Happy #WorldSclerodermaDay 🥳 #SclerodermaAwarenessMonth Research offers #HOPE rdn.nihr.ac.uk/news/rare-dise… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch

#SclerodermaAwarenessMonth #Research offers #HOPE National Institute for Health and Care Research Be Part of Research rdn.nihr.ac.uk/news/rare-dise… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #ConnectiveTissue #BePartOfResearch

Happy 77th Birthday NHS England 🥳 Thank You for keeping me alive 💖 #flashback blog.raynaudsscleroderma.co.uk/2018/09/happy-… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch

🧊 How is Raynaud managed in US SSc patients? 📊 From 270 patients: • Only 61% received RP meds • CCBs most common (48%) but declining • PDE5i use rising • Maintenance & combo therapy = low 💵 Socioeconomic status influenced treatment 🔍 Read & RT journals.lww.com/jclinrheum/abs…

#GastroparesisAwarenessMonth sclerodermarf.blogspot.com/2019/08/gastro… #GERD #AcidReflux #Bloating #Malnutrition #Heartburn #SclerodermaFreeWorld #SystemicSclerosis #BePartOfResearch #NoCure #scleroderma #Raynauds #RareDisease #Autoimmune

#GastroparesisAwareness #heartburn #acidreflux #bloating #malnutrition blog.raynaudsscleroderma.co.uk/2018/05/gastro… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #LifeChanging #ConnectiveTissue #BePartOfResearch #GERD

Nailfold videocapillaroscopy (NVC) in Dx of systemic sclerosis - study of 258 NVCs found giant capillaries (specificity 98%) & capillary density to be best at defining a scleroderma pattern (39%). Density ≤8 capillaries/mm best defined dropout (AUC 0.911); having both = 91%

sclerodermarf.blogspot.com/2019/08/gastro… #GastroparesisAwarenessMonth #UnmetClinicalNeed #heartburn #acidreflux #bloating #malnutrition #watermelonstomach #SclerodermaFreeWorld #RaynaudsFreeWorld #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #BePartOfResearch

Wowee 9 years ago! #SKIN Involvement blog.raynaudsscleroderma.co.uk/2017/04/skin-i… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #TightSkin #BePartOfResearch #DermatologyCare

#GastroparesisAwareness Month #UnmetClinicalNeed #heartburn #acidreflux #bloating #malnutrition #watermelonstomach blog.raynaudsscleroderma.co.uk/2018/05/gastro… #SclerodermaFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #BePartOfResearch #GERD

#Flashback Initial Diagnosis 1997 blog.raynaudsscleroderma.co.uk/2017/04/sclero… Royal Free Charity #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #DreamSnatcher

Sclerodema research Royal Free London royalfreecharity.org/how-we-help/re… Research offers HOPE Be Part of Research #SclerodermaFreeWorld #RaynaudsFreeWorld #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

#WorldHeartDay royalfreecharity.org/how-we-help/re… Be Part of Research #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

October #RaynaudsAwarenessMonth raynaudsrf.blogspot.com/2019/10/the-ra… #RaynaudsFreeWorld #Research #Raynauds blog.raynaudsscleroderma.co.uk/2018/10/raynau… donate here: justgiving.com/fundraising/ra… #Vasospasm #BlueFingers #BlueToes #Pain #DigitalUlcers #Gangrene #Amputation #NoCure

Wowee 12 years ago! Pick me up magazine 2013 blog.raynaudsscleroderma.co.uk #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #Flashback

#WorldMentalHealthDay Every day I miss the old me blog.raynaudsscleroderma.co.uk/2017/04/my-job… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

Remembering the late great Anne Mawdsley #WorldArthritisDay 😇 blog.raynaudsscleroderma.co.uk/2017/10/rip-an… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch

Invisible Disabilities Association #InvisibleDisabilitiesWeek blog.raynaudsscleroderma.co.uk/2017/10/invisi… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #invisibledisability

October #RaynaudsAwarenessMonth raynaudsrf.blogspot.com/2019/10/the-ra… Raynaud's Awareness: raynaudsrf.blogspot.com/2020/03/raynau… #RaynaudsFreeWorld #Research #Raynauds justgiving.com/fundraising/ra… #Vasospasm #BlueFingers #BlueToes #DigitalUlcers #Gangrene #Amputation #VascularNeuropathy #BePartOfResearch

blog.raynaudsscleroderma.co.uk/2017/04/the-ra… Winter is my nemesis season 😱 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch #winter #bluefingers #hibernation