Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile
Spoon Central πŸ¦“πŸ₯„

@spoon_central

I re/post tweets related to #chronicillnesses to spread info, offer support, & build our #neisvoid community. #CRPS #disability #dysautonomia #chronicpain πŸ¦“πŸ₯„

ID: 1322976554922725384

linkhttp://SpoonCentral.com calendar_today01-11-2020 18:59:38

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Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

You are clearly making a difference Phoebe Boag! As we all know, one doctor can be the difference if someone lives or dies. Thanks to you, other people in the #NEISvoid now have support and hopefully, our doc is teaching other docs!

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

I walked into work today (masked) and my colleague said "are you sick...again?!" He meant it as "you can't catch a break" so I just smiled and replied "welcome to life with an autoimmune disease"

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

Still sick (not covid)...starting week 3. Let's see what the doctor has to say. On the bright side, my students pay closer attention to me because of my sick voice. They want to laugh (it souns funny so I encourage it) and actually hear what I'm saying.

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

I've learned through Spoon Central how much I love advocating for people and impacting change! Thank you all for being part of my self-discovery journey!

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

If you know someone with a chronic illness that lost power due to recent storms, check on them! They may be desperate for power so they can utilize the devices that keep them alive and safe!

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

People don't realize that with chronic illnesses, you mourn the life you used to leave and the one you thought you were going to lead but now can't. Every time an illness steals something else from you, you go through the entire process all over again, as if it was the first time

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

Before leaving for my conference, Luca said "but I don't want you to go to Hogwarts!" I'm proud that he made a Harry Potter reference and honored that he thought I was cool enough to go to Hogwarts!

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

I went away for a work conference (it was great!) and am now suffering the post-excitement hangover. Brain fog. Unstable mood. Exhaustion. I feel better knowing what it actually is as opposed to thinking something else was wrong. Guess I'm watching zoo shows in pjs today.

Spoon Central πŸ¦“πŸ₯„ (@spoon_central) 's Twitter Profile Photo

After last night's night-sweats, I went through 5 changes of clothes. At work right now, utterly exhausted, but refusing to miss out on an important meeting. I'm currently drinking the lowest caffeine tea I could find (needed a little boost), and it tastes like the smell of A&D.

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I know there are a lot of GoFundMe's being circulated, but this one is for a family member who desperately wants to regain freedom by getting a new wheelchair. Every dollar helps! gofund.me/1259aabf