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Ok. Fixed. Porphyriafoundation.org

RIP SEAL Team It was a great show. Paying Paramount+ for their service twice makes no sense. I'll catch up when it's reruns and been canceled from low viewership. Sad too, it was pretty good, for Paramount.

#EPP patients are more than their rare disease – their stories inspire us to come to work every day. This #RareDiseaseDay, check out the United Porphyrias Association and Shadow Jumpers, a comic book about EPP for children of all ages ⤵️ #ShowYourStripes

Once a decorated gymnast, Glauciene’s dream was interrupted when she began experiencing painful attacks from acute hepatic #porphyria (AHP) that worsened over time – often resulting in hospitalization. Hear Glauciene describe her life since being diagnosed with this #RareDisease

Kicked off the Mysteries of Heme Metabolism Symposium 2023 in Cape Town with the first #MyPorphyria video from GlobalPorphyria! Full video at: youtu.be/QsGt4upaJYw Thank you to all the researchers and patients research #porphyria 💜

Global Porphyria Awareness Day! GlobalPorphyria United Porphyrias Association #MyPorphyria #porphyria

A short segment that aired tonight about EPP, Scenesse, and Camp Sundown. A great lead into Sunday Nights show... fb.me/4065TPuCV

Today is the Big day!! "Out of the Shadows" airs TONIGHT on Dateline NBC! Set your DVR's if you can't watch it... fb.me/3S3ni9LrM

#EPPMatters x.com/MarthaWithEPP/…

What's your quality of life like? x.com/MarthaWithEPP/…

Toxic blood reaction makes it Burn from the inside out! #EPPHurts x.com/MarthaWithEPP/…

Brazilian police: Ryan Lochte's teammates Jack Conger and Gunnar Bentz say robbery story was fabricated. (via AP) es.pn/2bl6bt4

Jason shares his Life about EPP and his new blog! fb.me/8Mb8odpcG