Lesley Lykins, CCXP
@lyfsgr8
Navy Veteran, Mother and Wife, with a love of Customer Experience and the people that make great experiences happen.
ID: 22775866
http://lesleylykins.com 04-03-2009 14:08:21
1,1K Tweet
876 Followers
811 Following
Very excited for our opportunity to speak with our Congressional Representatives today regarding #CysticFibrosis 💙💛 #CFAdvocacy Thank you Cystic Fibrosis Foundation for coordinating this day!
Thank you Rep. Marcy Kaptur for your ongoing support to the #CysticFibrosis community! We appreciated meeting with your staff on PASTEUR #cfadvocacy
Thank you to Rep. Emilia Strong Sykes and her staff for discussing #CysticFibrosis with us today. Your staff was so incredible. Thank you for listening to Cohen’s story. #CFAdvocacy #DuckyGoestotheHill
Thank you Senator Vance Press Office for the time today to share our stories. Ohio has a uniquely large population of people living with #CysticFibrosis as well as some of the TOP CF Care Centers in the nation. We are grateful for your time today! #cfadvocacy
It is important that people with Cystic Fibrosis remain apart to prevent spreading bacteria that could result in awful infections. When Cystic Fibrosis Foundation hosts events only one person with CF can attend in person. Cohen sent his “ducky” to represent and boy did Ducky advocate.
Thank you so much to the team at Sherrod Brown office. Big shout out to Diop for listening to us share our stories and thanking us for being willing to vulnerably share them to our representatives. What a beautiful and heartfelt meeting to end our day 💙#CFAdvocacy
So much development has occurred since our son Cohen was born 12 years ago with Cystic Fibrosis. The idea of sitting through a Cystic Fibrosis Foundation session today to talk about the differences between gene editing & gene therapy is surreal. Truly HOPE in action. #CFFVLC
From the start of our son’s journey w/ #CysticFibrosis we have benefited from the incredible care principles Cystic Fibrosis Foundation established. He has received care at 3 care centers across the U.S. and another in Germany - the care principles have directly impacted his health. #CFFVLC
We are a community that refuses to give up on a cure. 💙💛 “Breath From Salt” author Bijal Trivedi receives the Jena Award from Margarete Cassalina #cysticfibrosis #cffvlc
Love. Love. Love these Veterans Day dinners. Thank you Texas Roadhouse for feeding us 😋 your staff was awesome and everyone was so gracious. #VeteransDay
.Rep. Emilia Strong Sykes Bernie Moreno, as a constituent and someone personally affected by #cysticfibrosis, I’m calling on Congress to oppose Medicaid cuts that could threaten patient access for CF patients. #CFAdvocacy
Cohen is speaking with Rep. Emilia Strong Sykes staff about the lifesaving medication for #CysticFibrosis and the importance of #Medicaid and access to this life altering care. #cfftad #teenadvocacy
A big thank you to the team at Rep. Emilia Strong Sykes for meeting with Cohen (age 13) today during the Cystic Fibrosis Foundation Teen Advocacy Day. Cohen said “they were extremely nice” 😊 #CFAdvocacy