Sturge-Weber Foundation Announces 2024 International Family Conference in Philadelphia, PA with a special performance by Jordan St. Cyr READ THE PRESS RELEASE: businesswire.com/news/home/2024… #ChristianMusic #NonProfit #SturgeWeberSyndrome #Faith #PressRelease

🛎️ Don't Miss Out on the Conference Online Action! 🛎️ 😎 Bid Now: bit.ly/SWF_Auction #SturgeWeberAwareness #SturgeWeberSyndrome #SturgeWeberConference #OnlineAuction

AWARD-WINNING ARTIST EXPERIENCES GOD THROUGH DAUGHTER’S HEALTH BATTLES Read: movieguide.org/news-articles/… #Faith #ChristianArtist #sturgeWeberSyndrome #ChristianMusic #JordanStCyr

READ: Undiagnosed Epileptic Case Since Childhood of Sturge-Weber Syndrome: First Case Report from Somalia Dove Medical Press dovepress.com/undiagnosed-ep… #SturgeWeberSyndrome #MedicalResearch

Researchers aim to prevent seizures in #SturgeWeberSyndrome medicalxpress.com/news/2024-06-a… #MedicalResearch

Important words and tips on allyship from Chelsey Peat, #FaceEquality advocate. Read more about Chelsey's journey with Sturge-Weber syndrome and her new book in the latest blog on our website: faceequalityinternational.org/2024/07/two-si…

LISTEN: Leaving a Legacy of Love and Care with Mary Lou Falcone /podcast/legacy-of-love-and-care-with-mary-lou-falcone Brain & Life #podcasts

We are happy to share this back-to-school Power Hour chat hosted by Pediatric Epilepsy Surgery Alliance! 👉🏼us02web.zoom.us/meeting/regist… #Epilepsy #IEP #BackToSchool #Disabilities

Our new Pass the Torch video is now Live on our YouTube channel! This inspirational video includes all our Torchbearers and the Conference Torchbearers running up the Rocky Steps in Philadelphia! 📷 Watch it here: youtube.com/watch?v=qdlGFJ… 📷 #SturgeWeberSyndrome

Ask the Experts is back! Join us on September 14, 2024, at 12:00 pm - 1:00 pm EST for The SWF our Dermatology Roundtable. • Esteban Fernandez, MD • Megha Tollefson, MD, • Lisa Arkin, MD 📷 sturge-weber.org/events/ask-the… #DermatologyExperts #PortWineStain #StrurgeWeber #Birthmarks

We make research happen! ✅ Fostering Research Grants with NIH ✅ Write Grants with the BVMC Rare Diseases Clinical Research Network ✅ Collaborate with Dr. Anna Pinto and Dr. Anne Comi. NIH Boston Children's #Research #SturgeWeberSyndrome #SturgeWeberResearch #GNAQGene

We're just 18 days away from our "Ask the Experts" chat on Dermatology, September 14th! Panelists: • Esteban Fernandez • Megha Tollefson • Lisa Arkin sturge-weber.org/events/ask-the… Sponsored by: @UCBBiopharma #PortWineBirthmark #SturgeWeberSyndrome #Dermatology #VascularBirthmark

.U.S. Rep. Brittany Pettersen Senator John Hickenlooper Michael Bennet please co-sponsor the SSI Savings Penalty Elimination Act (S.2767/H.R.5408). Since 1989, the #SSI asset limit has not been raised, forcing people w/ disabilities into poverty. #UpdateSSI The Arc of the United States

You have dermatology questions? Our experts have answers! 👉🏼 sturge-weber.org/events/ask-the… 🙌🏼 Sponsor UCB News #sturgewebersyndrome #portwinebirthmarks #dermatology #dermatologyquestions #portwinestain

The SWF and @ucirvine invite you to this virtual mini-summit with UC Irvine. Learn, meet the team, and get your questions answered by the experts. @ucirvine 🦋 sturge-weber.org/events/uc-irvi… #sturgeweberevents #sturgewebersyndrome #portwinebirthmarks #neurology #eyedisease

Calling all #Neurologists and #SturgeWeberWarriors! Join us for our virtual Ask the Experts chat on October 12, 2024, and ask the doctors anything! 👉 sturge-weber.org/events/ask-the… Thank you to our sponsor: UCB News

Our mental health chats are baaaaack! 🥳 And more events are coming this fall! Stay tuned–it's kind of a secret. 🤫 😁 sturge-weber.org/events for all the details. We hope to see you at one or all of The SWF virtual events. #SturgeWeberEvents#Seizures #Birthmarks #Glaucoma

"Mackenzie's mom and dad share details about her medical condition and surgeries, and how having a Magical Dream through Sunshine Foundation and Sunshine Foundation Dream Village impacted their family." Watch the full video on YouTube. youtube.com/watch?v=4UjUA_… #SturgeWeber

Our mental health chats are back! 📷 📷 Visit sturge-weber.org/events for all the details. We hope to see you at one or all of The SWF virtual events. #SturgeWeberEvents #SturgeWeberWarriors #SturgeweberStrong #Seizures #Birthmarks #Glaucoma

READ "The First Choice in Treatment for Young Children with Port Wine Birthmarks" by ASLMS aslms.org/about-aslms/me… #PortWineBirthmarks #PortWineStain #Dermatology #BirthmarkTreatment