SW Neuromuscular ODN (@swnodn) 's Twitter Profile
SW Neuromuscular ODN

@swnodn

The SWNODN brings together patients and professionals in the South West of England to improve healthcare outcomes in neuromuscular conditions.

ID: 755732478627897344

calendar_today20-07-2016 11:53:58

1,1K Tweet

217 Followers

234 Following

Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

Join us! Pathfinders are recruiting academic writers with various levels of experience. Writing will take place from September through to January. If you have a Neuromuscular Condition and are interested in helping, get in touch with [email protected]!

Join us! Pathfinders are recruiting academic writers with various levels of experience.

Writing will take place from September through to January. If you have a Neuromuscular Condition and are interested in helping, get in touch with suzanne@pathfindersalliance.org.uk!
Remap (@remapuk) 's Twitter Profile Photo

Sylvia needed a tray fitted to her wheelchair which was both secure enough for her to carry items, but also easy for her to remove and place back on as she lives alone. She can now move around her property with the table in place, remove it and place it back on independently.

Sylvia needed a tray fitted to her wheelchair which was both secure enough for her to carry items, but also easy for her to remove and place back on as she lives alone.

She can now move around her property with the table in place, remove it and place it back on independently.
Spinal Muscular Atrophy UK (@sma_uk_) 's Twitter Profile Photo

In part 1 of the latest Living With SMA #podcast episode, Ross Lannon chats to Mia and Steven who share their personal experiences about needing to be assertive, higher education and the university experience. Listen here: bit.ly/3ecddpG 🎧

In part 1 of the latest Living With SMA #podcast episode, <a href="/rosslannon/">Ross Lannon</a> chats to Mia and Steven who share their personal experiences about needing to be assertive, higher education and the university experience. Listen here: bit.ly/3ecddpG 🎧
CMT United Kingdom (@cmtunitedkdom) 's Twitter Profile Photo

There are over 100 types of #CMT, making it a complex condition. Everyone experiences CMT differently. As part of CMT Awareness Month, we wanted to highlight this, so we asked our members which CMT symptoms they are MOST aware of. #CMTawarenessmonth #charcotmarietooth

There are over 100 types of #CMT, making it a complex condition.
Everyone experiences CMT differently. 
As part of CMT Awareness Month, we wanted to highlight this, so we asked our members which CMT symptoms they are MOST aware of.  
#CMTawarenessmonth #charcotmarietooth
CMT United Kingdom (@cmtunitedkdom) 's Twitter Profile Photo

#cmtawarenessmonth CMTUK brings together young people through CMT Kids who all share a very significant part of their lives – having CMT. But we don’t let this stop us! If you would like to find out more and how to get involved, please phone CMTUK’s office: 0300 323 6316 #cmt

#cmtawarenessmonth
CMTUK brings together young people through CMT Kids who all share a very significant part of their lives – having CMT. But we don’t let this stop us! 

If you would like to find out more and how to get involved, please phone CMTUK’s office: 0300 323 6316

#cmt
Action Duchenne (@actionduchenne) 's Twitter Profile Photo

There are so many ways to make gaming accessible so it's possible to keep doing what you love. Yes I Can at 6pm today with Treloar College. We're transforming transition for the future, are you with us? bit.ly/YesICan23 #yesican #transition #support #inclusion #equity

There are so many ways to make gaming accessible so it's possible to keep doing what you love.
Yes I Can at 6pm today with Treloar College.
We're transforming transition for the future, are you with us? 
bit.ly/YesICan23

#yesican #transition #support #inclusion #equity
SW Neuromuscular ODN (@swnodn) 's Twitter Profile Photo

We are looking forward to welcoming up to 90 healthcare professionals at our SWIM conference (South West Interest in Muscles) tomorrow, 29th June Taunton Rugby Club . The topic is "Peripheral Neuropathies with an emphasis on CMT" #swimjune23 SW Neuromuscular ODN North Bristol NHS Trust

We are looking forward to welcoming up to 90 healthcare professionals at our SWIM conference (South West Interest in Muscles) tomorrow, 29th June <a href="/tauntonrfc/">Taunton Rugby Club</a> .
The topic is "Peripheral Neuropathies with an emphasis on CMT" #swimjune23
<a href="/SWNODN/">SW Neuromuscular ODN</a> <a href="/NorthBristolNHS/">North Bristol NHS Trust</a>
British Myology Society (@britishmyology) 's Twitter Profile Photo

Upcoming BMS events (register now): 👉11th Sept: BMS Muscle Teaching Day (Adult Muscle) bit.ly/3XorVfp 👉11th and 12th Sept: BMS Annual Meeting bit.ly/44emVft 👉14th Nov: BMS Muscle MRI Workshop bit.ly/3NJIy1X 👉Coming soon: BMS AHP Teaching Day

Duchenne UK (@duchenneuk) 's Twitter Profile Photo

Like to know more about Duchenne muscular dystrophy (DMD) and meet other people in the community? Come to our New Horizons conference in March. It’s for family/caregivers, and those working to help people with DMD. You can pre-register here 👇 duchenneuk.org/our-new-horizo…

SW Neuromuscular ODN (@swnodn) 's Twitter Profile Photo

**Job alert** We currently have a job vacancy for a Neuromuscular Advisor to support children & adults living with a Neuromuscular condition. The job is full-time, based at North Bristol NHS Trust NMSK at North Bristol Trust Click here for more information: nbt.nhs.uk/careers/curren… Come & join our team!

