Today, the Inquiry heard how the Government ignored the risk of Long Covid to children. There was a deliberate policy of allowing children to acquire Covid and Long Covid. Part of an opening statement by Sangeetha Iengar on behalf of Long Covid Kids / [email protected].

Does the news reflect what we die from? More than 80% of people — including surveyed Americans, Brits, Germans, and Italians — say they follow the news because they “want to know what is going on in the world around them.” It’s not just that people expect the news to inform

1) 🇬🇧 For ME/CFS patients in the UK only: Action for ME has opened its 2025 Big Survey! Last time, it had more than 4000 respondents, but hopefully this one will be even bigger. The deadline for submitting your response is 27 January 2026.

A4ME Big Survey is live - actionforme.org.uk/research-campa… #MECFS #LongCovid

Let's break down the failures of Gavin Williamson: 🚸 LACK OF PLANNING John Coles, former senior DfE official descibed the lack of preparation for school closures "an extraordinary dereliction of duty" /1 UK Covid-19 Inquiry Sir Gavin Williamson CBE MP

Clip from yesterday’s Westminster debate on PoTS, Tessa Munt MP Tessa Munt MP 🔸 raised the case of a constituent’s daughter with #MECFS who believes she also has PoTS. After finally seeing a consultant in Bristol, she was told PoTS was “a TikTok fashion” and refused any testing.

There is no need for a moral panic about the UK's welfare system. Far from perfect but recent discourse is nuts Spending is controlled

Tientallen long covid-patiënten komen terecht in een strijd met hun verzekeraar. De ziekte zit volgens sommige verzekeraars tussen de oren en de verschijnselen van long covid worden als niet medisch objectiveerbaar gezien. Nu op YouTube: youtu.be/XWtluAQxDs0

on.ft.com/4hfE9kr

Karen update: Mental capacity assessment & response from East Sussex NHS Trust’s solicitors. We posted an update on our petition on 15 Oct. To read it scroll down our petition page to UPDATES chng.it/CGMQTDVvRb Please share. Photo:Aug 2025 - K with her new PICC line. K H & M

Long Covid Is Real — And It’s Changing an Entire Generation Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize.e Feature: rollingstone.com/culture/cultur…

“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.” Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @Invest_in_me conference. Thanks to ME/CFS Science for finding the clip.

The COVID pandemic has undoubtedly been one of the largest, if not the largest, drivers of new ME/CFS cases in recorded history 🦠 A major NIH-backed study, based on the RECOVER-Adult cohort and led by the Bateman Horne Center (Bateman Horne Center), found that adults who had been

A very elegant Christmas card highlighted this week - our 'On the First Day of Christmas' design. Card comes in pack of 10 with the design featuring embossed gold coloured foiling. Each card measures 150 × 150 mm. View our full range and order - shop.meresearch.org.uk

I once could go run swim and hike Then my mitochondria went on strike Now I crash cuz of them Headaches and PEM LC, let me do what I like! #LongCovid #MECFS

Today's guest blog is from Rosie, who writes about her sister Alice's experiences. Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.

You can read Rosie's post here 👇 thereforme.uk/p/sensory-hell…

Children with Long Covid Heard At The UK COVID Inquiry | Long Covid Kids | 23rd October 2025 Available on #YouTube & #TicTock youtu.be/3wT4lzreDbw