BhamRareSoc (@rarebham) 's Twitter Profile
BhamRareSoc

@rarebham

A student society dedicated to raising rare disease awareness and improving the lives of rare disease patients.

ID: 939471528965607425

calendar_today09-12-2017 12:27:21

47 Tweet

104 Followers

143 Following

MedicsforRareDisease (@medicsforrare) 's Twitter Profile Photo

Spontaneous Coronary Artery Dissection: "not your typical heart attack" - Dr Adlam. Usually affects young women without usual RFs. Find out more Beat SCAD UK are holding a conference on 9th June @qehbham #chestpain #SCAD #MedEd #Doctors #MedicalStudent beatscad.org.uk/conference-2018

Genomics Education (@genomicsedu) 's Twitter Profile Photo

To celebrate 70 years of the #NHS, we've created a timeline to illustrate how genetics and #genomics in healthcare has evolved over the past seven decades, and will continue to! #NHS70 socsi.in/SzlS3

To celebrate 70 years of the #NHS, we've created a timeline to illustrate how genetics and #genomics in healthcare has evolved over the past seven decades, and will continue to! #NHS70 socsi.in/SzlS3
David Lammy (@davidlammy) 's Twitter Profile Photo

Your arrogance and pandering to UKIP created this national crisis. Instead of offering advice, you should offer an apology for the enormous damage you have done to this country.

Lauren O'Donnell (@odonnell_lauren) 's Twitter Profile Photo

Take That Gary Barlow Howard Donald Jason Orange Mark Owen @Robbiewilliams My mum & whole world Eileen has been the biggest Take That fan for the past 30 years & has been every one of your tours (some more than once!) Sadly... #comeoneileen #comeontakethat #itonlytakesaminute

<a href="/takethat/">Take That</a> <a href="/GaryBarlow/">Gary Barlow</a> <a href="/HowardDonald/">Howard Donald</a> <a href="/JaytOrange/">Jason Orange</a> <a href="/OfficialMarkO/">Mark Owen</a> @Robbiewilliams My mum &amp; whole world Eileen has been the biggest Take That fan for the past 30 years &amp; has been every one of your tours (some more than once!) Sadly... #comeoneileen #comeontakethat #itonlytakesaminute
Katie Bushby (@bushbykate) 's Twitter Profile Photo

Utter devastation of the role the UK was playing in #ERNs. From leading 6/24 to not participating at all. There is so much more to #Brexit than meets the eye- here a direct hit on health of people with #RareDisease. Sarah Wollaston @NHSvBrexit

RCPCH (@rcpchtweets) 's Twitter Profile Photo

.@RCPCHPresident welcomes delegates to #RCPCH19 and outlines 3 key areas conference will focus on: Recruitment & retention in the paediatric workforce 👨‍⚕️ 👩‍⚕️ Establishing an equality & diversity panel 🤝 Paediatrics 2040 planning for the future 💫

.@RCPCHPresident welcomes delegates to #RCPCH19 and outlines 3 key areas conference will focus on: 
Recruitment &amp; retention in the paediatric workforce 👨‍⚕️ 👩‍⚕️ 
Establishing an equality &amp; diversity panel 🤝
Paediatrics 2040 planning for the future 💫
RCPCH_and_Us (@rcpch_and_us) 's Twitter Profile Photo

Congratulations Michael Farquhar who is the RCPCH_and_Us Voice Champion of the year 2019, chosen by young people for his work on the NHS Rainbow Badge and working with CB Youth Voice on the Rainbow Youth Supporters pack- rcpch.ac.uk/rainbow-youth-… Congrats Mike! #RCPCH19 #Paedsrocks

Congratulations <a href="/DrMikeFarquhar/">Michael Farquhar</a> who is the <a href="/RCPCH_and_Us/">RCPCH_and_Us</a> Voice Champion of the year 2019, chosen by young people for his work on the <a href="/RainbowNHSBadge/">NHS Rainbow Badge</a> and working with <a href="/CBYouthVoice/">CB Youth Voice</a>  on the Rainbow Youth Supporters pack- rcpch.ac.uk/rainbow-youth-… Congrats Mike! #RCPCH19 #Paedsrocks
MedicsforRareDisease (@medicsforrare) 's Twitter Profile Photo

