OD4RD Project (@orphacodes) 's Twitter Profile
OD4RD Project

@orphacodes

The OD4RD project builds on Orphanet's specific expertise and on its network to support the implementation of ORPHAcodes in health systems in a standardisez way

ID: 1439934271158956035

linkhttp://www.od4rd.eu calendar_today20-09-2021 12:48:27

51 Tweet

27 Followers

43 Following

ERDERA (@erdera_org) 's Twitter Profile Photo

Upcoming FREE @EJPRareDiseases ERN workshop 🎯Aim: to raise awareness for the psychosocial impact of having a #RareDisease and form a group of researchers in the mental well-being and social sciences domain for rare diseases 🚨Register before 1 Feb 2023 ℹ️:ejprarediseases.org/event/ejp-rd-e…

Upcoming FREE @EJPRareDiseases ERN workshop
🎯Aim: to raise awareness for the psychosocial impact of having a #RareDisease and form a group of researchers in the mental well-being and social sciences domain for rare diseases
🚨Register before 1 Feb 2023
ℹ️:ejprarediseases.org/event/ejp-rd-e…
MetabERN (@metab_ern) 's Twitter Profile Photo

☞ Your contribution is precious! Answer the survey of the joint work group of @ERN_RND 🧠, ern euro_nmd, EpiCARE, ERN-EYE, and MetabERN experts and patient representatives to get a clear picture of how mitochondrial diseases are managed throughout #Europe.

OD4RD Project (@orphacodes) 's Twitter Profile Photo

📘The OD4RD2 Kick Off Meeting was held in April! Check out the executive summary here od4rd.eu/03-deliverable… #raredisease #ERNs @orphanet EU One Health

OD4RD Project (@orphacodes) 's Twitter Profile Photo

How to make #rarediseases more visible? Read this article about #ORPHAcodes by Monica Mazzucato et al. recently published in the Orphanet Journal of Rare Diseases. Full text here: rdcu.be/dlxOg

OD4RD Project (@orphacodes) 's Twitter Profile Photo

How to make #raredisease more visible? Read this article about #ORPHAcodes by Monica Mazzucato et al. recently published in the Orphanet Journal of Rare Diseases. Full text here: rdcu.be/dlxOg & ORPHAcodes video here: rd-code.eu/why-orphacodin…

OD4RD Project (@orphacodes) 's Twitter Profile Photo

How to make #raredisease more visible? Read this article about #ORPHAcodes by Monica Mazzucato et al. recently published in the Orphanet Journal of Rare Diseases. Full text here: rdcu.be/dlxOg & ORPHAcodes video here: rd-code.eu/why-orphacodin…

How to make #raredisease more visible? Read this article about #ORPHAcodes by Monica Mazzucato  et al.  recently published in the Orphanet Journal of Rare Diseases. Full text here: rdcu.be/dlxOg & ORPHAcodes video here: rd-code.eu/why-orphacodin…