Two new events of interest have been added to the Stiff Person Syndrome Website lizblows.wixsite.com/spsuk/news?fbc… sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic liz blows DrPasEle RARE Revolution Magazine® Findacure has become Beacon, follow us @RareBeacon

Stiff Person Syndrome videos lizblows.wixsite.com/spsuk/video?fb… #sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain liz blows DrPasEle RARE Revolution Magazine® Findacure has become Beacon, follow us @RareBeacon Rare Disease Ghana Initiative Cambridge Rare Disease Network (CamRARE)

"Do the one thing you think you cannot do. Fail at it. Try again. Do better the second time." - Oprah Winfrey #TuesdayThoughts

#article abt new #brain area identified, done by t #research center where Prof. #GeorgePaxinos works @ataxiaandme @ataxiascot 22Q11 Ireland #22qAwarenessDays @Stadsbader Findacure has become Beacon, follow us @RareBeacon MINDDS Action Stiff-Person-Syndrome Marie James 🏴󠁧󠁢󠁷󠁬󠁳󠁿 TheAarskogFoundation Amanda Rackerby #rarespecialpowers

Where’s #RareDisease in the #NHS10yearplan? You’ll need to dig deep..point 3.115 states whole genome sequencing will be widely available, vital to better & earlier diagnosis. But a huge opportunity to support the 3.5k with rare in the UK has been missed longtermplan.nhs.uk

Did you know you can now donate to the Rare Disease UK campaign through our website? You can make a one off or monthly donations. Find out more here: raredisease.org.uk/donate/

10 facts about Stiff Person syndrome raisiebay.com/2018/10/10-fac… #sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain liz blows DrPasEle RARE Revolution Magazine® Findacure has become Beacon, follow us @RareBeacon Rare Disease Ghana Initiative Cambridge Rare Disease Network (CamRARE)

Rare Disease UK are the official organisers of Rare Disease Day in the UK. Registration is now open for this year’s receptions. Why not read about last year’s events here: raredisease.org.uk/our-work/rare-… #raredisease

Review of a book written by someone with stiff Person Syndrome raisiebay.com/2017/08/one-in… #sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain liz blows DrPasEle RARE Revolution Magazine® Findacure has become Beacon, follow us @RareBeacon

There is so much information on Stiff Person Syndrome in one place here lizblows.wixsite.com/spsuk/informat… #sps #stiffpersonsyndrome #RareDisease #spsoneinamillion #syndrome #research #medicine #symptoms #treatments #chronic #pain liz blows DrPasEle RARE Revolution Magazine® Findacure has become Beacon, follow us @RareBeacon

Friends - PLEASE SHARE for my friend Jill & her daughter Kylie: . The Ellen Show spending her childhood coping with pain most can't imagine. It's a serious illness - Stiff Person Syndrome, odds of diagnosis are about one in a million... youtu.be/1CrezyG2qN4 via YouTube

“Unlike death, when you have a #chronicillness, you can heal. You may not, but you can, and I believe it is perfectly alright to hold onto that #hope – In fact, I believe it is paramount to the #healing process”: buff.ly/2Sd3e2c @CallieDixon #normal #acceptance

Revolutionaries taking over the airways this week. facebook.com/story.php?stor…

We are so thrilled to have our Beyond the Diagnosis exhibit at Albert Einstein College of Medicine!!! #RareDiseaseDay #RareDiseases

Sorry, it's so bad today, fingers crossed that it's better tomorrow x

@mindd #scientists support #RareDisaseDay 🧡 #WeAreInThisTogether #RareSpecialPowers #RareDisease 22Q11 Ireland #22qAwarenessDays 22qSyndrome 22q11 Europe Findacure has become Beacon, follow us @RareBeacon @ataxiaandme TheAarskogFoundation Stiff-Person-Syndrome @CDG_Portugal CDG UK Marie James 🏴󠁧󠁢󠁷󠁬󠁳󠁿 KIF1A.ORG Francesco Papaleo Yolanda de Diego

“#MCTD and #yoga is a perfect combination because you can use all the aspects of yoga to help you manage the disease”: buff.ly/2Nvafea @BeeContentYoga #spoonie #chronicillness #painmanagement

This wearable robotic garment suit, the MyoSuit, is an innovative functional training device, for patients with mobility impairments, designed to allow a more intensive gait-, strength- and endurance training. Visit them at stand N7072. MyoSwiss

The team Stanley is on countdown to @Naidex where they will be launching their new mobility ramps on stand N5101. Read more here naidex.co.uk/news/16318/ #Naidex45 #WeAreAble