This week's #MysteryDiseaseMonday is featuring NEUROFIBROMATOSIS TYPE 1 for #neurofibromatosisawarenessmonth @ChildhoodTT Have you heard of it❓❔❓Go to our #instastory to take the poll! #DareToThinkRare #RareDisease

This week's #MysteryDiseaseMonday is featuring NEUROFIBROMATOSIS TYPE 1 for #neurofibromatosisawarenessmonth @ChildhoodTT Have you heard of it❓❔❓Go to our #instastory to take the poll! #DareToThinkRare #RareDisease
The BMJ (@bmj_latest) 's Twitter Profile Photo

In the event of a “no deal” Brexit some of the UK’s most vulnerable, especially children with rare diseases, may lose access to the best medicine available, say @StuartElborn Mark L Flear and @DrDamianDowney blogs.bmj.com/bmj/2019/07/19…

Maggie Rogers (@magthenomad) 's Twitter Profile Photo

I was diagnosed with #childhoodcancer stage III Wilm’s tumor when I was four years old. I received a nephrectomy, full abdominal and pelvic radiation, and a year and a half of chemotherapy including #vincristine. You all knew this was coming.... thread 👇🏻 #cancermeds4kids /1

I was diagnosed with #childhoodcancer stage III Wilm’s tumor when I was four years old. I received a nephrectomy, full abdominal and pelvic radiation, and a year and a half of chemotherapy including #vincristine. You all knew this was coming.... thread 👇🏻 #cancermeds4kids /1
BhamRareSoc (@rarebham) 's Twitter Profile Photo

With less than 5 days until our 01/03/2018 conference, last minute sign-ups are still welcome! Celebrate rare disease week by a great day of stellar talks from speakers from the UK and beyond! #RareDx2018 @S4RareDiseases Bham Children's Hosp 💙 Midland Faculty RCGP Rare Disease UK

BhamRareSoc (@rarebham) 's Twitter Profile Photo

Celebrate #RareDiseaseDay by signing up to a day of rare awareness tomorrow at Bham Children's Hosp 💙! Last minute sign-ups still open! #RareDx2018 #RareAware

SWAN UK (syndromes without a name) (@swan_uk) 's Twitter Profile Photo

Do you know someone with a disease so rare that it remains #undiagnosed? 6000 children are born every year with a Syndrome Without a Name, more info here - undiagnosed.org.uk #RareDiseaseDay2018 This Morning Victoria Derbyshire *GG

Do you know someone with a disease so rare that it remains #undiagnosed? 6000 children are born every year with a Syndrome Without a Name, more info here -  undiagnosed.org.uk #RareDiseaseDay2018 <a href="/thismorning/">This Morning</a> <a href="/vicderbyshire/">Victoria Derbyshire</a> *GG
Rare Disease UK (@rarediseaseuk) 's Twitter Profile Photo

.David Cameron today is #RareDiseaseDay - join us in raising awareness that collectively rare diseases are not that rare. #1in17 people will be affected by one at some point in their lives.

.<a href="/David_Cameron/">David Cameron</a> today is #RareDiseaseDay - join us in raising awareness that collectively rare diseases are not that rare. #1in17 people will be affected by one at some point in their lives.
BhamRareSoc (@rarebham) 's Twitter Profile Photo

Thank you to all the delegates and speakers who braved the cold to come to #RareDx2018 and defeat the #beastfromtheeast #RareAware Great talks are now underway!

BhamRareSoc (@rarebham) 's Twitter Profile Photo

Mariam al-Attar, winner of the Findacure has become Beacon, follow us @RareBeacon student voice essay competition, raising awareness of the difficulty of procuring rare disease treatment #rareaware #TRAPS #RareDx2018

Mariam al-Attar, winner of the <a href="/findacure_fdn/">Findacure has become Beacon, follow us @RareBeacon</a> student voice essay competition, raising awareness of the difficulty of procuring rare disease treatment #rareaware #TRAPS #RareDx2018