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Heard about #coproduction, #codesign, #PPI #CCI or any other jargon about partnering w #consumers, #patients or #public in #research? Don’t know how to start? Check out 👀 this 👇🏽excellent paper from Emily Ramage (she/her) & team. How to guide & lessons learnt. Gillian Mason (she/her) 🏳️‍🌈 strokebrainPRC

We’re really tired of #fatigue. Help us develop a post-#stroke fatigue program – Australian stroke survivors and carers, we’re now seeking your input bit.ly/3HuNl1z Image description: White person with short hair sleeping on a couch, with a white dog, also sleeping

Want to know what stroke survivors think about being active outside of therapy? journals.sagepub.com/doi/full/10.11… Heidi Janssen prof julie bernhardt, AM, FAHMS Julie Luker Neil Spratt Dr Annie McCluskey Jannette Blennerhassett

Breaking news: Our Living Clinical Guidelines for Stroke paper in @MJA today "the old model of static updates is no longer acceptable, and ongoing long term investment in living guidelines must be prioritised” Stroke Foundation Uni Newcastle Research Hunter Medical Research Institute (HMRI) strokebrainPRC CRE Stroke Rehab

🗣️Do you have aphasia? 🥱Are you tired of post-stroke fatigue? ✅ What helps? ❎ What doesn’t? 👩‍🦱 Talk to Dawn, over a cup of tea, to help develop good treatments hmri.org.au/survivors-stro…

Dr Heidi Janssen Heidi Janssen and her team are looking for people to test a prototype of a computer character that could help people living with stroke. If you’ve had a stroke in the past 12 months, you can help! 🧠🧡 hmri.org.au/itakecharge

Tweeps at #ARCSAus who had so many qu's about involving #patients / #consumers in your research & project teams, check out this free online training - 40min. It's for researchers who work with survivors of stroke, but the learnings are transferrable. informme.org.au/learning-modul…

Measuring food intake can be complicated – and messy! But what if there were an easier way? We are looking for volunteers to test whether the Australian Eating Survey can be used by stroke survivors to accurately measure their food intake. hmri.org.au/measuring-your…

Do you care for someone with post-stroke fatigue? Where have you found information about strategies that might help manage #fatigue? Share your experiences with us? (20-30min chat w/ Dr Dawn Simpson - phone, videocall or in-person if in Newcastle) bit.ly/3HuNl1z

Our colleagues Em Jovic & Dr Marie-Louise Bird are developing a program to help survivors of #stroke get more active, w/ support. If you have had a stroke, would you chat to them, or do a 15min online survey so they know what would work best for you? bit.ly/home_ex_survey

Always ❤️ hearing Adrian O’Malley Stroke Foundation talking about #peer-led #codesign #culturechange in the Young Stroke Project

The Take Charge program improved people’s independence and quality of life after stroke and we’re testing ways to make it available online – if you’ve had a stroke in the last 12 months, you can help test the prototype 🧠🧐 bit.ly/iTakeCharge

Fatigue after stroke - current research x.com/i/broadcasts/1…

Dina Pogrebnoy and I basking in @msjuliedavey ‘s glory!! This is one for all the lived experience experts involved in the project Meredith Burke Brian A Beh. @msjuliedavey Ben Nicole Harper Kevin English

@KarlyZacharia learnings from evaluation of the ENAbLE Pilot 👏👏👏- participants rated the i-REBOUND Telehealth-delivered programs highly and fidelity was high. Fatigue and health issues were barriers and the right Telehealth platform are important for success Prof Coralie English (she/her) 🌈

We’re going to need a bigger room! Lots of people with lived experience of stroke together with researchers talking about genuine partnerships in research. Good things to come.

Why have role in research? Encouraging the next generation of lived experience experts in our workshop at #stroke2023 with support from Stroke Foundation