NOAACF
@noaacf
The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.
ID: 1273979801544646661
19-06-2020 14:04:01
90 Tweet
115 Followers
30 Following
As we officially enter Black History Month 2023, what an immense honor from such a phenomenal organization to be named among "100 Voices for Our Planet". And to be included among such an amazing group of rare & exemplary voices is surreal. Thank you Lumbie Mlambo and JB Dondolo, Inc.!
My husband Terry Wright and I are most honored to be featured as Community Leaders today by AARP (in their Valentine's Day Post) in honor of Black History Month. Now, that's some Love!!!
With this being the climax of Black History Month coupled with being Rare Disease Day, Terry Wright and I are so honored to be featured in the February 28, 2023 issue of National Geographic Magazine written by Sr. Writer Bijal Trivedi (Article Link: nationalgeographic.com/magazine/artic…)!
Grateful to CDC Cystic Fibrosis Foundation and The Legacy of Angels Foundation for supporting our work to achieve equity in CF diagnosis Lurie Children's Stanley Manne Children's Research Institute NOAACF Dr Meghan McGarry luriechildrens.org/en/news-storie…
I'm so excited to feature the Expecting Health video from me speaking, alongside Dr. Malika Fair, MD, MPH, FACEP, as the featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" on July 27th!!! youtube.com/watch?v=zajKPp…
Timely diagnosis and treatment is essential for infants with #CysticFibrosis and other disorders diagnosed by #NewbornScreening Cystic Fibrosis Foundation Baby's First Test Expecting Health Sarita Edwards Lurie Children's Stanley Manne Children's Research Institute @CDCChronic
I am so honored for Terry Wright and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients & Expert Forum, which will take place on May 18, 2024, in San Diego, Calif! Flyer is below!
Lurie Children's Northwestern Feinberg School of Medicine Susanna McColley MD (she/her) NUCATS Institute Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on Stanley Manne Children's Research Institute's In Pursuit podcast. Hosted by Manne Research Institute Prez &CRO Dr. Patrick Seed. research.luriechildrens.org/en/in-pursuit-…