
OD4RD Project
@orphacodes
The OD4RD project builds on Orphanet's specific expertise and on its network to support the implementation of ORPHAcodes in health systems in a standardisez way
ID: 1439934271158956035
http://www.od4rd.eu 20-09-2021 12:48:27
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☞ Your contribution is precious! Answer the survey of the joint work group of @ERN_RND 🧠, ern euro_nmd, EpiCARE, ERN-EYE, and MetabERN experts and patient representatives to get a clear picture of how mitochondrial diseases are managed throughout #Europe.

ERICA General Assembly in Madrid, hosted by ERN TransplantChild has started! Opened by host Eduardo López-Granados MD, PhD and ERICA coordinator Alberto M Pereira


📘The OD4RD2 Kick Off Meeting was held in April! Check out the executive summary here od4rd.eu/03-deliverable… #raredisease #ERNs @orphanet EU One Health



