Today sees the launch of our countdown to #PREM23. A survey of kidney patient experiences.

New 🔓paper from ⁦Lucy Mackintosh⁩ et al Impact of COVID-19 on patient experience of kidney care: a rapid review link.springer.com/article/10.100…

🆕🔓The identification & management of depression in UK Kidney Care:Results from the Mood Maps Study ⁦Kidney Research UK⁩ ⁦⁦Christina Pearce⁩ ⁦Jo Hudson⁩ ⁦Sam Norton⁩ ⁦Amanda Busby⁩ ⁦Paula Ormandy⁩ ⁦Shivani Sharma (she/her)⁩ onlinelibrary.wiley.com/doi/10.1111/jo…

Kidney Research UK King's College London Thanks to a brilliant team Shivani Sharma (she/her) Paula Ormandy Sam Norton Amanda Busby Christina Pearce Jo Hudson Nick Palmer 🇺🇦 Lucy Mackintosh Alex Hamilton Julia Jones

1/4 Today is World Kidney Day! Kidney disease affects 1 in 10 people, with just under 70,000 people receiving KRT in the UK (in 2021). Thus it is imperative to ensure we continue to improve patient experience of their care. The UK Kidney Association Kidney Care UK @kidneycareuk.bsky.social UK Renal Registry

2/4 This paper investigates current literature which evaluates how patient experience of kidney care was impacted by the COVID-19 pandemic

3/4 This vital piece of work looks into the identification and management of depression in UK Kidney Centres. With more work on this to follow in the coming months.

4/4 I am currently reporting on the analysis of Kidney PREM 2023 free-text comments. This report is used by UK Kidney Centres to guide quality improvement. Follow the link for the reports from previous years ukkidney.org/kidney-patient… and keep an eye out for this years! #kidneyPREM

Excited to be presenting the findings from the Kidney Patient Reported Experience Measure (PREM) 2023 additional one-off questions at #UKKW2024 Kidney Care UK @kidneycareuk.bsky.social The UK Kidney Association University of Hertfordshire

This year’s kidney Patient Reported Experience Measure (PREM) is open from 16 September. We use feedback received to identify changes, your unit can see how they are performing against other units, & to see how they could improve the quality of your care. buff.ly/3ZcfBC0

Thanks to all those who participated in our recent survey of Mental Health and Kidney Disease (MoodMaps). A summary of some of the key findings ⬇️ ⁦Kidney Research UK⁩ ⁦Pooja Schmill⁩ ⁦Sam Norton⁩ ⁦Christina Pearce⁩ ⁦Shivani Sharma (she/her)⁩ ⁦Paula Ormandy⁩

Looking forward to this event and discussing some very important and much needed research. Would be great to have some patient perspectives on this Midlands Operational Delivery Renal Network Kidney Patient Involvement Network (KPIN) Kidney Research UK

The last two months I’ve been conducting some in-person focus groups at paediatric kidney centres across the UK. It’s been great to meet people in 3D and to gain a better understanding of their experience by seeing the centres myself. Here are some photos I’ve taken along the way

At the end of a wonderful #UKKW25 Lucy mackintosh presenting on how the Kidney PREM can support equity driven quality improvement ❤️

The reason waking up and getting to work everyday is meaningful.. a collective community of professionals and patients collaborating for something important.. #kidneydisease equity in #prevention and #intervention for all Gavin Dreyer Fez Weather Kidney Research UK #UKKW25