Have you read our latest edition of CF Life magazine yet? 📖 Read it in full online now ➡️ bit.ly/3LVXc2i You can also join our mailing list to receive future editions of CF Life right to your door. 💛

In January, we asked you to tell us your thoughts and write to your MP ahead of a debate in the House of Commons on #prescriptioncharges and #cysticfibrosis. In one of our latest blog posts, our team shares the latest updates on the campaign. 📢 ow.ly/rRwy50INCXp

most detailed image of a human cell to date

All set for #ukcfc, excited to hear a day full of #cf research! Cystic Fibrosis Trust

Today, we’ve written to @commonshealth Chair Sir Jeremy Hunt MP, with the Prescription Charges Coalition to ask for support to #ReviewTheList

Today, we’d like you to tell the Health and Social Care Committee (Health and Social Care Committee) how paying for your prescriptions in England affects you and your family. #reviewthelist (1/3)

Living with CF often requires a huge burden of daily medication essential to stay well. But around 2,500 adults with CF in England do not qualify for free prescriptions. With the Prescription Charges Coalition, we're calling on Sir Jeremy Hunt MP and Health and Social Care Committee to #ReviewTheList.

Last month we asked Jeremy Hunt to support #ReviewTheList so that people with long-term conditions like Crohn's & Colitis can access vital medications for free. Join us by sharing your story and tagging Sir Jeremy Hunt MP and Health and Social Care Committee so they know how important this is to you.

Please let Health and Social Care Committee and Sir Jeremy Hunt MP know how having #cysticfibrosis and paying for your vital prescriptions affects you. Share why we need to #reviewthelist

There's still time to join the conversation and let Sir Jeremy Hunt MP and Health and Social Care Committee know why they need to #ReviewTheList! Share your story with a snap of your daily medication and don't forget to tag them. For more on the campaign visit our website. ➡️ ow.ly/Yz2L50JJROe

The Royal Society’s Summer Science Exhibition takes place this week (6-10 July) & features an exciting exhibit on a specific type of virus called bacteriophages – a hot topic in #cysticfibrosis. Swipe across to learn more about bacteriophages ➡️

1️⃣ day to go... #WEURO2022

We look forward to working with Liz Truss as the new PM to improve the lives of people with cystic fibrosis. The biggest challenge to tackle will be the cost-of-living crisis. And we need immediate action to help those struggling with their energy, food, housing and travel 1/3

This afternoon, our Public Affairs Officer Grace Paget met with 💙Rachael Maskell MP MP, in her role as a member of Health and Social Care Committee, alongside the Chair of the Prescription Charges Coalition, Laura, and Aaron (Dr Aaron Brown) who has CF to discuss our campaign... (1/2)

Great to have the opportunity this week to speak to the Health and Social Care Select Committee (alongside Chris Askew and Liz Ashall-Payne) about the potential of data and digital to transform care and support for people with cystic fibrosis.

Thank you to Jim Shannon MP for leading a debate in parliament yesterday on the impact of #cysticfibrosis on living costs & to all MPs who attended on behalf of their constituents who live with CF, are parents of those with CF, and are struggling with the associated extra costs.

Today we delivered over 1,000 signed prescriptions from the CF community to UK Prime Minister, calling on the Prime Minister to urgently review the outdated prescription charges exemption list, drawn up in the late 1960s.

An important day in our prescription charges campaign, here’s a little look behind the scenes with us. Please continue to support the campaign by completing our survey and signing Nick’s petition, details in the thread👇