Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile
Not Defined By FND

@notdefinedbyfnd

We aim to end stigma and bring awareness, advocate for research and treatments, and create conversations to bring needed changes and hope for all FND warriors.

ID: 1758178503550210049

linkhttp://www.notdefinedbyfnd.org calendar_today15-02-2024 17:17:13

157 Tweet

33 Followers

28 Following

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Meet Liam. He was just 12 when he developed Functional Neurological Disorder (FND). 👉 Watch and share to help spread FND awareness: youtu.be/vFxo8WkfHiw Read his story and learn more: notdefinedbyfnd.org/liam-virgo #FNDWarrior #FNDawareness #FND #notdefinedbyfnd

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Medical & Mental Health Pros — We Need You! Help us improve FND care by taking a short, anonymous survey. Your insights will guide better training, resources & awareness Take the survey: notdefinedbyfnd.org/ongoing-surveys #FNDawareness #MedicalSurvey #MentalHealthMatters #NotDefinedByFND

Medical & Mental Health Pros — We Need You!
Help us improve FND care by taking a short, anonymous survey. Your insights will guide better training, resources & awareness

Take the survey: notdefinedbyfnd.org/ongoing-surveys

#FNDawareness #MedicalSurvey #MentalHealthMatters #NotDefinedByFND
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Our community groups just got an upgrade! We’ve reorganized and refreshed our online community groups to better support YOU—whether you’re living with FND, a supporter, or just looking to connect or learn. 👉 Read the blog to learn more! notdefinedbyfnd.org/post/we-ve-rev…

Our community groups just got an upgrade! 

We’ve reorganized and refreshed our online community groups to better support YOU—whether you’re living with FND, a supporter, or just looking to connect or learn.

👉 Read the blog to learn more! notdefinedbyfnd.org/post/we-ve-rev…
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🎓 Are you a student or educator? We want your voice! Help us understand how FND is seen (or missed) in education. Take our short anonymous survey: 👉 notdefinedbyfnd.org/ongoing-surveys #FNDawareness #InclusiveEducation #NotDefinedByFND

🎓 Are you a student or educator? We want your voice!
Help us understand how FND is seen (or missed) in education.
Take our short anonymous survey:
👉 notdefinedbyfnd.org/ongoing-surveys
#FNDawareness #InclusiveEducation #NotDefinedByFND
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New brain game alert! We’re kicking off a monthly series of fun, quick games designed to help retrain the brain and support cognitive health — especially for our FND warriors! ✨ First up: Focus Challenge 🕹️ Launching June 1st — details here 👉 notdefinedbyfnd.org/post/introduct…

New brain game alert!  We’re kicking off a monthly series of fun, quick games designed to help retrain the brain and support cognitive health — especially for our FND warriors!

✨ First up: Focus Challenge

🕹️ Launching June 1st — details here 👉 notdefinedbyfnd.org/post/introduct…
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🧡 Join us May 31st @ 8PM EST on Zoom for the FND Empowerment Circle! This month: 🧠 Mental Health Matters – Caring for Your Mind 💬 Connection. Support. Healing. 🔗 notdefinedbyfnd.org/fnd-empowermen… #FND #MentalHealthAwareness #FNDsupport #InvisibleIllness #ZoomSupport

🧡 Join us May 31st @ 8PM EST on Zoom for the FND Empowerment Circle!
This month: 🧠 Mental Health Matters – Caring for Your Mind
đź’¬ Connection. Support. Healing.
🔗 notdefinedbyfnd.org/fnd-empowermen…

#FND #MentalHealthAwareness #FNDsupport #InvisibleIllness #ZoomSupport
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🔬 Are you an FND advocate or researcher? We need your input! 🧠 Help improve FND language 📊 Identify knowledge gaps 📣 Raise awareness 📋 Take our short, anonymous survey: 👉 notdefinedbyfnd.org/ongoing-surveys #FNDresearch #FNDadvocacy #Neurodiversity #DisabilityAwareness #FNDAware

🔬 Are you an FND advocate or researcher?
We need your input!

