks are lighting red for #WDAD2025 on/around Sept 7 – incl. CN Tower / Tour CN, RBC Place London & more! Want your city on the list? Use our request letter to help shine a light on #Duchenne #musculardystrophy: bit.ly/41TcOxR #WDAD2025 World Duchenne Organization

Thank you to our educational partners for making the 2025 Family Forum (Oct 25–26) possible. Your support brings the #Canadian #Duchenne community together through connection, knowledge, and hope. 💙 Special thank you to our Gold Sponsor: Kye Pharmaceuticals

👋 Meet Niki Kemeny – Secretary for the Board of Directors at Defeat Duchenne Canada. We’re grateful for the creativity, precision, and dedication she brings to our board and our vision of a world without #Duchenne #musculardystrophy. 🔗 Meet our team: defeatduchenne.ca/our-team/

Coming to the Family Forum Oct 25 & 26? Stay at the Chelsea Hotel for $239/night! 💦 Waterslides & teen lounge ☀️ Adult-only rooftop pool ♿ Accessible rooms (limited) 📅 Book by Sept 10: defeatduchenne.ca/familyforum

ITF Therapeutics announces publication of positive long-term data reinforcing givinostat efficacy and safety as a treatment for #Duchenne #musculardystrophy: bit.ly/41obHpY

#BritishColumbia landmarks are lighting red for #WDAD2025 on Sept 7 – incl. Science World, Vancouver Convention Centre & more! Want your city on the list? Use our request letter to help shine a light on #Duchenne #musculardystrophy: bit.ly/3UD3zxR World Duchenne Organization