🎉 Our new Simoa® HD-X is now operational! This fully automated bead-based immunoassay platform offers unmatched #biomarker measurement capabilities. We're set to continue our biomarker development and validation with even greater precision. Farewell HD-1 Quanterix 🚀

Last Friday Patients United2EndMND asked UK #Mirocals Consortium members if MND Association Neuroscience Institute King's MND Centre QM Neuroscience @Sussexneuro would terminate contract with #Iltoo united2endmnd.org/2024/05/10/pat… Still no reply to Darby Rimmer MND Foundation Geoff Burrow Rob Burrow CBE Ed Slater & Marcus Stewart.

Still time to show your support for high profile patients' letter to MND Association King's MND Centre Neuroscience Institute QM Neuroscience SussexNeuro We need transparency on commercial arrangements on #Mirocals so regulators & health professionals concentrate on fastest pathways to @MNDpatient access

A reminder that our deadline for research funding applications is Friday 10th May

#attackmnd
#darbyrimmerMNDfoundation

Visit our website for more information or check our bio links

Please add your signature to letter to Mirocals Consortium members from our high profile patient colleagues here united2endmnd.org/2024/04/30/wou… Clear answers should help speed access to life prolonging drug for MotorNeuroneDisease if +ve provisional results are confirmed. Please share.

Pls add your support to Darby Rimmer MND Foundation Rob Burrow CBE Geoff Burrow Ed Slater letter to #Mirocals Consortium members. Clear answers to questions SHOULD help speed access to life prolonging #MND treatment if +ve top line results are confirmed united2endmnd.org/2024/04/30/wou… MotorNeuroneDisease

Well done Doddie Foundation My Name'5 Doddie Foundation for raising this important point. On the one hand we have a government saying we want to be world leaders in precision medicine, but on the other hand we don't have a system which can evaluate them properly Biogen NICE #MND #ALS

Nearly 600 people have signed - God Bless and Thank you 🙏 Let’s please get this to 1000 - it only takes 2 minutes to sign, but it could be a life line for MND sufferers and families 🙏🤞

We're raising awareness of a critical issue in NICE's appraisal process

Today MND's in the firing line, tomorrow it'll be another disease. Join us & urge NICE to address this & work w/Biogen to bring tofersen to people w/ SOD1-MND in the UK

Open Letter: myname5doddie.co.uk/whats-on/artic…

We're tagging other charities that support research to ensure that they're aware of this issue, which could affect them too:
Cancer Research UK Policy MND Association Dementia UK Parkinson's UK British Heart Foundation Diabetes UK Alzheimer's Society Prostate Cancer UK Teenage Cancer Trust The Brain Tumour Charity 40TUDE LifeArc

Please click the picture below and add your name to the open letter. Please show your support for those of us living with #MND . Without the trial data I can not be prescribed Proleukin, a drug that will extend my life. Release the data and give us Proleukin. I don't want to die.

Please read letter below & sign to offer support. This is regarding results of #mirocals study. Until they are released we’ll continue with just the 1 med Riluzole- limited benefit. Would you like a bash at being with loved ones for longer? I know I would. Retweets help too 😊

Patients United2EndMND Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Geoff Burrow Tanya Curry Dr Usman Khan Please do read this. Perhaps you might even respond to the letter that you received a week ago. Ignoring patients at every turn seems like a disastrous comms strategy to me.

It's over 510 now! Add your voice if you have not yet.
#united2endmnd
#als #mnd

Show your support by signing our open letter to the Mirocals consortium. You can sign the letter using the link below

united2endmnd.org/support-miroca…

We have had over 400 signings and messages so far supporting Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Marcus Stewart, partners and Geoff Burrow - Open letter to the Mirocals consortium. See all the messages here and perhaps add your voice?

united2endmnd.org/2024/04/30/wou…

#united2endmnd

Please show your support for letter sent to MND Association King's MND Centre Neuroscience Institute SussexNeuro QM Neuroscience last Monday by Darby Rimmer MND Foundation Geoff Burrow Rob Burrow CBE Ed Slater on TRANSPARENCY on #Mirocals trial here united2endmnd.org/support-miroca… MotorNeuroneDisease Challenging MND Dodd1e5 Gr4nd S7am Team #MND

Last week Patients United2EndMND supporters Darby Rimmer MND Foundation Steph Houghton MBE Rob Burrow CBE Geoff Burrow Ed Slater & Jo, Marcus & Louise Stewart asked vital questions of 4 UK #Mirocals Consortium members. Pls go to united2endmnd.org/support-miroca… to read & sign to support our plea for transparency