#Neurology residents: learn about #visualsnow & teach your attendings about people w/ this fascinating but often intractable disorder that’s been seen for years but only recently well characterized. Give our patients hope. #MedEd Peter Goadsby Christoph Schankin VisualSnowAwareness

In honour of #RareDiseaseDay here's a picture of what mine looks like. I have Visual Snow Syndrome, a neuro disease

@VisualSnowInfo @JaniceTindle Janet L Mancini Hi! There is no published medical research that we are aware of showing our tinted lenses can improve symptoms of VS (1 of 2)

@VisualSnowInfo @JaniceTindle Janet L Mancini However we have had a few customers say TheraSpecs have helped them, esp where light is a trigger/worsens VS or migraine attacks (2 of 2)

Imagine if everywhere you looked you saw static, as if the world were an untuned analogue TV. This is "visual snow" thecut.io/2zgrvv7

Imagine if everywhere you looked you saw static, as if the world were an untuned analogue TV. This is "visual snow" thecut.io/2zLsrbi

Most will see pitch black.... I see not only black but also static / what looks like microscopic pixels #VisualSnow

Tonight... instead of having the TV on to drown it out... I'm laying in bed staring at the ceiling and watching the static show going on. To connect and come to terms with my newly discovered uniqueness #VS

I'm honored to be speaking at the first-ever #VisualSnow Conference with Dr. Peter Goadsby, Dr. Susan Pelak, and Sierra Domb in San Francisco on May 5. Everyone is welcome to attend. Please help me spread the word: visualsnowconference.com

@MarindaRoseLRL I love how visual snow is so rare, there are only 3 tweets on Twitter right now that are even talking about this. Thanks for posting! #rarediseasesday

Take a moment to learn about Visual Snow. Maybe not so rare but widely unacknowledged in the medical field? #RareDiseaseDay #VisualSnow #Static x.com/VisualSnowConf…

Just 5 years ago, I got in contact with reporter @BenitaZahn through twitter. This platform ultimately paved a way to raise awareness through the resulting first ever televised news report about #VisualSnow #RareDiseaseDay youtu.be/ozg_r4Xc2ng

Delighted to see a #VisualSnowConference taking place in SF. I’ve been seeing kids and adults with #visualsnow since 2013 and hoping to publish our data soon. More data = more understanding. More understanding = legitimacy & interest. Peter Goadsby VisualSnowAwareness Visual Snow