NOAACF (@noaacf) 's Twitter Profile
NOAACF

@noaacf

The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.

ID: 1273979801544646661

calendar_today19-06-2020 14:04:01

90 Tweet

115 Followers

30 Following

NOAACF (@noaacf) 's Twitter Profile Photo

As we officially enter Black History Month 2023, what an immense honor from such a phenomenal organization to be named among "100 Voices for Our Planet". And to be included among such an amazing group of rare & exemplary voices is surreal. Thank you Lumbie Mlambo and JB Dondolo, Inc.!

As we officially enter Black History Month 2023, what an immense honor from such a phenomenal organization to be named among "100 Voices for Our Planet". And to be included among such an amazing group of rare &amp; exemplary voices is surreal. Thank you <a href="/LumbieMlambo/">Lumbie Mlambo</a> and <a href="/JbDondolo/">JB Dondolo, Inc.</a>!
AARP Black Community (@aarpblackcom) 's Twitter Profile Photo

For #BlackHistoryMonth, we recognize leaders like Terry Gene Wright and Michele R. Wright, who raise awareness of cystic fibrosis in Black communities in support of patients and caregivers. When our efforts drive change for the greater good, we thrive together. ❤️ #AARPBHM

For #BlackHistoryMonth, we recognize leaders like Terry Gene Wright and Michele R. Wright, who raise awareness of cystic fibrosis in Black communities in support of patients and caregivers. When our efforts drive change for the greater good, we thrive together. ❤️ #AARPBHM
NOAACF (@noaacf) 's Twitter Profile Photo

My husband Terry Wright and I are most honored to be featured as Community Leaders today by AARP (in their Valentine's Day Post) in honor of Black History Month. Now, that's some Love!!!

My husband <a href="/TerryGeneWright/">Terry Wright</a> and I are most honored to be featured as Community Leaders today by AARP (in their Valentine's Day Post) in honor of Black History Month. Now, that's some Love!!!
NOAACF (@noaacf) 's Twitter Profile Photo

Such an wonderful and entire day to be followed and photographed by National Geographic. Stay tuned! The featured article is coming on 2-22-23!!!

Such an wonderful and entire day to be followed and photographed by National Geographic. Stay tuned! The featured article is coming on 2-22-23!!!
NOAACF (@noaacf) 's Twitter Profile Photo

On February 25th, NOAACF will be hosting our 3rd Annual BIOMERGD Conference. Please Join Us and Register Here: us02web.zoom.us/webinar/regist…

On February 25th, NOAACF will be hosting our 3rd Annual BIOMERGD Conference. Please Join Us and Register Here: us02web.zoom.us/webinar/regist…
NOAACF (@noaacf) 's Twitter Profile Photo

Today's 2023 BIOMERGD Conference hosted by NOAACF was a major success. Special Thanks to NOAACF Board Members, and BIOMERGD Speakers/Participants: Roshni Kulkarni, MD; Gathline Etienne, MD; Jennifer Shedden, MD; Meghan McGarry, MD, Bijal Trivedi, & Patient Advocate, Rachel Alder!

Today's 2023 BIOMERGD Conference hosted by NOAACF was a major success. Special Thanks to NOAACF Board Members, and BIOMERGD Speakers/Participants: Roshni Kulkarni, MD; Gathline Etienne, MD; Jennifer Shedden, MD; Meghan McGarry, MD, Bijal Trivedi, &amp; Patient Advocate, Rachel Alder!
NOAACF (@noaacf) 's Twitter Profile Photo

With this being the climax of Black History Month coupled with being Rare Disease Day, Terry Wright and I are so honored to be featured in the February 28, 2023 issue of National Geographic Magazine written by Sr. Writer Bijal Trivedi (Article Link: nationalgeographic.com/magazine/artic…)!

NOAACF (@noaacf) 's Twitter Profile Photo

As I prepare to join my SMPTE cohorts to visit Atlanta University Center this week, this post brings back some wonderful HBCU vibes!!!

