Excited HERO-2 is launching today. Loved playing a small role in this. CF patients and parents: learn how to enroll in this novel observational study below ⬇️⬇️⬇️⬇️

Lots of FDA decision-making this week! My 2c on the Verily Parkinson's decision - can't assume that passive, device-based tracking is able to express the same level of detail on patient outcomes as direct, patient-reported data. endpts.com/fda-rejects-go… #Parkinsons #patientled

What a strange headline: on.wsj.com/3zODQH8 The good leaders always expected - encouraged! - team members to value their personal lives and be relatively autonomous. Career != Life definition The Wall Street Journal #returntooffice

I love cold pitches. But a surefire way not to get funding from January Ventures is to start it with: "Dear Sirs..."

Amen! Why not?

Striking. 12 months after their symptoms started, only 23% of Covid patients in a new study from Germany were completely free of symptoms.

I have one ask: don’t ever feel bad for me because I have ALS. We all carry burdens. Instead, join me in changing ALS from terminal to chronic and let me know how I can help lessen your burden. That is how we change the world. Good night moon.

Deeply tragic. Upshot here is we shouldn’t be randomizing patients to placebo when the outcome is certain death. We should use natural history models and synthetic control arms in these settings instead of obligating a placebo arm to a known, fatal outcome statnews.com/2021/08/19/bio…

So excited for this new capability! I've already personally been able to view data from my latest clinic visit that wasn't easily visible from my patient portal, and I could see it next to my own tracked data. Check it out! #powertothepatient #interoperable

Broken English is a sign of courage and intelligence and it would be nice if more people remembered that when interacting with immigrants and refugees.

Happy victory Monday, folks #BillsMafia

Pharmaceutical company: Here’s an ad for our life-saving medication Me: Wow can I buy it? PC: No, only a doctor can prescribe it Me: Can I suggest it to my doctor? PC: No, they will be very mad that you did any research into your condition whatsoever, but plz enjoy our ad :)

I'm finding that being a parent has opened up a new type of empathy - crises like the Ukraine invasion hit differently now. #Ukraine #PeaceNotWar

Enjoyed this dynamic conversation - will say that the title of this turned out kinda weird! Check it out if you're interested in some very plainspoken discussion on what we need to do for individuals to receive personalized care.

Thanks to our friends at Folia Health and TBD Angels as some of the first startups and investment groups to take advantage of these features!

#WorldOrphanUSA looking forward to hanging out with some like-minded individuals focused on #RareDisease and patient-driven care tonight. Come chill with us at The Lenox Hotel Solas bar, 5-7pm! Folia Health