🌍 World Duchenne Awareness Day 2023 Theme Announcement 🌍 𝗗𝘂𝗰𝗵𝗲𝗻𝗻𝗲: 𝗕𝗿𝗲𝗮𝗸𝗶𝗻𝗴 𝗕𝗮𝗿𝗿𝗶𝗲𝗿𝘀 On September 7, we promote social inclusion for people with dystrophinopathies. Learn about the #WDAD2023 activities here: worldduchenneday.org/2023-duchenne-…

The Intl Summer School #RareDisease #Registries & #FAIRification of #data is a great opportunity to know more about these important topics! 🏃‍♀️Don't miss this opportunity! You have until 📅 May 22. More info and the registration form 👇 ejprarediseases.org/event/internat…

📣Today we share Valeria G. experience at the @EJPRareDiseases Paediatric #expert #patients #Training #workshop. 📅You have until 31 May to register! 👀 More info: ejprarediseases.org/event/paediatr… #RareDisease #Empowerment

👩‍🔬💊Today is #InternationalClinicalTrialsDay! Do you know our #ClinicalTrials Center #game? It was developed to show the #paediatric population how clinical trials work in a fun and interactive way. 👀 More info: teddynetwork.net/2021/06/29/467…

🤔 Why should you join the Paediatric Expert Patients Training Workshop? To day we share Aurora B. experience! 👇 📅 You have until 31 May 2023 to register! 👀 More info: ejprarediseases.org/event/paediatr… #rarediseasepatients #raredisease #training #empowerment

🤔 Have you registered for the Paediatric #Expert Patients Training Workshop? You still can! 📅You have until 31 May! Today we share Daniele S. experience! See how this #experience influenced Daniele's life. 👀ejprarediseases.org/event/paediatr…

Check 👀 the latest EPTRI podcast about the importance of specific medical devices for the #paediatric population! 👇

Our Young Persons Advisory Groups KIDS Albania and KIDS Bari are having a great time at iCAN Research 2023 Summit! #rarediseases #research

📢Fondazione Gianni Benzi Onlus and Pasca Uniba organise XVI Foresight Training Course “Repurposing to cover unmet needs: the current scenario in Europe and the proposed changes to the Pharmaceutical Legislation” 📅📍18 December 2023 in Bari and online Registration➡️ tinyurl.com/mr42p7jw

📣 We are happy to announce that our #representative Annalisa Lundi has been appointed to the ENCePP Steering Group. Annalisa will continue to #advocate and ensure that the needs of the #paediatric population are acknowledged. 👀 More info: teddynetwork.net/2023/12/07/ted… #Research

📣Don't miss our General Assembly on December 21st. In this hybrid event you can learn all about our activities and #acknowledge all the giving voice to the #paediatric population. 💻 meet.goto.com/801052565

Our December #newsletter is out! 🎉 👀You can learn about all our #activities and #research projects here: mailchi.mp/teddynetwork.n… Don't forget to subscribe 📲 to know all about our activities!

📢 Join our Paediatric Patient Expert Group (PEG)! Are you aged from 1️⃣2️⃣ to 1️⃣8️⃣ and living with arthritis or multiple sclerosis? You have until July 10th to apply! 🏃‍♂️ invents-he.eu/recruitment/ Why? 🤔 To make #research more child-centric! #research #patientcentric

The #OrphaDev4Kids is a #EU4Health funded Project and aims to support the development of Orphan #medicaldevices to be used in the paediatric population. Want to know more about this Project and the other partners? Stay tuned to our social media channels! #HealthUnion #technology

KIDS Albania organized an #educational visit to the newly inaugurated Pediatric Hospital of the University Hospital Center “Mother Teresa” in Tirana. They explored the Oncology and Thalassemia units, as well as the Blood Bank. 🩸 More info here: teddynetwork.net/2025/07/04/kid…

🚨 iCAN Ask the Experts – KIDS RAiN 🚨 Join ICAN on August 16th, 2025 for an exclusive webinar with iCAN Youth Members! 📅 Date: August 16th, 2025 ⏰ Time: 8 AM PST, 11 AM PST, 5 PM EST 🌐 Platform: Zoom 💸 Free! icanresearch.org/event-details/… #Empowerment #PatientEducation

🧬Biotech Week 2025 is just around the corner! TEDDY Network is presenting a session titled "The Active Role of TEDDY KIDS in European Paediatric Research"! 👉 Stay tuned! We’ll soon share all the details of TEDDY activities during #biotechweek. #research #TEDDYKIDS #Biotech

A huge thank you to all who participated in iCAN Ask the Experts (ATE) event on August 16th! 👀 teddynetwork.net/2025/09/16/ica… 📅September 20 there will be a new ATE: "Shining a Light on Migraine Relief: The Science Behind Avulux Glasses" 🔗 Register now: icanresearch.org/event-details/…

We were happy to participate at the EFGCP "Better Medicines for Children" Conference! TEDDY experts participated in several sessions and breakout sessions, promoting discussion and expertise exchange. More info 👇 teddynetwork.net/2025/10/20/eur…