**Job alert** We currently have a job vacancy for a Neuromuscular Advisor to support children &amp; adults living with a Neuromuscular condition.  The job is full-time, based at <a href="/NorthBristolNHS/">North Bristol NHS Trust</a> <a href="/NmskNbt/">NMSK at North Bristol Trust</a> Click here for more information: nbt.nhs.uk/careers/curren… Come &amp; join our team!
Muscular Dystrophy UK (@mduk_news) 's Twitter Profile Photo

This mitochondrial disease awareness week’s theme is fatigue. Our handbook is here to help you understand and manage your symptoms, offer information, identify potential triggers, and provide management techniques. #WorldMitoWeek WMDW shorturl.at/HLYZ1

This mitochondrial disease awareness week’s theme is fatigue. Our handbook is here to help you understand and manage your symptoms, offer information, identify potential triggers, and provide management techniques. #WorldMitoWeek <a href="/MitoAware/">WMDW</a> shorturl.at/HLYZ1
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift EMPOWER Music Sanjeev / Supermann 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇳 produces rock and hip-hop beats under the name of Supermann on da Beat. Alex is a singer and guitarist in the world’s first Duchenne-fronted alternative rock band, Alex James. Both live with DMD Sign Up here: UpLiftEMPOWER.eventbrite.co.uk

UpLift EMPOWER Music

<a href="/asksupermann/">Sanjeev / Supermann 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇮🇳</a> produces rock and hip-hop beats under the name of Supermann on da Beat.

Alex is a singer and guitarist in the world’s first Duchenne-fronted alternative rock band, Alex James.

Both live with DMD

Sign Up here: UpLiftEMPOWER.eventbrite.co.uk
WheelPower (@wheelpower) 's Twitter Profile Photo

On #NationalFitnessDay why not join WheelPower for an hour of Yoga this morning from 11am, LIVE and for FREE on Zoom 🙏 Join the Movement by booking yourself a ticket before we get underway later this morning wheelpower.org.uk/activities/onl… #FitnessDay #FitnessForAll #DisabilityFitness

On #NationalFitnessDay why not  join WheelPower for an hour of Yoga this morning from 11am, LIVE and for FREE on Zoom 🙏 Join the Movement by booking yourself a ticket before we get underway later this morning wheelpower.org.uk/activities/onl… #FitnessDay #FitnessForAll #DisabilityFitness
Muscular Dystrophy UK (@mduk_news) 's Twitter Profile Photo

Can swallowing exercises work for people living with oculopharyngeal muscular dystrophy (OPMD)? Speech & language therapist Jodi Allen talks about weighing up the pros and cons. #OPMD #OculopharyngealMuscularDystrophy #OPMDAwareness #OPMDAwarenessDaySept23

LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Only one week until the 9th annual LGMD Awareness Day will be celebrated worldwide on September 30, 2023. Are you ready? 💚 Learn more at LGMD-Info.org #LgmdDay2023 #TogetherWeAreStronger #LimeGreen4LGMD #LGMDawareness

Only one week until the 9th annual LGMD Awareness Day will be celebrated worldwide on September 30, 2023.  

Are you ready? 💚 Learn more at LGMD-Info.org

#LgmdDay2023
#TogetherWeAreStronger
#LimeGreen4LGMD
#LGMDawareness
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

UpLift INFORM PA Recruitment MEET THE SPEAKER - Ross 📆 Mon 16th Oct ⌚ 18:00 - 19:00 📍 Online Webinar 💷 FREE 📝 …inform-parecruitment.eventbrite.co.uk

UpLift INFORM PA Recruitment

MEET THE SPEAKER -  Ross

📆  Mon 16th Oct
⌚ 18:00 - 19:00
📍 Online Webinar
💷 FREE
📝 …inform-parecruitment.eventbrite.co.uk
SW Neuromuscular ODN (@swnodn) 's Twitter Profile Photo

If you are an experienced Nurse, Social Worker, Occupational Therapist or Physiotherapist with the passion & drive to make a positive difference in patients' lives, join our team of Neuromuscular Advisors. Please contact us for more info 😀 Job Advert: jobs.nhs.uk/candidate/joba…

If you are an experienced Nurse, Social Worker, Occupational Therapist or Physiotherapist with the passion &amp; drive to make a positive difference in patients' lives, join our team of Neuromuscular Advisors. Please contact us for more info 😀
Job Advert: jobs.nhs.uk/candidate/joba…
Pathfinders Neuromuscular Alliance (@pathfindersnma) 's Twitter Profile Photo

PA EMPLOYER TRAINING - COMPLETE COURSE 2 Join us on Friday 26th January at 5pm for an introduction session to learn about being a PA Employer. Details to sign up are below, hope to see you there! 📆 Friday 26th Jan 2024 ⌚ 5pm - 6pm 📝 Sign up - ow.ly/BSn050Qt5kv

SW Neuromuscular ODN (@swnodn) 's Twitter Profile Photo

We are looking forward to welcoming healthcare professionals from across the South West at our SWIM conference tomorrow, 24th April 2024 Taunton Rugby Club Covering an important topic, "Breaking the taboo on Sex, Relationships & Disability" #swimapr24 SW Neuromuscular ODN North Bristol NHS Trust NMSK at North Bristol Trust

We are looking forward to welcoming healthcare professionals from across the South West at our SWIM conference tomorrow, 24th April 2024 <a href="/tauntonrfc/">Taunton Rugby Club</a> 
Covering an important topic, "Breaking the taboo on Sex, Relationships &amp; Disability" #swimapr24 <a href="/SWNODN/">SW Neuromuscular ODN</a> <a href="/NorthBristolNHS/">North Bristol NHS Trust</a> <a href="/NmskNbt/">NMSK at North Bristol Trust</a>