20 yrs ago:I was told my son had Cerebral Palsy after a horrific delivery.I didnt know what to do or how to cope Today:I completed my law degree,his case changed the law on informed consent for pts & he is now @ Uni studying Software Engineering #NeverGiveUp Happy birthday Sam!

📢Now live! Our new guidelines for the treatment of rheumatic conditions during conception, pregnancy & breastfeeding. They contain the latest evidence and best practice for prescribing immunomodulatory drugs and for treating comorbidities. Read more➡️ bit.ly/3NutbZl

Long-term condition care is at crisis point. Our new report #NoTimeToLose shows that the twin shocks of the pandemic and cost of living crisis have hit people with long-term conditions the hardest, and the health and care system is struggling to cope. richmondgroupofcharities.org.uk/no-time-lose-c…

Where wider (societal) interests and other issues limit the use of shared decision making ... ebm.bmj.com/content/early/… #ebm #SharedDecisionMaking #ethics #healthcare

Addressing epistemic injustice. A core reason for doing shared decision making Dariusz Galasiński authors.elsevier.com/a/1gh9d2dv7nRS…

Are you a rheumatologist, nurse, AHP who supports people with #RheumatoidArthritis to make treatment decisions? Please complete this anonymous online survey bit.ly/40Fqbir Please RT @RCNrheumforum NRAS Lesley Kay also on bluesky 💙 karl nicholl John Isaacs Mwidimi Ndosi

To better identify and support unpaid carers, it is helpful for information to be included in their #GP record. NHS England has produced guidance to help this to be done consistently: ow.ly/jyCn50LzCfo #NHSThinkCarer #PersonalisedCare We are Primary Care James Sanderson

The #PersonalHealthBudget (PHB) quality framework supports integrated care boards to share best practice, enabling the life changing outcomes that #PHBs can deliver for people. Forzana explains the positive impact her PHB has had on her life 👇 Read: england.nhs.uk/blog/new-resou…

Calling UK rheumatology clinicians! Please spare 15–20 mins to support my PhD research by completing an anonymous online survey. My research aims to understand what shapes treatment decision making in people with RA Please RT @RCNrheumforum BSR Julie Begum NRAS

📢Our #PersonalHealthBudget programme of support for professionals includes: - Regular webinars - Mentoring opportunities - E-learning modules, training packs, guidance + templates - Online collaborative network + discussion forum Find out more 👉england.nhs.uk/personal-healt… #PHB

Two in Five adults with rheumatoid arthritis are physically inactive – is this true for you? – Patient Talk patienttalk.org/two-in-five-ad…

On 19 April 2023, NHS Lived Experience is hosting ‘Making a Difference with Autistic People’ - an online event featuring people with lived experience of autism and those working within services to shape and influence how they are delivered. Register here forms.office.com/e/1nYrJYV6HE

It’s more important than ever that we don’t assume a person's level of health literacy. Consider these five approaches. bit.ly/2sBfXl8 #healthliteracy We're not on X anymore – formerly @NESKnowledge @RCGP Jason Leitch Scot Gov Health

Are you utilising the power of Shared Decision Making (SDM)? Data from the Personalised Care Institute shows that SDM enables clinicians to have better and deeper relationships with their patients, improves advice uptake, and reduces treatment regret. Read more here: ow.ly/1IER50NFPHK

The #PersonalHealthBudget Quality Framework supports #ICBs to create the conditions to meet performance expectations, focusing on improving operational delivery to help improve people's lives. In Control Association of Mental Health Providers National Children's Bureau Skills for Care NDTi england.nhs.uk/publication/pe…

Treatment of #rheumatoidarthritis has come a long way but we know little about how people with RA make treatment decisions. Calling UK rheum clinicians, please complete survey bit.ly/40Fqbir Please RT Caroline White Ailsa Bosworth MBE @clare_NRAS Dr Jane Wray el goog

I was honoured to present the Chief Nursing Officer Sliver Award for outstanding service to nursing to both Victoria Hewson & Lizzie Ette from University of Hull today. Thank you for everything that you are both doing 👏🏻👏🏻👏🏻#teamCNO #AllOurHealth

Read our latest article in our 'Research Made Simple' series - An Introduction to Feminist Research ebn.bmj.com/content/26/3/87 and our 'Editor's Choice' Gillian Wilson

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GP CRISIS Meanwhile, other countries have quietly produced effective primary care systems & content GPs Danish colleagues were bemused by my descriptions of wonky IT systems, the demand for appts & the attitude of some of the UK press Margaret McCartney 👏🏼👏🏼👏🏼 ft.com/content/ccfa05…