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This makes me sad and angry in equal measures. Enough.

2015 blog & what has changed? I’m shouting - we METUPUK are shouting but who is listening? Progress way way too slow. Clinical trials Research Drug access Data & stats Breast Cancer Now Fiona Hazell Mia 🎗 It hurts too much to watch… abcdiagnosis.co.uk/2015/12/it-hur…

Crazy Cancer Lady Mary Richards Bonnie H Fox You would t believe what we have to deal with in the UK - not the fantastic system it’s shouted to be - Defo not for secondary patients - focus of course all on curative - fuck the rest of us ...

Jo Taylor BEM METUPUK Breast Cancer Now Fiona Hazell Mia 🎗 Research is far, far too slow. It hurts us researchers too, we want to be researching, not fighting to stay employed all the time.

I have #SecondaryBreastCancer. Like too many UK #cancer patients I struggle to access the best treatments on the #NHS. I was recently asked why I don't have private medical insurance to pay for #DrugAccess. This blog is my response. #BusyLivingWithMets kitvscancer.wordpress.com/2019/07/07/can…

This is an inadequate rigid system that is happening all across the country it seems - what about helping patients to live & survive longer? Has this been lost in the arguments of funding? Breast Cancer Now Dr Greg Wilson

Dear #cancerresearch Thank you for developing drugs - we (#secondarybreastcancer patients) need them urgently.. But your research is a far cry from what my friends are experiencing - early death because the computer says no There seems a huge chasm between research & reality👇🏼

Here is the link below to the fantastic #abcdretreat that I provide for primary #breastcancer and #secondarybreastcancer people for "motivation & #exercise through recovery and beyond" Please share this with others who would like to attend #BCCWW buff.ly/2IZabmx

I’m annoyed. I’m annoyed that it’s left to a group of dying patients to push change where we are being let down by key organizations that should be doing this & helping us Not even just pushing for change we are LEADING the change Time for change & accountability METUPUK

A phase 1 trial saved my life almost 4 years ago, and I’m still on it. More metastatic breast cancer patients need to offered trials - or seek them out

BreastDensityMatters Craig Tracey Matt Hancock @NicDakinMP But we need #secondarybreastcancer at the top of the political agenda - women & men are DYING of this disease 11500 every YEAR & no prevention campaign will save them - #drugaccess will - no one dies of primary BC Craig - Matt - Nic - we need to talk METUPUK

mazzy Jo Taylor BEM Macmillan Cancer Support If you want research Secondary First donate direct to #SecondaryBreastCancer with only 5% going to costs. No salaries, all monies possible direct to research #BusyLivingWithMets

. Secondary First Second Hope Make 2nds Count Breast Cancer Now Steve Bland BCNow Press Office Delyth Morgan #secondarybreastcancer must be the political focus. No primary awareness raising is stopping us dying! #BusyLivingWithMets #DrugAccess

Hi Helen Grant OBE MP thanks 🙏🏼 Clare one of the ladies is a friend of mine & asked her to take our objectives to the meeting. I am the founder of METUPUK & would be good to connect. Many issues that need addressing Breast Cancer Now APPG Breast Cancer #SecondaryBreastCancer #drugaccess

We've got that #FridayFeeling as we start counting down the weeks till the start of rehearsals. #theatre #Exmoor #drama #openairtheatre #LornaDoone150 #romance #ValleyofRocks #divein #soexcited #theatreinthewild

Yup. Jo Taylor BEM has been banging on about this for nearly a decade. What will it take for people to listen to those of us who weren’t “cured”...?!!!

A huge congrats, and massive thank you, to the 21 friends/family of Jackie Kinsella who conquered the 24 mile, three mountain trek that is the Yorkshire 3 Peaks Challenge in aid of Secondary1st....in just 11hours 40mins!! #fundraiser #secondarybreastcancer magisto.com/int/video/OVhE…

The detail to take not of here “previously pre treated advanced disease” ie 1st line only... METUPUK #secondarybreastcancer #bccww #bcsm

Thanks for sharing this BreastCancer Chat WW #BCCWW 👌🏼 Exactly why I created METUPUK to keep the pressure on #SecondaryBreastCancer #bccww #BusyLivingWithMets