Another life lost to this #SMA. So sorry for your loss, baby Aarav's family. Not every family has enough time to fundraise for their baby's life. Govt. needs to step in. #Zolgensma #Risdiplam #Spinraza available before more babies die avoidable deaths. #SMABabiesDeserveBetter

Let's make our voices louder. Please save our SMA babies. #SMABabiesDeserveBetter Please RT to join the fight against SMA. PMO India Narendra Modi Fsma.India Cure SMA Foundation of India 🇮🇳

#SMABabiesDeserveBetter

Mid Day vinod kumar menon Devendra Fadnavis PMO India Arvind Kejriwal . Plz help these 5 childrens also like you help Teera Fights SMA to save thier life, they are bateling with #SMA Help them to get #zolgensa gene therapy #sma treatment

Ankur kumar Mid Day SMA kids are a bit special from regular new born's and need extra care, together we can bring the change to save these special infants, even impossible say I M POSSIBLE. Baby Arav will always be in our prayers Ankurji, god bless.

Narendra Modi Ji Devendra Fadnavis Ji Thank you for waiving 6 cr for Teera Fights SMA's 16cr life saving injection. We highly appreciate it. But sir there are 100's of Teera across India waiting for life saving medicine, Wish these little souls could also get your help Cure SMA Foundation of India 🇮🇳

Please help baby Janish the way you came to Teera's rescue. Need help soon #SMABabiesDeserveBetter

#SMABabiesDeserveBetter

One lakh strangers pool in Rs 17 crore for jab to save five-month-old toi.in/-9o93Z/a24gk via TOI Mumbai

'The finish line is near!': In one of the largest medical fundraisers in India, 1 lakh people raised 16 crores for Teera, a 6-month-old with Spinal Muscular Atrophy. Devina Buckshee, MPH talks to Mihir Kamat, her overjoyed father. | Teera Fights SMA fit.thequint.com/health-news/te…

A new aspiration with another letter & the Aim to Defeat #SpinalMuscularAtrophy disease. Hope this time we can reach out to you Sir Narendra Modi,sonu sood with the help of Amar Ujala Team.& Each #SMAwarriors can get medicine at affordable price.#ourlivesmatter Cure SMA Foundation of India 🇮🇳

This five-month-old baby is fighting a genetic disorder that has no cure in India. But more than one lakh people and the Indian government have come together to help her fetch the life-saving drug from the US.

We are glad to be in the capable and experienced hands of Dr. Neelu Desai P. D. Hinduja Hospital, who has provided her valuable time and guidance, and has wholeheartedly supported our SMA treatment journey so far. Truly grateful for all the help and guidance throughout. #teerafightssma

खूप आनंदाची बातमी आज सकाळी 10 वाजता तीरा कामतला अत्यंत गरजेचं zolgensma injection मिळाले. ती आता under observation आहे पण प्रकृती छान आहे असं तिच्या वडीलांनी कळवलं आहे. या प्रवासात आपण सगळे जोडले गेलो होतो. खूप खूप धन्यवाद. आज मी सगळ्यात जास्त आनंदी आहे 💜❤️💜 Teera Fights SMA

P. D. Hinduja Hospital administered Zolgensma Gene Replacement Therapy indicated for Spinal Muscular Atrophy to 6-month-old Teera Kamat earlier today. We are the only hospital in Mumbai authorized for this treatment. Watch the video here youtu.be/eLZkgVn-oNI

28th Feb #RareDiseaseDay #SMAisrare Rare is different Rare is unique Rare is strong We are rare, we are fighting for rare! Rare Disease Day