đź§  Help improve FND language
📊 Identify knowledge gaps
📣 Raise awareness

đź“‹ Take our short, anonymous survey:
👉 notdefinedbyfnd.org/ongoing-surveys

#FNDresearch #FNDadvocacy #Neurodiversity #DisabilityAwareness #FNDAware
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

💙 Living with FND or support someone who is? You’re not alone. Join our FND Empowerment Circle on Zoom! 📅 June 5 | 🕚 11 AM EST 💬 “Stronger Together: Building Your Support Network” ✅ Free & open to all 🔗 RSVP: notdefinedbyfnd.org/fnd-empowermen… #FND

💙 Living with FND or support someone who is? You’re not alone.
Join our FND Empowerment Circle on Zoom!
📅 June 5 | 🕚 11 AM EST
💬 “Stronger Together: Building Your Support Network”
âś… Free & open to all
🔗 RSVP: notdefinedbyfnd.org/fnd-empowermen…
#FND
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🌍 Exciting news! We’ve launched the FND Library — a free, searchable hub of resources, support groups & research on FND. 📚💛 ✅ Easy to navigate ✅ Always growing ✅ Open to submissions! 🔗 Explore: notdefinedbyfnd.org/post/announcin… #FNDresources #FNDcommunity #NotDefinedByFND

🌍 Exciting news! We’ve launched the FND Library — a free, searchable hub of resources, support groups & research on FND. 📚💛

âś… Easy to navigate
âś… Always growing
âś… Open to submissions!

🔗 Explore: notdefinedbyfnd.org/post/announcin…

#FNDresources  #FNDcommunity #NotDefinedByFND
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🌍 Everyone’s welcome — share your voice & support the FND community! 🧠 Heard of Functional Neurological Disorder (FND)? Take a quick, anonymous survey 👉 notdefinedbyfnd.org/ongoing-surveys 📣 Share with others — every response helps! #FNDawareness #NotDefinedByFND #HealthAwareness

🌍 Everyone’s welcome — share your voice & support the FND community!

đź§  Heard of Functional Neurological Disorder (FND)?

Take a quick, anonymous survey 👉 notdefinedbyfnd.org/ongoing-surveys
📣 Share with others — every response helps!

#FNDawareness #NotDefinedByFND #HealthAwareness
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

CINEMAGIC & COMMUNITY – MOVIE NIGHT! Join us for a fun-filled virtual movie night. This month, we're watching Napoleon Dynamite! Everyone is welcome! 📅 Friday, June 13 🕖 7 PM EST 📍 On Zoom 🎟️ RSVP & get the Zoom link here: 👉 notdefinedbyfnd.org/cinemagic-comm…

CINEMAGIC & COMMUNITY – MOVIE NIGHT! 

Join us for a fun-filled virtual movie night. This month, we're watching Napoleon Dynamite! 

        Everyone is welcome! 
đź“… Friday, June 13
đź•– 7 PM EST
📍 On Zoom

🎟️ RSVP & get the Zoom link here:
👉 notdefinedbyfnd.org/cinemagic-comm…
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

Meet Alicia (@ChronicallyAlicia) — once training to be a midwife, now navigating life with FND. Her story sheds light on this misunderstood condition. 🎥 Watch: youtu.be/93294cBeb5s 🎗 You are not alone. #FND #FNDWarrior #ChronicIllness #FNDAwareness #NotDefinedByFND

Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

The rare disease community is vast — but we need the data to show it. NORD’s Living Rare, Living Stronger® Study is the first large-scale U.S. study tracking how the experiences and challenges of people impacted by rare diseases evolve. 🔗 Learn more : livingrare.org

The rare disease community is vast — but we need the data to show it. NORD’s Living Rare, Living Stronger® Study is the first large-scale U.S. study tracking how the experiences and challenges of people impacted by rare diseases evolve.

