Buy my clothing range via this link and help make a difference to families living with a muscle-wasting disease with 1/4 of each sale going to Muscular Dystrophy UK ohmcharities.org.uk/shop/carmela-s… You can also buy tshirts, zipped hoodies and hats. @ohmcharities #RareNRoar #raredisease

❤️❤️ thank you for your kindness Jemma! We are so lucky to be working with you and LOVE the amazing soft hoodies @ohmcharities makes for our supporters ! #humansizedpicture

Would you like the opportunity to #volunteer for MDUK? From fundraising events to campaigns and communications, there are many different ways you can help make a difference. See all our available volunteer roles here➡️musculardystrophyuk.org/get-involved/v… #MusclesMatter

Joyous!

Excellence, Character & Respect Thanks J Richardson for having me Verulam School. I will never grow tired of inspiring the lives of our youths. #longlivetheprince #ripkiyan Kiyan Prince Foundation QPR FC QPR in the Community

So proud of all the players QPR FC right now!!! 🥳🥳

We want to say a huge thank you to everyone who attended our #MicroscopeBall last night at LondonHiltonParkLane. It was a truly memorable night, and thanks to you, we have raised an incredible £328,000 that will help fund groundbreaking research into muscle-wasting conditions!

We’re turning London orange! 🧡 All smiles from #TeamOrange… keep going! #EveryStepCounts #MusclesMatter #LondonMarathon

This #WorldMentalHealthDay we are using our voice to spread the word about the people who are disproportionally affected by mental health problems; people from racialised communities, young people, and people living in poverty.

Any high profile celebs able to help kick-start my DECEMBELL Challenge! Please help me raise vital awareness for Muscular Dystrophy UK Muscular Dystrophy UK Many adults and children with MD have little or no muscle which means they can't even lift their arms. #musclesmatter #LCMD

Winter cold weather is on the horizon so grab yourself a warm Rare N Roar funky hoodie and woolly hat from @ohmcharities whilst giving hope to others living with a life-limiting progressive muscle wasting disease as 25% of each sale goes to medical research with Muscular Dystrophy UK #LCMD

These!!! They’re wonderful!!! Rare n Roar!

Outside @ENGINE_UK looking fabulous #ripKiyanPrince would be blown away if he could see whats happened since his murder where Hannad Hussain thought he rid the world of my son BUT Kiyans legacy lives on generations of young peoples lives inspired changed & saved cos Kiyan Prince Foundation work

It’s The Big Give Week where any donations you pay in for MDUK through the Big Give will double! Head over to the Big Give from 12pm today to donate but don’t delay, you only have until 7 December. Visit - bit.ly/3rl7vGg

It really can!

Show your rare with one of my #rareNroar clothing items. 20% from each item goes to medical research in to my rare condition called LMNA Congenital Muscular Dystrophy with Muscular Dystrophy UK Order from our suppliers @ohmcharities via this direct link. ohmcharities.org.uk/shop/carmela-s…

My very rare disease called LMNA-CMD only affects a few hundred in the world. It progressively weakens all skeletal muscles, breathing muscles, heart defects can occur, spine deformities occur and joint contractures. #RareDiseaseDay #rarediseaseawareness #LCMD Rare Disease Day

That time when The Prince and Princess of Wales came to tea to give me my Damehood! #surreal The Royal Marsden Cancer Charity Cancer Research UK Bowel Cancer UK The Bowelbabe Fund

@ohmcharities Thank you so much! Looks fantastic. We're sure it will help Lou to be even speedier! 😊 🏃