As I prepare to join my SMPTE cohorts to visit Atlanta University Center this week, this post brings back some wonderful HBCU vibes!!!
NOAACF (@noaacf) 's Twitter Profile Photo

What an honor to be featured on the cover and as the featured article in the April 2023 issue of the Society of Motion Picture and Television Engineers (SMPTE) Motion Imaging Journal. In addition to available print copies, the digital link is as follows: smpte.org/blog/michele-w…

What an honor to be featured on the cover and as the featured article in the April 2023 issue of the Society of Motion Picture and Television Engineers (SMPTE) Motion Imaging Journal. In addition to available print copies, the digital link is as follows: 

smpte.org/blog/michele-w…
NOAACF (@noaacf) 's Twitter Profile Photo

I am so excited to join Dr. Malika Fair, MD, MPH, FACEP as a featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" hosted by Expecting Health on Thursday, July 27, 2023, from 1-2 PM EST. us02web.zoom.us/meeting/regist…

I am so excited to join Dr. Malika Fair, MD, MPH, FACEP as a featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" hosted by Expecting Health on Thursday, July 27, 2023, from 1-2 PM EST. 

us02web.zoom.us/meeting/regist…
Expecting Health (@expecthealthorg) 's Twitter Profile Photo

Join us on July 27th at 1:00 PM EST to hear Dr. Michele Wright (NOAACF) and Dr. Malika Fair (AAMC) share their experiences navigating the healthcare system from the Black patient advocate and healthcare provider perspectives. Secure your spot: bit.ly/3Xzm1Iq

Join us on July 27th at 1:00 PM EST to hear Dr. Michele Wright (<a href="/noaacf/">NOAACF</a>) and Dr. Malika Fair (<a href="/AAMCtoday/">AAMC</a>) share their experiences navigating the healthcare system from the Black patient advocate and healthcare provider perspectives. Secure your spot: bit.ly/3Xzm1Iq
NOAACF (@noaacf) 's Twitter Profile Photo

Interesting Article! Should the medical world reconsider the use of race in medical algorithms? news.yahoo.com/should-the-med… Funds were granted to five organizations to reconsider the use of race in medical algorithms as the medical industry is increasingly scrutinizing centuries...

Expecting Health (@expecthealthorg) 's Twitter Profile Photo

“If you were not Black, I’d say you have #CysticFibrosis,” what Dr. Michele Wright’s (NOAACF) then fiance was told by a White physician 17 years before he was diagnosed with CF. #raredisease #healthequity #genetics #DEI #healthdisparities

NOAACF (@noaacf) 's Twitter Profile Photo

I'm so excited to feature the Expecting Health video from me speaking, alongside Dr. Malika Fair, MD, MPH, FACEP, as the featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" on July 27th!!! youtube.com/watch?v=zajKPp…

NOAACF (@noaacf) 's Twitter Profile Photo

I am so honored for Terry Wright and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients & Expert Forum, which will take place on May 18, 2024, in San Diego, Calif! Flyer is below!

I am so honored for <a href="/TerryGeneWright/">Terry Wright</a> and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients &amp; Expert Forum, which will take place on  May 18, 2024, in San Diego, Calif!

Flyer is below!
NOAACF (@noaacf) 's Twitter Profile Photo

I am so honored to be featured by my Alma mater, The University of Arkansas, in this beautifully written article that uniquely highlights and pays homepage to my deep Tuskegee Roots and my quest for health equity!!! news.uark.edu/articles/70592… And the Best is still yet to come! ❤

Stanley Manne Children's Research Institute (@manneresearch) 's Twitter Profile Photo

Lurie Children's Northwestern Feinberg School of Medicine Susanna McColley MD (she/her) NUCATS Institute Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on Stanley Manne Children's Research Institute's In Pursuit podcast. Hosted by Manne Research Institute Prez &CRO Dr. Patrick Seed. research.luriechildrens.org/en/in-pursuit-…

<a href="/LurieChildrens/">Lurie Children's</a> <a href="/NUFeinbergMed/">Northwestern Feinberg School of Medicine</a> <a href="/SusannaMcColley/">Susanna McColley MD (she/her)</a> <a href="/NUCATSInstitute/">NUCATS Institute</a> Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on <a href="/ManneResearch/">Stanley Manne Children's Research Institute</a>'s In Pursuit podcast. Hosted by Manne Research Institute Prez &amp;CRO <a href="/DrPatrickSeed/">Dr.  Patrick Seed</a>. research.luriechildrens.org/en/in-pursuit-…