đź”— Learn more : livingrare.org
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🧠 FND is real. It’s not “in your head” or always caused by trauma. It’s time to replace stigma with science. 💙 🎥 youtu.be/7Z83f88U5Qg 🔗 notdefinedbyfnd.org #FND #FNDawareness #SupportFNDWarriors

🧠 FND is real. It’s not “in your head” or always caused by trauma.

It’s time to replace stigma with science. 💙

🎥 youtu.be/7Z83f88U5Qg
đź”— notdefinedbyfnd.org
#FND #FNDawareness #SupportFNDWarriors
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

💙 Shop & support FND—free! Use iGive to shop 2,000+ stores. A % goes to Not Defined By FND. ✅ Free ✅ Auto donations ✅ Real impact 👉 iGive.com | Choose Not Defined By FND 📖 notdefinedbyfnd.org/post/shop-with… #SupportFND #iGive #ShopForACause

💙 Shop & support FND—free!

Use iGive to shop 2,000+ stores. A % goes to Not Defined By FND.

âś… Free
âś… Auto donations
âś… Real impact
👉 iGive.com | Choose Not Defined By FND

📖 notdefinedbyfnd.org/post/shop-with…

#SupportFND #iGive  #ShopForACause
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🎤 Lend your voice for FND! 🧡💙 Join our awareness videos—no experience needed. 🎬 Video or 🎧 audio ✅ Scripts provided ✅ Open to all 18+ 🔗 forms.gle/p3zQ4G7HhFm7vv… 📩 DM us to join! #FNDawareness #VoiceForFND #VolunteerOpportunity

🎤 Lend your voice for FND! 🧡💙
Join our awareness videos—no experience needed.
🎬 Video or 🎧 audio
âś… Scripts provided
âś… Open to all 18+

🔗 forms.gle/p3zQ4G7HhFm7vv…
đź“© DM us to join!
#FNDawareness #VoiceForFND #VolunteerOpportunity
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🎧 IMAGINE THAT: Episode 1 is here! 🧠✨ Our Imagine That series shines a light on some of the invisible struggles of FND. 💬 Listen. Learn. Imagine. Because awareness starts with understanding. Watch on Youtube: youtu.be/7ulj8BpnE8s Visit us: www..notdefinedbyfnd.org

Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

Join the FND Empowerment Circle! This is a safe, supportive space for all FND Warriors & supporters to share, learn, and grow together. When: Saturday, June 28 @ 8 PM EST June Focus: Stronger Together – Building Your Support Network 🔗 notdefinedbyfnd.org/fnd-empowermen…

Join the FND Empowerment Circle! 

This is a safe, supportive space for all FND Warriors & supporters to share, learn, and grow together.

When: Saturday, June 28 @ 8 PM EST

June Focus: Stronger Together – Building Your Support Network

🔗 notdefinedbyfnd.org/fnd-empowermen…
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🎉 Join Our Fall Fundraiser! 🎉 Sept 1–21 | 100% Online Support Not Defined By FND—no door-to-door, just share & shop! 🛒💙 Prizes for top sellers! Sign up by Aug 4 👉 forms.gle/hV9k2aDniHhB9e… Details: notdefinedbyfnd.org/fundraisers #FallForAFNDcause #FNDfundraiser #ShopForACause

🎉 Join Our Fall Fundraiser! 🎉
Sept 1–21 | 100% Online

Support Not Defined By FND—no door-to-door, just share & shop! 🛒💙
Prizes for top sellers!

Sign up by Aug 4 👉 forms.gle/hV9k2aDniHhB9e…
Details: notdefinedbyfnd.org/fundraisers

#FallForAFNDcause #FNDfundraiser #ShopForACause
Not Defined By FND (@notdefinedbyfnd) 's Twitter Profile Photo

🎥 Imagine That – Episode 2 is here! You go to say “Good morning”—but nothing comes out. For many living with FND, this is real life. 🧠💬 1 in 6 people with FND experience speech issues. 💙 Watch & share to raise awareness: youtu.be/CS2SLY42BCg #FNDawareness #FND